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So Mom dosent even meet the minimum requirements for snf unit rehab anymore ...her Alzheimer's has taken over ...she has a caregiver 36 hours a week from Medicaid and I am signing her up for Nathan Adelson hospice ..the dr is writing the order today ...I’m really nervous about sending her to a LTC unit here because they are all very bad , and I know the patients get very little care , I know I’m a a RN and send people to,these places all the time .., I’m not even sure what to,do ..I torn my hamstring so,I can’t get her in and out of bed and need to rest myself ..I’m off work for 6 weeks ..I maybe can send her inpatient respite for the hospice...she is still in the hospital for a bad UTI ...but will be discharged Monday ..I have to figure out something ...does anyone know how much home help Hospice provides ? I,would like Mom to be home in her own bed ..does anyone have caregivers and hospice coming ? Any advice would be helpful..I’m very lost because I thought she would go to rehab I’m just worried about caring for Mom at home

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Ohme; How is it going?
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Giggles, you're "preaching to the choir" to some of us here. We're well aware of what's happening at the federal level. But thanks for sharing your concern.
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Fellow caregivers, family and friends here..... No matter what political party you support, the pending budget slash of billions to medicare and medicaid over the next decade and sooner should worry and outrage us all despite Trump's declaration he would never slash medicare. The Congress elite do not have to ponder private pay $$ as we do here. PLEASE GET INVOLVED AND MAKE YOUR VOICES HEARD!!! OUR FAMILIES AND EVENTUALLY US NEED TO KEEP MEDICARE AND MEDICAID INTACT AND EVEN FUNDED MORE!!!!!
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I had my Husband on Hospice. This what I got...
A CNA that came in to help shower and dress him. At first it was 2 times a week but as he declined she came 3 times a week.
I got a Nurse that came to check on him weekly
I got a Social Worker that came once a month just to check to see how we were doing.
I got a Chaplain that came when I wanted him to.
I got equipment, a Sit to Stand first then a Hoyer Lift. I got a Hospital bed, wheelchair then later a Broda Chair.
I got the medications that were needed and supplies. Briefs, gloves, barrier cream, lotions and soap and swabs to help with oral care. And when it was needed I got a product that was added to thin foods to thicken them up to prevent aspiration.
And I got support emotionally.
What I did not get from Hospice was Caregivers. I had to hire those on my own.  You can NOT be a 24/7 caregiver not good for you or the person you care for.
Hospice does have volunteers so if I needed to go out when I did not have a caregiver I could call and ask for a volunteer to come sit with my Husband. The will not feed or change someone so the time was limited to that restriction, about 2 to 3 hours.
I feel very strongly that I could not have done what I did without the help of Hospice.
One of the best decision I made in all the years caring for my Husband!
It does not matter where the person resides Hospice will come into a home, will go into long term care facilities as well as Memory Care and Assisted Living. Many Hospice have units in hospitals and they will have a team assigned to wherever the patient needs to be cared for.
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Meowzer, I think it's normal to be anxious about changing situations with our parents.

I do hope your plan works out for you and your mother, and I hope that hamstring injury heals quickly.

And remember that the palliative care people are there to help your mother and you, so don't hesitate to have a nonthreatening conversation if something isn't being handled right.
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Thank you for all your thoughts ..I have a caregiver 36 hours a week while I work , I took care of her the other time I was off ..she was really no trouble ..just that things have changed ...I’m off because of a torn hamstring which is quite painful ...I’ve been looking for a place to place her close to my home but I’m not sure what to do ...she has a Medicaid social worker and I’m signing her up for palliative care today ..I’m so mixed up I’m not sure what to do ,,thank you all for your kind ideas and help ,,, my sister died 4 years ago so it’s Mom and I left ...my brother is no help and dosent even answer my texts...thank you for helping me
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Another thought if you do have to have your mother in a facility that's not the best, and if either you or she belong to a church, you might ask if they have a friendly visitor program by which members can stop by for a visit. Staff will see that people who can observe behavior are there, and draw the conclusion that she's not alone even if you're not able to visit now.
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The other thing that crosses my mind is that you are a RN and working even if currently on sick leave. Your mother is not safe to be left alone and 36 hours is probably not enough to cover your shifts even if you are working 3 X 12 hours leaving aside the fact that you will be exhausted once you get home.
Garden Artist described the hospice situation very well. They usually provide an aide for a couple of hours daily 3 - 5 days a week and rarely at week ends. The aide can do bathing Mom's laundry, sheets and clothes and keep her room clean and possibly provide a snack. Hospice also has trained volunteers who can sit with a patient but only for a few hours and not every day. Can you afford to hire extra care? Do you have older children who can keep an eye on Mom till you get home?
Right now you need someone to care for you but in typical nurse fashion you are struggling alone. If the memory care is close to home admit her, there really is no other choice and plan to spend as much time with her as possible and fill in what the staff are neglecting. As I am sure you know working in any kind of nursing home facility is very soul destroying and the staff turnover extremly high. if the facility is not well run the aides will find another job pretty fast.
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Meowzer, I'm sorry for the situation in which you and your mother find yourself.

There is another possibility, which is Palliative Care, a step up from hospice. Home care would be provided, but it depends on the specific agency. In researching this option, I've learned that some companies provide only telephone support, some provide oversight, and others, with home health care affiliations, provide more in-home care.

It can be time consuming to find one that provides the level of care needed.

Given your mother's dementia, do you anticipate that sooner or later you'll find a memory care facility for her? If so, and if there are any that are candidates (whether in your area or not), I''m wondering if you could arrange a temporary trial period while you recover. If the memory care unit thinks it might have another candidate, the care might be better.

Another alternative is to ask the hospital discharge planner to step up her efforts to find a reliable place, outside of your immediate area with facilities that aren't up to par.

I wish I had some solutions. I really don't; this is a tough situation.
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Thank you all so much i appreciate your advice
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My mthr is in memory care 24/7 which in my state can take care of advanced dementia patients. Hospice only had an aide come dress & bathe her, and a weekly nurse visit. The staff at mc handled everything else. If you can't move her, inpatient somewhere is needed.
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Thank you sunflo..you,were,very helpful
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My dad was actively dying and wanted to die at home. I tell you this because hospice was assigned but only visited a few days a week for a couple hrs a day.

If mom needs more help, you'll have to hire skilled nursing or CNA to make up the extra hours. They usually have 4 hr minimum at $20-25/hr.

If she can go to rehab and insurance covers that might be better while u both recover.

You might check with hospital and see about other options like home health aids, occupational therapy, physical therapy, etc, that insurance may cover and can help mom. Her case worker and hospital care team can review her care plan and help you arrange care and support for mom while you are not able.
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