My Partner got up during the night and became disorientated. Any advice?

Why would you be afraid to notify a nurse of an additional fall? First, they can't force you to place him in a facility for falling. Second, it may show a pattern which they can investigate. Has any medical workup been done to try to identify the falling episodes?

You've twice mentioned disorientation. That could be from medicine, even from stress, from ear or sinus infections....these are worth checking out.

What about the hallucinations? W/o reading your other posts, I'm assuming that these have occurred in the past and some medical reason has been identified for them?

I don't know how they can force you into a facility placement unless they apply for conservatorship, but given the challenge for medical practices of maximizing their time and profit, I doubt if they would be inclined to do that. They might contact APS though, but I'm wondering if you are concerned there's more happening beyond the falls which could trigger intervention.

In the meantime, if you are legitimately concerned about this, start identifying in home care solutions to demonstrate that you're prepared to care for him at home, barring unforeseen circumstances.

A bedside commode could help a LOT!

Oregongirl, you may take comfort in knowing that if it is Lewy Body Dementia or Parkinson's Disease with Dementia that he has, he may continue to recognize you and others to the very end. That is not usually a part of the brain that is damaged in those diseases.

I recall a night when my husband got up, opened a closet door, and stood there peeing. Yup, a bit disoriented I'd say. This is not unusual with dementia.

I really think you should discuss all of his medical symptoms with his medical providers. Falling is common with his diseases. It isn't your fault, and it is not the fault of being at home. But his medical providers may be able to provide some help if they know the full range of symptoms.

Good luck to you. I hope you will be able to keep him home. I think Garden Artist is right about starting to investigate what in-home care help is available, so it won't be an emergency search when it is desperately needed.

Early on in my moms diagnosis my father didn't want her getting out of bed by herself at night. He is hard of hearing so without hearing aids in he would not hear her. He decided to tie a ribbon on both their wrists so he knew when she was getting out of bed. This actually worked for quite some time. As things progressed we just put the commode beside the bed. I would always put a little water and a squirt of bathroom cleaner in the pot to keep it fresh smelling.

Good, good suggestions. Sometimes disorientation isn't related to age. My brother (in his twenties) peed in the corner of his room several times while sleepwalking- of course that was in his bar-going days....................................

His doctor can definitely refuse to release him to come home if he feels either he or you would be in danger. My partner was admitted to the emergency room after having hallucinations for one night and the next day. After anything medical was ruled out they sent him to the psychiatric hospital for an evaluation and after 2 weeks he was sent, by ambulance to a care facility. The doctor said it was out of my hands, and I had no say in it anymore. He is in a facility about 50 miles away in a big city where I can only get to see him once a month. We are both very unhappy about it, but he appears to be getting decent care with few exceptions. It's heartbreaking for me, so I sympathize with you.

Another thing, with Parkinson's patients, I am finding it miraculous how they bounce back again and again! It is truly encouraging to be a part of this, watching the brave be really brave!
Have you seen the blog by John Schiappi here on aging care.com?

it could many things that caused his disorientation, but by all means you should advise the nurse of his falling. it could be something else that caused that as mentioned in one of the posts above. maybe he could ring a little bell when he has to get up, or remind him to call you and you can help, that is what my dad did (for awhile anyhow). You might want to enlist some "night time" help so they can help him IF he wakes in the middle of the night to use the bathroom.

My mom's nighttime disorientation seems to occur less often and less severely now that we stopped giving her tylenol PM before bed. Someone in elder care alerted me to studies which show that this can be a problem for older people. agingbraincare/uploads/products/ACB_scale_-_legal_size.pdf
Be sure to read the bottom of the page where it tells how each category is determined. The PM ingredient is on this list as possibly causing delirium, so I quit giving it to my mom and it has helped. The doctor recommended melatonin, so we are trying that now.

I agree with the above, it could be a side effect from a medication. You might also try to limit the amount of fluid he intakes a couple of hours before bedtime. Speak with the doctor about these symptoms, it could be something medical.