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I've scoured the internet and can't find any details for NPH beyond the shunt surgeries. Would love to connect with others who've cared for someone in the late stages. Thank you.

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Thank you for your responses -- very helpful.
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NPH is associated with three primary symptoms:  Walking (gait) problems.  People with NPH might experience anything from feeling a little �off balance� to not being able to walk. Some common problems with gait include trouble taking first steps, trouble with turns, taking short steps, shuffling, or �magnetic gait,� which feels as if there are magnets on the floor, and it is difficult to lift up the feet. Often, problems with walking are the first symptoms a person has with NPH. As problems with gait worsen, the person may need a cane or walker. They might also fall or almost fall more often. Cognition (thinking) or memory problems.  People with NPH might lose interest in activities, have trouble remembering things that happened recently, feel �foggy,� forget things, and have trouble doing routine tasks. It�s common for someone with NPH to be disorganized when trying to do something they normally do all the time. Bladder control issues Can include the urge to go more often and having �accidents.� People with NPH may have only one or two of these symptoms. NPH is a progressive disease, meaning symptoms worsen over time. Source: https://www.yalemedicine.org/conditions/normal-pressure-hydrocephalus#:~:text=The%20condition%20can%20lead%20to,someone%20with%20normal%20pressure%20hydrocephalus.
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Hope you can find something helpful by reading through past answers

https://www.agingcare.com/search?term=Normal+Pressure+Hydrocephalus
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I know of only one other post to us about this condition. I hope that wasn't you, because if so, then you are our ONLY post regarding it. If you go to search in the timeline above and type in this condition you will see the post I am speaking of.
As to end stage of ANY disease, I am sorry to say, as a nurse, that almost no medical person will give you a prognosis because they simple have learned that they cannot know. And if they cannot, given they know the patient and his/her condition inside and out, then we would be that last to guess.

I hope someone here has anything to give you in personal perspective. I am so sorry for all you're going through.
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