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Hi there and thanks for reading. Is it possible that it is better to live somewhat unappily, but guilt free, than vice versa. My mom is in a frail care facility, but I live in perpetual guilt and pity as she is sad and lonely, but when she lived with me, I felt I couldn't cope. My mom is 91 with vascular dementia. The doctors say she has moderate dementia. She is frail, but in relative good health. With help, she can totter around or use a walker, and feed herself, but needs help dressing and washing. She loops all the time and can't verbalize much; exhibits all the "common" dementia traits, from hallucinations to paranoia to incontinence. I'm 60. I don't have the financial means for a carer or a Home, and I'm divorced with no children, and have no siblings. She was living with me for three years. I work from home, but it is a full-time job and my hours declined to half as her needs increased. Then, and now, she is actually quite placid, undemanding, co-operative and pleasant, if she gets her way. But, she was, and amazingly still is, a controller, and resisted the routines I (tried to) put in place. To be fair, it was not so much that she was a burden, but that I couldn't then maintain my personal discipline with work and slept badly, listening out for her, sometimes a few days without sleep when she was having "episodes". I got grumpy, and shamefully, resentful and lost all confidence in my ability to manage anything. The family stepped in and got her into a frail care facility. She hates it as there is a routine and she hates being told what to do. Worse, the residents sit in a lounge during the day so she can't lie on her bed all day and talk to her imaginary friends. (She was a housewife and never worked or had hobbies or interests except church. And my dad was a sales rep and seldom home, sometimes for months.) She hates exercise, games and activities. She's not interested in TV or reading. The worst of it is that she makes little sense, so she can't communicate and make friends So, she is very lonely and confused why she is there when she should be with me. She cannot understand any explanation. The phone calls now (I phone her daily as she can't dial a number) telling me how she misses me and loves me and can't live without me and I am her daughter and have an extra room and the Bible says families must be together and she might die and then I'll be sorry ... are driving me crazy. And I get it - she shouldn't have to live as she is, alone and lonely and confused. I don't know how I will manage again if she comes back, but I guess one foot in front of the other; maybe she will get so frail it will become easier because she won't be able to keep trying to do what she wants. So, I wonder if in the long run the frustration and irritation (and debt) would actually be better than the guilt. For me, it still comes down to maybe it is better she is happy now as I can start again when she is dead and at least I will have fewer regrets. In short, we can't both be happy. Why should I be the one, especially as the conundrum is I won't be knowing she is unhappy, whereas if she is happy, she won't really understand that I'm not. I know the majority of advice will be don't do it, but I wonder has anyone taken that plunge and how did it go?

The first thing is to set down the needless baggage of "guilt".
It isn't appropriate to your situation.
You didn't cause this, and guilt requires causation. Change out the g-word to the more appropriate "grief". Your mother is grieving and so are you as you stand witness to the losses neither of you can do anything about.

As well as not causing this, it is important to understand you aren't omnipotent or in any other way god-like, so you can't fix it. And attempting to manage the unmanageable will end you up with little thanks for anyone. The man who is drowning may take down the rescuer with him.

It is very important also to know that, while your mother is "sad and lonely", and you can grieve that, you cannot change it, and you have already acknowledged the truth, that her living with you is not sustainable, not manageable, and doesn't work for EITHER OF YOU. Should you take her in you would quickly learn this all over again, and meanwhile will have done both SELF-HARM and harm to your mother by giving her hope and then smashing it when you go under.

I would get some psychological counseling with a good cognitive therapist. Until you do that you will not be able to let go of these WRONG things you keep telling yourself.
I would hope you know, can find the serenity prayer and can practice it.
This isn't something you can FIX and you aren't responsible for the happiness of anyone else including your mother.
She may, in fact, not be happy again. Old age isn't, I have found personally (at 83) a time of delight and happiness other than brief moments. It is more about learning acceptance. And acceptance is the textbook before your poor mom right now.
As my brother said when he himself was in care "I don't much like it hon, but it's much like the army when I was young. While I don't LIKE it I have to ACCEPT it and make the BEST of it." And he DID. That was his choice, as your mother's choices are now set before her on her own plate.

Recognize your limitations. Embrace them. Live the one life you are given.
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Bulldog54321 Oct 26, 2025
Exactly right. It’s not guilt. It’s grief.
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I felt sad my mother lingered longer than I could handle physically and also emotionalky. Like you say, I harbored a lot resentment for various reasons.

She was placed in a LTC facility. I felt bad that she lingered too long with no quality of life and had to be placed there. Kept hoping she’d just die in her sleep in her home but I know now that scenario seldom happens.

