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You are scared you were worried, but most of all you come across as being a loving daughter. Seriously consider long term care. Visit often, advocate, but do not feel like you need to be her side by side, minute by minute companion in this journey. It is OK and good to take care of yourself.
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I am an Rn and work for the dept of aging. Contact social service/dept of aging and then can help you out. Perhaps mom qualifies for medicaid. If so, she can get an aide daily thru them. If not, ask for the names of some home care agencies and interview a few of them. Having an aide a few hours a day is a good way to start. If that doesnt work, mom may be ready for assisted living. Most AL are private pay but some have grants and a few take medicaid. Then, of course, there are the nursing homes, some which have memory impaired units.
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My 85 yr alz husband has been going to adult day care 2 days wk. My daughters decided to give me an 80th bday gift of 3 of us going to England. I agreed to put hubby in respite care 14 days. I wasnt sure if it would work as he wont go to bed w/o me. They promised hed have a roommate. Well my thoughts got to me & got shingles 3 wks before vacation. Thank goodness i had gotten the shot plus went to dr for pills. That was a clue to me, ok God im getting the message to quite trying to do it myself so now God you get it all & im out of it. Turns out he told me he enjoyed hisself there. I actually didnt think of him on my trip. I was just trying to keep up w the fast walkers. My point is it will work if we can leave it up to God. I took the foam pad off his bed to his respite care as he loves the softness. One time he told me it was nice as no one expected anything from you. (Short memories). I will also add a lady who is in my support texted me she saw my hubby & staff said he was doing fine. Was nice to hear when your in another country. If it was time i wouldnt hesitate to place him there. It is only Memoty Care. My husband was told dementia 08. He has no clue what that is & who cares for him to know. We live one moment at a time. Always agree w them as 1 min later they won't remember. We know the end & must take care of ourselves to be their caregiver lest we go first.
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your memory issues are stress related. This disease only gets worse...not better. Answering the same question a million times is nothing compared to how much worse it can get....I'm finding out that home care may not be the answer for my mom. She needs more care than I can provide at home. If she needs a test, then they have to come to the house and shlep, for example, an X ray machine up the flight of stairs & get 2 men to do it. We have a tiny bathroom and can't fit the wheelchair inside....so a commode/wheelchair transfer was I thought the answer. Then my mother fell when one of the two aides couldn't get the wheelchair under her fast enough....resulting in a fracture/bleeding....and emergency surgery on her leg. I thought leaving her home in the care of 2 home health aides was ok.....and that I could leave the house and go out. I WAS WRONG AND MADE A MISTAKE!!!!! D@mm%t
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so will Medicare cover respite care?
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Medicare covers respite care if the person is on hospice. Otherwise it is out of pocket. Respite care is usually in a facility with appropriate level of care.
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My hubby diagnosed with parkinsons/lew Body dementia 2010. after 3 Neuro specialists now decided not Lewy Body and ??? parkinsons, i have lost faith in these Dr's. Hubby had brain angio 2 wks ago now has incontinence/extreme salvination probs, I ask / now what?????? have just registered with ACAT, so shall see.
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Medicaid also covers Respite care. The nursing home told me it's covered by other medical insurance too. Ask the place that's offering respite for a list of insurances they accept for it.
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