Could I get some input please? My 96 yr old mother has been at the SNF for 10 weeks now after four years at my home. She has masses in her right lung that cause fluid build up in the pleural sac that were needing to be drained pretty constantly. They are assumed to be cancer but no biopsy due to age. She has lost weight and is fragile, needs help bathing and daily care, but she is in NO pain whatsoever. She is only in distress when the fluid builds up and it's time to drain and she can't breath well. Her left lung is clear with no problem. The staff at this SNF are the best and most caring facility I could ever imagine.
One of the nurses brought up hospice to me so that they could make her more comfortable. When the fluid builds she can't breath and gets panicky. So I of course agreed to meet with them.The hospice people came and we're very insistent about morphine and it's ability to relax the lung and ease her breathing. Her doctor said no to morphine when the nurses asked.
Long story short, she is fragile, just got a drain put in yesterday so that fluid wouldn't build, but I had signed for the Hospice so they started today. (They wanted to start after the drain because they didnt want to pay for it)
First thing the nurse at SNF informed me of was that Hospice stopped her baby aspirin, and vitamin D. This confused me. They kept telling me that Hospice doesn't 'hurry' death along, it's just for comfort and if she recovers she can always come off Hospice. So my question is this. Why did they stop the baby aspirin? That's to prevent a stroke. It's not expensive, her doctor wanted her on it. What does that do for comfort? I understand Hospice wouldn't want to pay for the vitamin D, even tho it keeps her from getting depressed. But now I feel uneasy about the aspirin. They didn't remove it because of a bleeding risk.
If you work for Hospice please don't take offense and answer with nasty comments. I've seen some of those comments made to people. I'm only asking for some input from people with similar experiences or words of advice that might help me to understand all this. Thank you all. I've found a lot of help on this site for the last couple of years.