Husband evaluated last week, (Vascular dementia prognosis about 3 yrs. ago, Drs. couldn't tell when it all started). Evaluation results, moderate dementia & it will get worse. Lately he has not been liking foods I've made him for yrs. Odd ? I just read last night that dementia patients taste change and can forget what food tastes like? Another hurdle to deal with I guess. Docs asked if we have wills, POAs & directives? We do. " who would take care of him if he survives me, dementia/Alz. patients usually out live their caregivers."
All not easy to listen to. I apprised brother & daughter (50+) of my husband's issues when this all begin. I felt it my moral obligation, didn't want anything but to let them know. Both of them have distanced themselves pretty much. They never call to ask how he is doing & the updates I would send them were not acknowledged so I stopped. Haven't heard from daughter since the day after her fathers b'day May of last yr. Brother calls occasionally, very short conversations.
We' ve been married for over thirty yrs. & my two daughters & 3 grandchildren do care, love him and help us. Since I was asked who would care for him in the event I was not around, we both named my eldest daughter in that regard years ago. So I don't know if I should contact his brother and daughter again.
Somedays get a bit stressful but pretty much I'm ok. He's 77, I am 76 & in good health.
Thanks for any input.