We placed her so that she could spend her last days with my father who was already there for over a year. She died at the 9 months later.

i have no guilt that my sisters and I placed her there. . I know I did the best I could and have no regrets.
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Reply to Hothouseflower
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TimeOut Oct 27, 2025
I'm so sorry what you went through, and am humbled. What I'm taking from this, is not to have a fear of regrets. Thank you.
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I could've put my mother up in the Palace of Versailles and STILL it wouldn't have been enough, STILL she'd have complained and been unhappy. The vascular dementia just worsened a chronically miserable persons condition. Had I taken her into my home, then three of us would've been miserable; mom, my husband and myself. Plus I'd have felt guilt over the fact that bringing her to live with me STILL didn't make her happy but ruined my marriage.

A happy person is happy wherever they live. A miserable person is miserable wherever they live. Many of us like to delude ourselves otherwise, and live with guilt as a result, thinking we have The Power to make other people happy, especially ones with dementia.

Check out the website Outofthefog.website to learn about FOG, Fear Obligation and Guilt, and how to get rid of it and live a good life.
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Reply to lealonnie1
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TimeOut Oct 27, 2025
Wow! This is so interesting - the outofthefog.website. I just took a quick look this morning, but I am sure it will be riveting. Just a glance and it's like someone peeked into my head! And yes, a reminder that this is not only about dealing with my mom's needs, but my own broken bits, which ultimately will help me to help her better. Right now, it's lose-lose. Lots of food for thought. Thank you!
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You didn't make your mom old nor did you make her sick. And you will NEVER be able to make your mom happy at this point in her life, so quit trying.
You gave caring for her in your home a shot and it was quite literally killing you physically, mentally and spiritually.
Your mom has had her life and now you deserve to have yours. Your mom is where she now needs to be and will only continue to get worse sadly as death is the only outcome of someone with dementia.
And please don't be spending even one penny on your moms care as you will need that some day for your own care. If money is and issue then you'll have to apply for Medicaid for your mom and if need be get her placed in a Medicaid facility if the facility she's in now doesn't take Medicaid.
And you have nothing to feel guilty about as guilt is for those that have done something wrong and all you've done is love your mom and are making sure that she's receiving the care she now needs.
Please replace the guilt word with the proper word of grief as you are grieving the loss of your mom, and who she once was. And that is understandable.
God bless you as you travel this final journey with your mom.
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Reply to funkygrandma59
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TimeOut Oct 27, 2025
You're right about grief. In a way she'd already "gone". I can't have any kind of conversation with her, can't explain the situation to her, can't even make sense of what she means. I got on much better with my dad, but when he died at 70 I grieved only very briefly. We all laughed and joked at his memorial, remembering him. It wasn't tragedy. I KNEW he'd say: OK, that's enough, just get on with your life now. This experience with my mom is totally different. It is useful to think of guilt as grief; perhaps it will be easier to accept, as another post said. Thank you.
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Unless she or you have the funds to pay for a caregiver 24/7 trying to care for her yourself would destroy you. And she would still try to control you.
By the way by laying this "guilt trip" on you she is still controlling you.
You mention you are divorced with no kids and no siblings. But you say family stepped in and got her into the facility. What family? If other members of the family did not think they could care for her, if you were burned out then I can not imagine it would be easier since with dementia there is constant decline so she would need more help now then she did when she was living with you.
If you are still working can you manage with your hours cut in half or more than half as her needs increase?
You have done the right thing. Taking care of someone does not mean that you personally have to care for them. It means that you make sure that they are safe, they get the care they need.

If you feel that you have to bring mom home before you do look at any and all resources that might be able to provide help.
Was her husband a Veteran? If so she may qualify for Aid and Attendance.
Are there programs through the Senior Center in your area that may have grants that might help with caregivers.
Contact Area Agency on Aging and see if there are programs that might help
Is there a Senior Volunteer Agency that might help with caregiving on occasion.
Is it possible that mom would qualify for Hospice? If so you would have a Nurse weekly, a CNA 2 to 3 times a week to give mom a bath or shower. You could request a Volunteer that could sit with mom for 3 to 4 hours on occasion.
All medical and personal supplies would be ordered and delivered. And Medicare/Medicaid would cover Respite on occasion.
If mom does not qualify for Hospice there is a fairly new program with Medicare that may provide some help and support it is called GUIDE please research this. It can cover about $2500 per year in Respite support as well as other benefits.
Bringing mom home is a big decision and it is not going to be easy and if you find you can not manage returning her to the facility may not be easy. .
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Reply to Grandma1954
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TimeOut Oct 27, 2025
My mom came from a family of 9 siblings. She's the last one standing and there are three brother-in-laws. The in-laws and some of the cousins (there are quite a few of them!), where they can afford it, are shouldering most of the costs. It's actually more cost effective than a full-time carer.
You're right, unfortunately. I have to look at the bottom line now, the $s.
And, yes, returning her would be difficult, if it came to that. For me, for her and for the family. I must be more practical and stop thinking with my heart. Thank you.
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Your mother is choosing to be unhappy. It sounds like she has done that all her life. You said yourself that while she was living with you she was cooperative and pleasant only when she constantly got her way, at your expense. She is a master manipulator, and she's continuing to try to manipulate you on the daily phone calls. Don't fall for it.

