Hi Everyone, My mother has post stroke dementia since August 2017. She has been home from rehab since November 2017. I had hopes that her experiences would improve with her homecoming but they haven't yet. She hasn't had her 6 month follow up with the neurologist due to missing the appointment due to weather.
We are trying to reschedule this but she hates going to doctors, and we are involved with her out patient physical therapy these days and we are also getting her to see a urologist for the first time since she has had her third urinary tract infection since the beginning of the year. Her dementia symptoms DEFINITELY WORSEN when she is having an infection too. When we can discuss these symptoms with her primary care physician or with her neurologist, we are considering asking if anything could help these symptoms. She has a conviction that she used to live in another house and points up or down the road as to where she feels it was / is.
She believes she is supposed to be living in one end of the house while my sister and I are supposed to be living in another part of the house. She talks about the house like it is a duplex and not a single family home. She feels there is an addition to the house or a seperation in the house that doesn't exist in these ways and she feels we are lying to her when we try to explain she doesn't have another house to "go back home to" as she calls it, and that she can spend more time in the other part of this house but it won't be the separate duplex part of it that she is convinced somehow exists in this same one house. She says that we go to "our house" ( my sister and my house ) and then come back to her house and they are duplicates of each other. She doesn't know how it happens since she admits we don't travel between the houses. She claims we go back and forth between these houses "by magic" as she calls it. She says "I go to sleep in one house and I wake up in another house."
Also she has various delusions about things that have happened to her since her stroke. And she has some hallucinations of sights and sounds my sister and I don't hear. She accuses my sister and I of lying to her and trying to trick her when my sister and I can't always go along and agree with her about what she believes or what she sees or hears. Her long term memory is affected in ways but what is even more affected is her memory since her stroke. Both the days immediately after her stroke and her daily life nowadays. She can jumble different facts together. Like she'll have certain facts correct regarding two different situations BUT she will sometimes place them together into one single situation when they are really two different situations she is talking about here
She has outbursts of upset. Rages and anxiety and depression. BIG depression about her physical injuries that have kept her from having full use of her mobility since her stroke. She walks with a walker.... And she can't drive because of her stroke. She can't drive due to her physical injuries BUT when the time comes with her therapy I don't see doctors allowing her to drive again due to her cognitive injuries as well. I have heard negative reviews of prescription medication for these symptoms in people with dementia, but I don't feel there is any choice but to at least try to see if anything will have any positive affect on her now. Does anyone know of ANY medications that can aid the experiences I describe above without having harmful side effects? THANKS SO VERY MUCH FOR ANY HELP.