Follow
Share

Mom is 91 and lives in assisted care. She has dementia, heart and lung disease, among other conditions. Now her liver and kidneys are failing. The doctor is suggesting dialysis three times a week which would require that I take her each time. She’s deaf and doesn’t sign (we use a whiteboard to communicate) so other means of transport are not reasonable. I’m questioning the idea of trying to prolong her life. Maybe it’s time for hospice and to let her go? I’m her POA and only child. This is a horrible situation and I really don’t know what to do.

OP this was posted in another thread from @Fawnby about her own mother dying from dementia (see in quotes below).

Count yourself lucky mom has kidney and liver failure and will not have to die from dementia. Please don't prolong her life with dialysis 3 times a week. This doctor is cruel and inhumane and I don't think he has any clue about what dementia does to a person.

"Life is devalued when it becomes horrific due to illness. I wish you could have seen my mother, always a beautiful, well-groomed woman with a fine wit and great intelligence. She lived to age 95. At the end, dementia rendered her an emaciated, grimacing skeleton with faded skin that drooped from her withered bones. Her teeth were dark brown. Her hair was almost gone. She couldn't hold up her head, get out of bed without a two-person assist, or talk. She made varied sounds, the meaning of which we couldn't understand. She was double incontinent. She had pain and couldn't articulate where. We don't know how well she could hear or see. She couldn't eat or drink without help, and that was only soft or liquid foods. Some of the last words she ever uttered were begging to die. This went on for more than 2.5 years. It is the way dementia patients end up if something else doesn't cause their death first."
Helpful Answer (10)
Reply to sp196902
Report
Fawnby Nov 10, 2023
sps196902 - Thank you for re-posting. More people need to know.
.....Fawnby
(6)
Report
Thanks everyone for your input. I don’t think the doctor is being greedy, just making a suggestion. But Mom has had a long, good life and I do think Hospice is the best decision. Not an easy decision for me but kinder in the end…
Helpful Answer (8)
Reply to goggyrlg
Report
NeedHelpWithMom Nov 10, 2023
Be at peace knowing that you are doing what you feel is best.
(1)
Report
Oh my gosh. I would NOT take my loved one to kidney dialysis if they were in the same condition as your Mom. I think it's terrible that today soooo many doctors suggest treatment for elderly patients who are non functioning and have several medical conditions. It's RIDICULOUS. Keep in mind, they will continue to make a lot of money by doing this. It's so sad so see that GREED is at the forefront of what decisions are made. That's pretty much with everything today. I handled my Mom's health care as she got older and we had a DNR in place for her and I have one in place for me. You can walk the halls of nursing homes and see patients lying in bed suffering, just existing. It's soooo terrible. I wouldn't put my pet through the suffering that many elderly patients are having to endure. I suggest you call hospice. I always try to think to myself, would I want to be living like this? Whether I question that for a human or an animal.
Helpful Answer (7)
Reply to Caregiverhelp11
Report
ElizabethAR37 Nov 10, 2023
Totally agree!
(0)
Report
We really are living too long in many cases.

I don't know enough about dialysis to answer this but I do know that at 91, nobody has that long left.

My Mum passed away at 71 from lung disease last year. Her other problem was increasingly limited mobiiity. When she got severely ill at the end, she didn't want to be resuscitated. I often wonder exactly why, but it obviously boils down to her concern about quality of life. She would have needed a lot of oxygen, amongst other medication & daily life would have been a struggle.

Everybody grandstands in their youth about how they'd rather be dead if,x, y, or Z happens but in your mother's case, I do think I'd rather nature take its course.
Helpful Answer (7)
Reply to TheNewOrange
Report
olddude Nov 10, 2023
And with medical advances, this is only going to get worse. I am apprehensive about what lies ahead for me and the missus.
(1)
Report
Any doctor that would recommend 3-times a week dialysis to a 91-year old with as many medical issues as your mother has should have their medical license revoked.
Helpful Answer (6)
Reply to olddude
Report
AlvaDeer Nov 10, 2023
It's a business, this. We are cogs in the military industrial wheels. I agree with you ; it's time for this POA to speak with a palliative care specialist or hospice, not with a dialysis company.
(5)
Report
See 2 more replies
My dad had stage4 ckd. He didn’t want to go to dialysis even before his dementia diagnosis and definitely wouldn’t have afterward. The dialysis at best will just delay things for your mom while incurable progressive disease takes her brain plus liver, heart and lungs away.
Helpful Answer (6)
Reply to PeggySue2020
Report

My mother developed dementia at 87. She went into Memory Care Assisted Living from regular AL at 92. I prayed daily for God to take her, that's how miserable she was. She died at 95.

It's utter cruelty to take any life extending measures for an elder suffering from dementia and wait to watch them die from natural causes if saying no to dialysis will speed up the process. There's no ethical question here, imo.

Best of luck.
Helpful Answer (6)
Reply to lealonnie1
Report

Hospice.

Unless you literally want to torture her to death.
Helpful Answer (6)
Reply to ZippyZee
Report
AlvaDeer Nov 10, 2023
Once again, short, sweet, and to the point. There's really nothing else to say. IMHO.
(3)
Report
I am an 81 year old retired RN. Since I was 60 my advance directives have forbidden several things, including administration of nutrition by IV or tube, and DIALYSIS.
I don't have the guts for it. I have seen what dialysis patients go through three times a week, their day gone to this, and getting there, getting home, exhausted before the dialysis for days, exhausted after it from going through it, the diets, the battling infection from ports. To do this to a 91 year old is a heroic measure indeed.

If you are POA I suggest you go on Forums of dialysis patients for sure. No doctor will level with you with truth I am thinking. The choice is simple without it. Hospice and the good drugs. You are POA. You were trusted with this decision if your loved one cannot make it. You need to embrace that trust and do what you think your elder would have wanted. I am assuming you can guess. I certainly have not been quiet about my own wishes. And as I have often said here, my dad told me for years what not to let them do to him when he was too helpless to prevent it by telling me "Kid, stand between me and the docs with a gun if you have to".
Helpful Answer (5)
Reply to AlvaDeer
Report
Fawnby Nov 10, 2023
In discussions such as this one, I'm reminded of my sweet neighbor, a former nurse. She was a widow and worked at a dialysis center where she became friends with one of the single male patients, who asked her to marry him. She loved him but knew his time was limited. He told her that he wasn't close to his adult children and didn't want them to be his heirs. She said yes, they got married, he went off dialysis and she took care of him until he died. He told her she was the only one who had ever cared about him. She inherited his house, all his money and his pension, which otherwise would have stopped at his death. She was able to retire from nursing. She had tears in her eyes every time she talked about him. Just an interesting dialysis story.
(3)
Report
With all the problems Mom has, I am surprised the doctor even recommended dialysis. Its hard on the body. My girlfriend was a juvenile diabetic. Her veins collapsed so she could not get reg dialysis. Another friend, type 2, chose to go off it and passed.

I would not put Mom thru this at 91 with all her health problems. I would call in Hospice.
Helpful Answer (5)
Reply to JoAnn29
Report

See All Answers
Ask a Question
Subscribe to
Our Newsletter