Both my sons have central line ports placed for home infusions and long hospital admissions. I am completely comfortable with the care needed to keep them working safely etc. The attending physicians make sure I get regular refresher courses to handle accessing them, changing lines and even administering some infusions depending on what's ordered. In our state Medicaid does not always pay for nursing to come in for every infusion. Only bring the medications and inspect the ports once every 4-7 day. Unless there are risky medications being given, that is the standard process.
I would prefer nurses do it but its either continue managing it alone at home or be stuck at the hospital even more than we are now. It's easier at home, less risk for infection. Too many MRSA infections have come home. So staying out of the hospital is better when safe and possible.
However, no matter how many times I explain it to family, forward them the education information nurse educators and doctors share, they still hasel me saying I should just let the professionals do it, its to dangerous. It's not like I want to do it, I am forced to do it.
I get frustrated because I offer for them to come into town and be present during the refresher trainings. Offer them to watch nurses do it, heck asked them to visit for one damn time during hospital stays.
No matter the approach it keeps coming up. If only they would take the time to speak with such "professionals" they might get the entire situation.
Has anyone else dealt with this type of struggle. I realize some people can't be reasoned with or pleased. But I also know it's fear that is fueling this, or at least I thought so. What am I missing here? I figure someone else could tell them better than me, but geez, they won't listen.
Ideas? Suggestions? I don't want to get to the place of being bitter and angry or darn near hostile. Its hard enough doing this alone without support anywhere, and harder with the chatter of others doubts. I would be understanding if an emergency or medical error had ever happened. But there has never been any problems I worry fatigue might cause one, but so far, no concerns.
I guess I just have to let it go, ignore my phone, and keep sending links to educational info. Sigh, I give up!