I was co-petitioner, with her long time companion, to win guardianship from her family after she had a major stroke. She lost her speech and has some cognitive issues now as well as being confined to a wheelchair. The nursing home she was in, was so bad that her Guardian ad Litem told the judge he wouldn't keep his dog there! We moved her to a private assisted living facility, which her companion paid for with her SS, plus the amount not covered coming out of his pocket. She fell out bed there the first week and they took her to emergency. She was fine, but they informed us that she was no longer on Medicaid. Evidently moving her knocked her off the system. While her companion is financially well off, he is far from rich and he had counted on Medicaid to assist in paying for her doctor and hospital costs, as well as her living aids like a wheelchair. He has gotten a bill from the ambulance service that they say is not covered. I am going to assume that her hospital bill, or 20% of it, will be coming to him as well. This was an unexpected twist! His lawyer says he doesn't have to pay it. They aren't married and the bill is hers. She has nothing. But why would she be kicked off Medicaid just for moving? The money he spent was paid directly to the assisted living facility, which is what our lawyer told us to do. It was not given to her. She is saving Medicaid money IMO! They said she can only go back on if she moves to a medicaid nursing home. That doesn't sound right to me. There are lots of people on Medicaid who aren't in any nursing home. I don't understand why, if her income hasn't changed and she still has no assets, she was removed from the program. Now her guardian is searching for a nursing home that accepts Medicaid that isn't as bad as the one she was at. Instead of having a nice homey place with a private room, she has to go back to overcrowded, understaffed facility not much different than where she was. Not what we had planned. He even looked into bringing her to his home, but was told that he could only get in home assistance for 4 hrs a day, even assuming she can get back on the program. They are both in mid 70's and he can't lift her by himself to change her or move her from her chair to the bed or to a vehicle to get her places. Paying for the other 20 hours a day will cost about double what the private AL home was costing. So it's back to the crappy nursing home. It seems that Medicaid is All or Nothing. It's a shame she has to live this way, when with him contributing toward her living expense, she could have a decent quality of life and cost the government less money. I guess my question is, does this sound normal? Or do we have to spend several more thousand on a Medicaid Attorney to figure all this out? Thank you!