In the morning, and daytime, he is a "Kid in the candy store" happy, laughing, smiling, at night he becomes an angry, swearing, confused, frustrated, hates everyone....guy. He is on home hospice care, and I KNOW it is too much for my mother to handle..but every night is a chore getting him to bed, or the bathroom, and he won't use the commode. He has to physically walk to the bathroom but once he's there and gets back up, he locks his legs and refuses to walk, sometimes sitting or directly kneeling on the floor, in which case she needs my husband or 911 to pick him up. His hospice nurse is nowhere to be found, and the Occupational Therapist is the best we have seen so far. Because he has a pacemaker and not able to do an MRI, they are unable to see if it has spread to his brain....But he has MORE melanoma that has shown up after his radiation and Opdivo treatments that the oncologist just said to stop everything. Is it possible his evening tirades are due to the Dementia, or the Melanoma that could have possible spread to his brain?
They have not given us a "Comfort Pack" for his pain, or anxiety, so we are still waiting on that..he often holds his head and moans. I am wondering if he is better being at hospice than at home...and if he would get better treatment there? Because they sure aren't giving him any here.