My dad is showing warning signs of Dysphagia as a new symptom of his MS. He has an upcoming appointment with his MS specialist where we plan to bring these symptoms up [My father will not bring these symptoms up himself as he has been ignoring them and lying to us about it being just a cold. As far as I know he doesn't even know what Dysphagia is or involves. Willful ignorance, gotta love it].
I know Dysphagia is a huge issue for MS patients and is the number one 'killer complication' of the illness, so I'm more than a little freaked out...the research I've done seems to point to a very severe scope for treatment. Is it really such a short journey into feeding tube territory?
I know every patient is different, and most here on AgingCare have loved ones with Dementia and Alzheimers, not MS...but if anyone could share timelines or treatment experiences specifically surrounding Dysphagia I'd really appreciate the first hand info.
Was progression/decline rapid in your case or did your loved one live for years with management?
How quickly after diagnosis was food alteration [puree/thickening, ect] needed?
My main concern is that I know my father would never want to live with a feeding tube and enjoying familiar foods is a huge part of his quality of life at this stage...if he gets this diagnosis in a few weeks it's scary to think we'll be having the DNR/non-intubation discussion.