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now she sleep all the time...doesnt want tv...she is out of character is this one of the last stages? she has suffered with this for 7 years now....in depends....cant do anything for herself...i am her full time caretaker.....

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GeorgiePorgie....I know what you are going through..as do many here.
I suppose on the good side the decline has been pretty rapid. I have been dealing with this insidious disease for 10 years watching it rob the mind of the wonderful man I fell in love with.
We are at the end...I cry...then I tend to him then cry some more. It is selfish on my part to try to hold on. I KNOW he would not want this life. Actually it would probably kill him to know what I have been through in the past 4 years! ...Don't ya just love irony..
Changing someone in bed can be tricky at the start but you get the hang of it. Ask the CNA if they can help and give you a few pointers. But all in all if it goes on a bit crooked..don't worry. You have to cut yourself some slack and relax. Don't try to get everything "perfect" strive for "alright" or "good". Bottom line if you can lay your head on your pillow at night and honestly say you did the best you could what more could anyone ask?
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This is the toughest time of my life. My mom is in the last stage of dementia. Under hospice care. I'm an only child and very scared of losing my mom. She lived with my husband and myself since losing my stepdad in 1990 . My real dad died back in 1961 when I was a baby. My mom is 88 and always was in great health and even worked since The March of this year until they had to let her go . She also worked with me. She started going down hill ever since . Starting with the sundowing, hoarding of food etc. We took her out on her Birthday this past July and she even walked around a big mall. Then Labor Day weekend she started falling . Took her to hospital , nothing broken bloodwork fine , vitals fine. Then hospital recommended a skilled nursing rehab. Insurance only covered her for 20 days. But she seemed confused but able to sit up in wheel chair and eat. When it was time to come home , it took forever to get her in car , she forgot how to get in. She really started to decline day after day. We bought her stand up potties. Mobile walker , wheelchair but now we had to get a hospital bed because she was constantly trying to get out of bed , but she would fall and I couldn't pick her up. She lost all mobility from her waist and hips. Now I can only give her little sips of water and ensure and soft food like jello and puddings . I'm blessed that I have her but it's killing me to watch her decline like this. But I'm doing the best I can . She has to wear diapers and it is hard changing by your self . Hospice provides a CNA once a day 5 days a week to wash and change. But could use more help. But she is my mom and will do anything for her because she has always been there for me no matter what.❤️🙏
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To Sibling5....Please re post your question so it will be seen by others and you will get answers specific to your question and concerns.
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I agree everything what Grandma1954 told you because that what I saw in my mom before she has passed…

However, my mom was happy and eating on her birthday Aug. 6th then she got worse the day after. She died ten days later. Her pressure was dropping rapidly and she was forced to eat even though she wasn’t hungry. Also, she couldn’t lift her head, but she had a very good grip when she was squeezing my hands. I kept telling her that I love her. Then, she died in her sleep five days later. I sign DNR papers about a week before in the nursing home. Her doctor saw it coming, and I did too.

Now, I’ll do the same with my Dad some. He’s doing well, but barely making it because of me... I have cerebral palsy. Dad is scared to leave me. I know it will be very hard to lose your parent(s), but you need to let them know that you love them each day before they go. Take care.
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MY friend's mom goes absolutely nuts when she gets a UTI. It afffects the brain. Honestly, that UTI needs to be addressed immediately. Fluids, and when someone is in adult diapers--the more fluids you give them, the more you need to change diapers....UTI's are no fun, only takes a small amount of time to get one, and a longer time to get rid of one...Cranberry pills, etc....Once the UTI was address, this woman came back to her normal...
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Loveisblue: Is she on Pallative Care?
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God Bless all of you and your loved ones.
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My 93 yr old mother who was diagnosed with dementia 3 yrs ago, says she can't move, only her hands, and she's crying. Has anyone experienced this with their loved one?
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If you don't keep them walking they lose that ability mighty fast.
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she probably got weak from being in bed too long.
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Definitely call a Hospice. They are a great help. They will evaluate your Mother.
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My mother was just like that towards the end. She wouldn't watch tv or read or anything. So I started taking care of her, giving her meds, fixing her meals. And she slept all the time. I just wanted, at this point, to make her as comfortable as possible. The she went into Heart Homes.
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Listen to Grandma1954; she says it all. I would have been honored to stay by my husband's side at the end of his life, but he died in his sleep under hospice care in a nursing home.
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Sleeping a lot is just one indication of End of Life.
Even while she is in the hospital you can contact Hospice. They can admit her to Hospice and transfer her to one of their In Patient Units or they can arrange to transfer her home. If she is in a lot of pain the In Patient Unit might be best.
There are other indication of End of Life, changes in skin color, nail beds may become blue, difficulty breathing, she will stop eating as her body can not process food. (PLEASE do not do a tube feeding), she will sop taking in fluids (PLEASE no IV fluids) again the body can not process fluids properly and the fluid it can not process may accumulate in the lungs.
Her blood pressure will fall but her heart rate will increase.
Many of these things my husband is currently going through.
How long until the end....only God knows and he has yet to tell me. (And as you all know my crystal ball is out for repair so I can't tell.)
Please call Hospice, the one we are with is a Not for Profit and I could not be more happy with the care, love and attention that my husband has received.

By the way there is a great bit of information that I have come across, a pamphlet that I found on line. Called "Crossing the Creek" it has great info on end of life. Much I have read before but now that the time is closer the information seems more real if that makes sense.
In the meantime hold your Mom's hand, tell her that you lover her, that you will miss her but you will be alright and that she can go peacefully and be with loved ones and you will see her again one day.
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Still in hospital? Is UTI still aggressive? What is being done now?
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Hi loveisblue72, is the hospital giving her medicines to sleep or is she doing it on her own? Was she sleeping like that when she was home or just started in the hospital??
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If you are her health care proxy, ask for a prognosis. If they mention a hospice evaluation, have it done. It does sound like you have reached the less than 6 months mark.
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