The hard part is over.
I'm matching you with one of our specialists who will be calling you in the next few minutes.
He said that if she suffers side effects that he will discontinue it. He says that any benefits are small enough that they aren't worth side effects.
So from diagnosis in Feb. 2015 (stage 4) to July 2018 (stage 6) she has progressed 2 stages in 3 years. Is that progress or effectiveness? I don't think so.
The gripe I have about Alzheimer's drugs is there is no way to do a double blind study (that's the nurse in me). Alzheimer's is such an individual disease, there is no way to see if it actually works. Who knows if the progression is lessened (because that's all it does) or not? You are going to pass through the different stages whether you take the drug or not. The big drug companies are making millions on it however, with the "chance" of slowing the progression. People are desperate.
I'm going to speak with mothers doctor about stopping it. But, since she's been taking it for a long time, she will need to be weaned off it or it can cause nasty side effects. Go to Drugs.com and read up on it.
She's getting cranky (heck, at 95 1/2, I would be too!) and is refusing medicines (spitting them out). She is beyond any help the drug could give her at this point. It really is for the early stages when you still have more of your mind. Poor mom doesn't remember or know a thing anymore. She lives in a void. So sad.
I wouldn't be bothered taking it if it caused any side effects. Just my 2 pesos.
Aricept was just in case. Her only side effect was strange, frightening dreams, which stopped when we stopped the Aricept. During her first year with us we saw more evidence of vascular dementia, not Alzheimer's, so discontinuing Aricept was an easy decision. Good luck with yours.
my dad slept ALOT. (he was never a lazy guy tho) but as the disease took over. he slept late in the morning. got up and then would fall asleep a lot during the day.
towards the end...last 3 years. sleep almost all day. up for meals.
so I don't know if meds like Aricept changes anything....(but perhaps it made him live longer idk)
my mom has ALZ too. probably late moderate. her geriatric dr did NOT prescribe mom anything after saying my mom probably had ALZ due to the slow progress of dementia. I'm ok with that. she did get a RX for anti-depressant due to paranoia and making up crazy stories.