Follow
Share

I recently lost my mother to lewy body dementia I watched her take her last breath me giving her meds every 2 hours all night on hospice care with no one to help but a phone call to tell me what I need to dothis is the most painful thing I ever had to experience 12 hours of her suffering and seemed in pain watching her heart beat out of her chest gasping for her next breath I feel like I’m losing it I’m an emotional wreck I definitely was not prepared for it we never talked about death or what her wishes were my dad was a full body burial/ but she has no insurance policy and super expensive very confusing on cremation with her religion not sure what to do. Help

Do what you need to do with her body. None of that matters anymore. Her soul has already gone to where you all believe it goes.

I’m sorry you had to watch her actively die without any professional around. That doesn’t sound right at all
Helpful Answer (0)
Reply to Bulldog54321
Report

The Nurse was not there? I thought they were suppose to be present when death is imminent.

The Bible says ashes to ashes. Its only because of embalming that this does not happen. Do not go into debt because of a certain religion. Get her cremated.
Helpful Answer (1)
Reply to JoAnn29
Report
funkygrandma59 May 13, 2025
JoAnn, hospice is supposed to do a lot of things, however they do very little any more. Sad, but true.
Hospice expects the family to do it all and to call them when your loved one dies. It is then that they come to the house to call the time of death, call the funeral home, and pick up any unused medications.
Again...sad but true.
(0)
Report
If your wish is cremation, do it. She is gone, you didn’t know her wishes, and she can’t tell you. You’re the one who matters now.

I’m very sorry for the loss of your mother.
Helpful Answer (1)
Reply to Fawnby
Report

Can the hospice you’re using provide the care that you need, as the caregiver? Could you inquire about their services? A social worker?

I’m sorry you’re going through this.
Helpful Answer (1)
Reply to daughterofAD
Report

Ask a Question
Subscribe to
Our Newsletter