I have been caring for my father for a little over a year and it has been consistent care. About 2 months ago he caught a small cold and became dehydrated. My brother took him to the emergency room and they kept him overnight. From there he contracted hospital-acquired pneumonia or aspiration pneumonia which we then were back in the hospital for 4 days. When we got home he got so much worse and his stomach was distended so back to the hospital where we find out that his urethra has closed off due to too many unsuccessful attempts to cathaterize him. They then decided to put in a suprapubic catheter. He had enlarged prostate issues which was causing him to be unable to urinate and they did a procedure to correct the problem. However he should never have been catheterized after that and we weren't told that and the hospital ER didn't seem to know that so it basically wrecked the previous procedure. So now we have a catheter that is going to be permanent and we have to clean it, care for it, empty it, all of that.
They show you briefly in the hospital and then send you on your way. We are having every single kind of problem you can have. We have a home health nurse that comes by once a week unless we want to put him on hospice. Hospice does not include any Rehab Services so we do not want that as he was walking and using the restroom prior to all of this happening. So now it's up to us to figure out how to manage this for the duration of his life. By the way I truly feel that what he went through at the hospital over the last two months greatly shortened his lifespan. But that's another topic. My question is does anyone know about any resources where we can go and be trained what to do with this catheter to make him the most comfortable and possibly restore some of his mobility. He is 80 years old and we do understand sometimes things are lost that cannot be restored but we really need to understand how to best care for him so at least he is given the opportunity to live his best life until the end.