My sister has Parkinson's Disease with dementia. Months ago, she had fallen and went into the hospital. Spouse started an email chain with daily and sometimes twice daily updates. This has continued for months and her family is feeling it is quite demeaning to her. Email has daily updates on how well she ate that day. In one email, he claimed he asked her if she was not eating on purpose and she said, "sometimes". He has also accused her of "punishing him" for not eating with her. He says the purpose of the emails are for people to remember to pray for her, but, often he writes about what he does too. How can we get him to realize that he is not protecting her privacy and making her look like she is faking? We are very distraught over this. He often says that she goes into her inner world and once she agreed that she would do this less. How can she agree? She has dementia!! Help!
Good luck!