(Adult boys, 1 sister - all in their 40's). My husband's dementia has rapidly progressed. I stopped working to care for him, he is no longer walking, incontinent, dealing with bedsores (he does have air flow mattress) his legs, arms and hands have began to contract, he has very good appetite but sleeps most of the time. He is in bed most of time because I cannot lift him out of bed myself for I am only caregiver. I signed with Hospice because insurance would no longer pay because he was not progressing in therapy. He has Medicare as primary insurance and BCBS secondary. I am in process of reapplying for Medicare after being denied. My question is: Is there anything I can do as far as his body contracting. Hospice is palliative care so there is no help there. Another reason I signed with them is to have a little help coming in and I cannot get him to the doctor without vehicle that is handicapped equipped. Problems is his family, they don't offer any help and rarely visit or call. One son visit on Thanksgiving(first time this year) upon leaving he calls his family members saying his Dad is at his end, he is all crippled up, etc. They are not providing any assistance in helping their Dad but can always put out the worst on me and I shouldn't let it bother me but it does. Three boys live here in same city and never come by, the one that visited Thanksgiving lives approximately 350 miles away. I am just so fed up with them, I am actually glad they don't visit more often but I am tired of hearing these bad things I guess I should just tell people tell me of what is being said that I do not wish to be apart of hearing anything negative from the immature children.
Does anyone have any suggestions. I am doing the very best to care for their dad and my husband but this negativity coming from them does get to me.