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Which best describes their mobility?
How well are they maintaining their hygiene?
How are they managing their medications?
Does their living environment pose any safety concerns?
Fall risks, spoiled food, or other threats to wellbeing
Are they experiencing any memory loss?
Which best describes your loved one's social life?
Acknowledgment of Disclosures and Authorization
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
Remember, this assessment is not a substitute for professional advice.
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My mil was put on hospice back around the first part of March. Now she can use her feet and legs to move around in a wheelchair somewhat. Feeds herself. But we still have to pick her up to the bedside faculties and hold her up.
This really is a question for discussion with MD. I agree with AMZ that this is likely something in which you are seeing improvement which may or may not be temporary. The MD knows the patients best. Hopefully someone with POA can fully discuss diagnosis and prognosis.
Improvement is common but I wouldn't consider it "beaten". There are peaks and valleys with all disease.
Hospice will evaluate and determine if it should continue based on the criteria and medical need. If the improvement is determined that hospice is no longer needed then they will discontinue. When a decline happens then Hospice can be reinstated.
Celebrate the victories of improvement and cherish the days of life that remain.
There is no beating cirrhosis of the liver. The liver is damaged. The only option is a liver transplant and MIL maybe too old for that. My neighbor was taken off the donor list at 75.
Thanks for your response. I wish it was better news, but thank you. She is 81, and to old for the donor list. I guess we just be glad for the time we have. Thanks again.
"Improving" once on Hospice is common. It is probably due to m ore frequent medical attention. The nurse comes each week. A CNA comes 2 times a week and gives a bath or shower. Both have positive impact on physical and mental health. Not to mention some of the "pressure" is off you so you become more relaxed. The Hospice nurse can give you an expected course as to what will happen in the future. What they can't give is a timeline. Take the good days for what they are.
by the way if it gets to the point where picking mom up is a problem ask about a Sit to Stand that will help you transfer her from bed to commode or to her chair more easily. Or if she has no strength in her legs and can't stand at all a Hoyer Lift will help with transfers. Both much safer than trying to transfer her without equipment.
Probably not. It's not uncommon for folks under hospice care to improve somewhat and then decline again. It's part of the end of life roller-coaster. My late husband was under hospice care in our home for the last 22 months of his life and he would decline, then improve some, then decline, then improve some and so on and so on. Until his decline was irreversible. His hospice nurse told me that she thought the reason my husband lasted so long was because I took such good care of him, so perhaps that's the same with your MIL. So I will just say enjoy whatever time you may have left with her.
Thank you so much for your response. I am sorry for what you went through and what we are going through. But we can both say we don't have regrets that we did and are doing what we could and can. God bless you sweet soul.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
I agree with AMZ that this is likely something in which you are seeing improvement which may or may not be temporary. The MD knows the patients best. Hopefully someone with POA can fully discuss diagnosis and prognosis.
Hospice will evaluate and determine if it should continue based on the criteria and medical need. If the improvement is determined that hospice is no longer needed then they will discontinue. When a decline happens then Hospice can be reinstated.
Celebrate the victories of improvement and cherish the days of life that remain.
The Hospice nurse can give you an expected course as to what will happen in the future. What they can't give is a timeline.
Take the good days for what they are.
by the way if it gets to the point where picking mom up is a problem ask about a Sit to Stand that will help you transfer her from bed to commode or to her chair more easily. Or if she has no strength in her legs and can't stand at all a Hoyer Lift will help with transfers. Both much safer than trying to transfer her without equipment.
My late husband was under hospice care in our home for the last 22 months of his life and he would decline, then improve some, then decline, then improve some and so on and so on. Until his decline was irreversible.
His hospice nurse told me that she thought the reason my husband lasted so long was because I took such good care of him, so perhaps that's the same with your MIL.
So I will just say enjoy whatever time you may have left with her.