The doctors were of the opinion that because my husband was "stable" on Thursday that they would send him to a nursing center. I got very little advance notice and it is over 30 miles away , which puts my daily round trips to over 60 miles. This was a new situation altogether as the very first thing the staff wanted from me was paper work and to tell me that I had a limited number of days for him to get better before they start charging me out of pocket ( Medicare can and does , it seems) decide they won't pay if a patient isn't up and at it in short order.They pay for the first 20 days and then if you have any other insurance, it steps in to pay a copay and this gives you 100 days to get your loved one better or dead.I know that sounded harsh but it's how I feel about the cold frog faced way they approached the information.
Why do I feel attacked because they were telling me what I could and could not spend out of my husband's retirement check while he is in their facility . Am I too sensitive in feeling that they should have given me a few hours or at least a day to settle him in before talking living wills and powers of attorney? I will say that if you don't have a power of attorney over each other before someone gets sick, you are helpless in decision making when a spouses' care is being decided.Then, unlike most hospitals, they ask you right away,if his heart stops during the night do you want us to do CPR ? I suppose a reasonable mind would understand these things but do they not understand that it takes more than you walking in the door to get used to this new surrounding.
Now we come to the new surrounding. My husband had been on monitors to keep an eye on his vitals and now there are no monitors, and they simply come in every few hours and check his vitals. He has no rails around his bed and the call button looks like it was installed pre Bush administration ( the first Bush ). They have rudimentary beds that have no thick mattresses for patient comfort. My husband is a spinal cord patient and this has to be addressed right away. Every day when I leave , I am feeling guilty in leaving him there but until or if I can find another place that will take a tracheotomy patient, this will be my daily duty.
There ! This is a question that I have run into in a hurry. Why don't most nursing facilities take tracheotomy patients? They have no one trained to take care of patients with pulmonary issues ( aka) patients with tracheotomies. They ask me to bring him his own clothes for getting him up and around, then promptly took them to be labeled and we haven't seen them since ( this is day 3). Maybe it's because it's a weekend or maybe they lost them. No one seemed to know on the floor. I have a million more issues about this but for now I just have to try to deal with what is on this Sunday. Funny thing.....yesterday was March 15. BEWARE THE IDES OF MARCH.