She had no hobbies or interests before her dementia, and now she rejects tv, books, and all activities at home care home. Again, she is choosing to be unhappy, and guilt-tripping you for her lifetime choice. Just let her be, where she is, and reduce your phone calls with her, as they just trigger her complaining mindset.

It's also possible that she is content or even happy in the home, but throws on the theatrics when she's talking with you. This happens often.

Please move forward with creating a happy life for yourself. You are a worthy person and deserve it.
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Reply to MG8522
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TimeOut Oct 27, 2025
That is very perceptive. One of her church friends also told me that "she's never been happy anywhere". This is also the MOST difficult aspect of her dementia to handle. It's what goes through my mind when I am fed up. And then I think: well, that's past and now I must just forgive and forget and it's too late anyway because she doesn't know she's still doing what she always did. And yes, she does it sometimes for my benefit. She tells me she doesn't talk to anyone, but when my cousin visited her once, she said she could hear my mom's voice above everyone else's even before she went to the lounge, lol. The activities lady said she does join in the games. You're right, I must be more objective about this. I'm going to make a written note of some of this advice to help me to refocus/ put things into perspective when these kinds of events happen. Maybe that's a start in changing MY way of thinking! Thank you.
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I think you need to let it go.

30+% of caregivers die before the people they are giving care to die. You need to work to put into your retirement and also to have extra money for your rainy days and your golden years.

You didn’t make her old. You can’t fix her and you aren’t responsible for making her happy.
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Reply to Bulldog54321
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TimeOut Oct 27, 2025
You've hit the nail on the head. I shall print this on my forehead ... or at least on a piece of paper next to my desk. Thank you.
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Thank you to everyone, without exception, for your replies. They have given me a lot to think about in some cases, and in other cases a reminder of what I know, but keep ignoring.
I remember my very first boyfriend in my late teens and he cheated on me (lol, oh I wish those days of first love back, warts and all!). And a friend said to me, "You're not the only one you know." I was miffed at the time, thinking she was telling me to stop feeling sorry for myself. But, later I realized that what she meant was I was not alone. And today, when I read these comments, I find great comfort, knowing I am not alone.
Thank you!
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When she lived with you it eventually came to you not coping. You said that. So you know you will not cope if you decide to do it again, right? I suspect it would not last long if you take her back home, as her condition will only get worse, then you'll have the entire placing her in a facility to do over. Might her wanting to be with you a loop that she's in, repeating it, perhaps not so much out of manipulation, but because it is stuck in her head for now. (But it is still somewhat manipulation for sure). Hopefully it will leave her head to make room for the next loop. I think the repetition makes us think what is being said over and over is super important, but she probably doesn't remember having said it already. I hope whatever the future loops become they won't make you feel so guilty, making you think there is something you can do about it. It's hard to witness, but it is actually the job of the facility to help her into some activities that will allow a bit of pleasure for her. Talk to them about it. Have they tried music? Or does she at least have a way to listen to music in her room with the imaginary friends? At least she has them. I say hooray for imagination!
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Reply to ArtistDaughter
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TimeOut Oct 27, 2025
LOL! She LOVES her imaginary friends. It is one of the (many) amusing things, in a sad way. One day she was chatting to them and I walked into the room. Usually she stops (there must be a part of her that knows it's not quite 'normal', but this time she carried on talking to her visitors, nodding at an empty chair, smiling at the empty couch. Unfortunately, she is not allowed to be in her room alone during the day as she is a "fall risk". They do have monitors, but that's no good when she's already fallen as there aren't enough carers to watch everyone all the time. I have asked that she be allowed to go to her room after lunch to doze for an hour or two and the nurse said OK, but I suspect they don't do that. I will follow up on that one. Thanks.
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Mom being happy in your home was only being brought about because of the hoops you were jumping through, along with her resisting your efforts to make the arrangement livable for you. Mom is also today the best she will ever be, the forward march of dementia and all its cruelties continues daily. So you bring her again to your home and she worsens, is not happy, her behaviors become more than you can handle, then what? Back into managed care. Isn’t it kinder to leave her where she is, accept her unhappiness is not your fault, and rest in the knowledge that you’ve done your best? When you call tell her you miss her too, offer to bring her something she enjoys, then limit your exposure to the negativity and banish the guilt. I wish you much peace
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Reply to Daughterof1930
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TimeOut Oct 27, 2025
Yes. The comment you make about "back into managed care" is spot on - one of the pieces of advice that keeps coming up is that they need routine and that new environments confuse them. Thank you.
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