I am nearing 68 and have a genetic progressive disease but have no one but myself to rely upon. I can't find a primary care doctor who cares to learn about my disease and help me to deal with things like loss of eyesight, balance problems, increasing jerking of hands so I "toss my food," memory problems, etc. I make a small fixed income, but too small to qualify for Medicaid. I want my independence, but I am also very lonely. If it matters, my disease is called MERRF and is caused by a specific mitochondrial DNA mutation. It is a rare disease and can turn from asymptomatic to terminal quickly or never. I lost my youngest son at 35 and my 49-year-old son is severely affected and worsening. My symptoms don't seem as severe, but they are also of the type that are less visible. My activities are very dependent on my eyesight (reading, piano, computer research, etc.) but I have optic atrophy and it is worsening. What other kind of details do you want?