My 93-year-old mother has Congestive Heart Failure. She had intestinal bleeding over the Thanksgiving holiday and was in the hospital twice. During the second visit, she decided to refuse any transfusions, and go off all medications and treatments (including those for her heart). We took her home, expecting that she would pass away within a week (I think the doctors fully expected this, too). But she didn't, and now she is in a more gradual decline. We do have Hospice care (a nurse once a week, equipment, an aide who comes help her shower). Every day seems different, and she's having a hard time emotionally as well as physically. She is almost obsessively focusing on little details as we help her, like how we are washing dishes or why the recycling isn't taken out daily. We have really excellent Home Health Care coming in for 2 hours each morning now, but after just one or two days, she is finding fault with them. On the other hand, she is brave and trying her best. As her body gets less oxygen, she is becoming more confused, has scary periods of shortness of breath; and she is almost completely incontinent. It seems like she is close to death, but not close at the same time. I truly don't know how her heart is holding out. She wants help, but she doesn't want help. My sister and I are her caretakers, and we are doing okay, but I just want to know if anyone else has been through this.