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Has anyone had experience with sundowners disease? My mom is 93 and suffers with arthritis. she is on pain medication and does good during the day but every evening around 5 P.M. she starts crying saying she's in pain. Her legs hurt, her feet hurt, her arms hurt, she has overactive bladder, she needs to go to the dr. she never complains about these things until late evening. I don't know how to handle this? Any suggestions or experiences? I do not want to put her in a nursing home, it would break her heart.

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Hello pennyc,

Below is a link to a previous thread in the community that you may find helpful on this very subject.

https://www.agingcare.com/questions/dealing-with-sundowners-153779.htm

I wish you the best,
The AgingCare.com Team
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Please take your Mom to a Dr, probably a neurologist. My Dad suffered fromSundowners, along with Alz and Parkinson's. It was horrible to see him around 5pm or later when he would become combative, swearing, etc. When I took him to the neurologist, I found out that actually he was seeing little alien people coming at him and he was trying to fight them off - it broke my heart. Anyway, she was able to prescribe meds that did help this, and you could really tell when he didn't get the meds, because the sundowners would come back. Good luck to you.
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Penny, I first learned about "sundowners" when my father was in the hospital and then rehab after surgery. It is was quite frightening and difficult to deal with. My father was the sweetest person I have ever known, and it was so gut wrenching to witness this happening to him. I stayed with him day and night and he was inconsolable in the evening. He would hallucinate and be extremely agitated and disoriented. All I could do was talk him through it and after a time, he did improve.

My MIL also developed this when she was living with us; all we could do was try to calm her down and finally talked to her doctor and he prescribed medication that helped with anxiety. This did help her. Perhaps her doctor can help you with this. Hugs to you and hope you can get some help for her. Take care.
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