I'm beyond frustrated through this process.
Background. Mom has pulmonary fibrosis and she in end stages of disease. Earlier this month hospitalized with UTI. Plan was discharge w hospice. I thought I did my due diligence, asked my friends who been through this for recommendations and then followed with questions. One of my must haves are Spanish speaking Nurses for my mom. I specifically stated Spanish speaking Rn, Lvn and bath nurse. Surprisingly many hospices didn't have Spanish speaking RN. Ok.
1st hospice I chose ended up being very pushy, even though I already told them they have our business. I fired them after they continued to be pushy after warning them. 2nd hospice said they had Spanish RN. Came time to set up admissions to hospice, no Spanish RN, so I fired them. My moms UTI came back and week later return trip to hospital. Hospital helped me with few more hospices, again vetted them and decided on company who said they had Spanish RN. I was very transparent with why I fired last 2 hospices. It's Thursday 4pm. Dr said my mom ready for discharge tomorrow morning, great! Hospice now tells me no Spanish RN available as she has full case load!!! Wtf?!?! I feel like these companies tell you what you want to hear so you sign up , put you between a rock n hard place.
In the meantime, I've had several people from social workers to doctors saying that I am not ready to face hospice and end of life care. Ok. Maybe that's why I fired 1st two. But again from the start, one of my must haves are Spanish speakers, so it is wrong of me to fire 3rd hospice who reassured me they had Spanish speaker and not able to deliver?! It's not whether I want hospice or not, but my mom definitely needs it. It scares me I have a hard time identifying another level of decline. A nurse who visits regularly could spot this better than I. But at the same time I refuse to be manipulated into something I don't want. Hospice and nursing homes seem to be predatory and thirsty for Medicare dollars.
Am am I the one who is being difficult and in denial?
How do I choose a hospice that I can trust that meets my needs? I'm in Southern California and surprised it's been hard to filled skilled RN that speak Spanish. My mom scheduled to discharge tomorrow morning.