This time we've had mom for 3 months; at least I have a brother who helps out and takes his turn. For the next few months, we will take turns for about a month each. There is no one else. My family is beyond frustrated. The other day, we woke up and she had an accident at 3 in the morning; my son had gotten up to go to the bathroom and found it and cleaned it up. At 5 in the morning I found her getting ready to cook bacon; she had the pan on high! We don't leave her alone; someone is always home, but if these night adventures continue we are scared that they won't be discovered until it's too late. She gets her nights and days mixed up; she sleeps each afternoon for a few hours at a time.
My daughter is autistic and has an emotional melt-down every day and my son who tries to help is getting tired of the verbal battles she has with us when we don't succumb to her wild stories and tales of fantasy. We all need help. As caregivers, as the patient. Where do we start? We don't have the resources to place her in a home and she refuses to go. Every day she tells us everything is fine and we don't need to worry about anything. This weekend my brother takes over for a month; then she returns. I need to have options in place.
A local social worker suggested we visit residental nursing homes; I guess that is next. We do not have POA or guardianship, so I am not sure of her rights or mine at this point. Any suggestions?
In the midst of all of this I have to find a new job as I have lost mine to budget cuts. This might mean uprooting our family and finding a new place that will accomodate her too.