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My family has our sister in a Nursing home under Hospice and I am so frustrated with Hospice and the Nursing department at the Nursing home.A DNR is signed and due to my sister not thriving with a feeding tube and unable to swallow and having a horrible infection not responding to any antibiotics the hospital Doctor told us we should now let her go comfortable and peacefully so we placed her under hospice in a nursing home.The problem is the hospice nurse is only going by what the nursing home nurses are telling her instead of what the family is seeing.We see her numerous times in horrible pain but the nursing home nurses are always reporting her calm back to the hospice nurse when thats not the real truth.They are even telling us they know her better then we do and all the moving around is normal for her since she was a patient at this nursing home prior to her becoming so ill with less then six months to live.The nursing home even wants to try feeding her again by mouth even though they said they knew she would probably asperate but they said they still would like to try.Am I the one that is not getting it or is this nursing home plus nurses and the hospice nurse way off base and should be reported ??My sister is to fragile to moved at this point and is in to day 11 with no formula or liquids of any kind but seems to still be having an output daily thru her cath.bag I'm thinking this is not normal either.Please help I need some insight !!!

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When my mom was dying we chose NOT to go with the state/hospital hospice people. Instead we chose a private hospice program that also billed Medicare etc. Everything was the same as far as money was concerned, but they were wonderful. If we have to do it all over again with my dad, it'll be the private sector hospice for sure.
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I would immediately call her doctor and the director of the hospice program. Explain the situation as you have explained it here. The two need to communicate. God bless your sweet sister and I hope you get the relief for her that she needs. It really stinks that you need to have extra stress placed on you during this horrible time. You don't need it, that's for sure.
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