Follow
Share

I am caring for my mother. What are your experiences with hospice?

Find Care & Housing
My mother had hospice care for about 18 months for dementia. It was excellent for everyone - her, me, other family, and the staff of the assisted living and memory care.

To a person, they were kind, caring, and thoughtful of all our needs.

When the music therapist recognized she was causing my mother anxiety, rather than soothing her, she called and talked to me about it. My mother had played piano for church and other organizations and was perceiving the music therapy as a job she had to prepare for and couldn’t, so was upset by the music therapist visits. The recognition and understanding of that by the hospice person was wonderful and perceptive.

Needs, medicines, incontinence products, and other care were provided and taken care of beautifully. All was paid by Medicare, so we never saw a bill.

At the end, genuinely caring, loving people stayed with her and held her hand, when I could not be there. I could hear the real sorrow and love in their voices when they called. They treated her at every moment with courtesy and compassion.

Don’t fear hospice. It is a very good thing.
Helpful Answer (1)
Reply to Goddatter
Report

I had a wonderful experience.
I got the help I needed. (by that I mean mental, emotional support in addition to the Nurse checking him weekly and the CNA coming to give a bath or shower, I did that most days but it gave me a break. AND I got education on how to use the equipment, how to change him in bed, and just support for me!)
I got the equipment and supplies I needed.
I realize not everyone is as lucky as I was and from what I have read in some post some have had not great experiences.
I would treat Hospice just like you would treat any other medical provider or medical source. If you are not happy ...SPEAK UP..
If things do not improve contact another Hospice and transfer care.

One last comment..
I think many wait to request a Hospice evaluation. The sooner the better. I think doctors wait to long and or may not fully understand the benefits of Hospice. Med school teaches curative and I think many view Hospice as a failure.
The care that a person gets on Hospice is in my opinion better than the typical care you get from most doctors. It is easy to contact Hospice 24/7.
There are requirements that Medicare has for Hospice and even if the typical "6 months or fewer" is a guideline, if the person continues to decline the chances are very good that they will be recertified. My Husband was on Hospice almost 3 years, I know of others whos husband was on longer than that.
Helpful Answer (0)
Reply to Grandma1954
Report

Hospice= AWESOME!! We had an incredible experience with them. My Aunt was a loving and kind person and she thoroughly e joyed the pampering. I highly recommend them. If you interview one group and don’t like them the doctor can refer you to another one..
Helpful Answer (0)
Reply to Homesick63
Report

My family had excellent experience with hospice. We received loads of expert guidance, a well qualified nurse who visited at least weekly, an aide twice a week who helped with bathing and changing bedding, all needed supplies in abundance, and medications to help keep dad comfortable. It was not hands on caregiving around the clock at all, that’s still on family to provide. The hospice agency we used provided a list of private caregivers they’d worked with and knew to be good. I hired several to give me breaks, they were excellent. They were all CNA’s looking for extra work, each set their own rates, all were reasonable. I wish you peace on this very hard journey
Helpful Answer (0)
Reply to Daughterof1930
Report

Were you trying to do a search? If so your on the forum. We can help answer any questions you have.
Helpful Answer (0)
Reply to JoAnn29
Report

Yes.
Tell us more.
Helpful Answer (0)
Reply to AlvaDeer
Report

Ask a Question
Subscribe to
Our Newsletter