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Our LO went to skilled nursing after a hospital stay. She is on seroquil for her behaviours When she is with us she doesn’t take it. She is driving them crazy. She’s lost 10 lbs. This happened once before 2 years back in a facility although we didn’t make a connection. She gained back her weight when she came home. She usually wants to eat nonstop. Her blood count is low and they are now treating her for that. I think the staff just thinks it’s her dementia progressing. Anyone experience this with their LO?

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My dad had behavioral variant frontotemporal dementia and had terrible behavioral problems including endangering his own safety and my mom’s (his caretaker). His neurologist tried prescribing different things. The first few made him worse in various ways. The only thing that helped was Seroquel plus Trazodone.

His appetite did decrease, but I think this started before the Seroquel. I was surprised because the symptoms of FTD are usually described as nonstop eating of sweets. But he ate less and less types of food the last several years of his life and the last year of his life would eat only small amounts of vanilla ice cream and orange juice. He lost a LOT of weight. The FTD also gave him swallowing problems so I think that was part of it too.

good luck and best wishes.
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