What rights do I have of inquiring with the Doctor? My Mum suffered dementia and a degree of parkinsonism. During the last couple of years, TIA's also made their appearance, although Mum being Mum, bounced back for the most part after each one. I checked with Mum, whom I spent 5+ hours with every day of her life at the Nursing Home, that she was ok within herself, that she hadn't had "enough". Each time she told me she wanted to live. Even to the very last (she passed away on 6th June 2016), she said she wanted to live. To outsiders, quality of life would have been low. To Mum, she obviously still enjoyed what she perceived to be quality of life. I think this latter is something that has been completely ignored, both by her attending GP and the Nursing Home staff (who of course have a major amount of power, given that it is THEIR reports that the Doctor, who spends a snapshot of 5 mins time on any given visit, relies).
I was not informed on the eventful day the Doctor completely changed her drug prescriptions. I was at the Home, but my time was consumed with meetings (battles) to advocate on day-to-day care issues. My sister was there. She had joined in on a Court Case by the Home against me, seeking to ban me from visiting Mum. That's a whole other story involving lies on the part of the home, bullying by the home, twisted truths and exaggerations. But that's aside for the purpose of my post here, save that my sister 'won' the role of sole Medical Power of Attorney, something that if I'd contested (and I had good grounds to) the Home would have pursued its battle to ban me from visiting Mum - it was my fear for Mum that had me backing off there.
Suffice to say that neither the Doctor nor my sister informed me of any particular event that day that had Mum's drug regime complete changed to Midazolam and Morphine (injections).
I saw that Mum was 'different'. I expressed my concern to an RN who said "didn't your sister tell you? Your Mum's in palliative!" Mum was able to speak to me the next day and she could understand what I said to her. I saw that speech was not easy for her and we agreed on a signal of eye blinks for "yes" and "no" in the event of times when she might not be able to speak (thinking ahead of time as at that time I had no idea where this was heading). She said that day "what's the matter with me?" (wondering why all of a sudden, the throngs of visitors, grandkids - who hadn't visited before, or very rarely, had all bundled in). So even Mum didn't feel anything was the matter, that there should have been change. She wanted still, to live. I told the Doctors, Nurses, executive Nursing Home staff, my siblings of this. I told them I have recordings of Mum expressing the will to live. I begged them to give her a chance, even just to let Mum decide when she'd had enough. But no one listened.
By the next day, Mum's speech ability had deteriorated. We used the blinking signals and I was able to communicate with her a bit that way.
A week later, Mum passed away. I had stayed with her in the last days and nights and I was with her when she passed. She'd awoken, distressed and afraid. I had been holding her hand all this while before, as she slept and as her breathing laboured. I sensed her and turned - she was looking, making eye contact with me. She was in complete respiratory arrest. I held her, spoke with her, and she passed.
Mum didn't have anything wrong with any of her organs, save for very mild deterioration in kidney function. She was otherwise very healthy. She didn't have breathing issues before all this began.
Is this a case for coronary? I do believe the drugs used contributed to Mum's death, a death she wasn't ready for, not psychologically prepared, and didn't think necessary. Her time was near - I knew that, sensed it, saw it. But this was brought on suddenly and was too soon for her.
Do I have the right to ask for a copy of the Doctor's report made on that day that he changed Mum's drug regime?
I chose "Elder Law" as the topic for this post. But it could go to "Elder Abuse", depending on the real truth of this story. Given events that have occurred at the hands of the Nursing Home staff, Elder Abuse could be relevant.