My husband is a Vietnam Vet. We both have MS, and his has worsened to the point that he's in a power chair. I have to use a Hoyer lift to get him in and out of bed. He uses a transfer board for other transfers. The VA has been great! He has Home-based Primary Care and an aide for 20 hours a week. I am so thankful!
BUT....Things aren't so easy for me. Along with MS, I also have Asthma. It's been pretty bad the last few months. I also don't have health insurance (my husband has Medicare and the VA). Life is a struggle and some days I'm just so incredibly tired!
Family doesn't come around much, so it's basically just the two of us. His kids are local and so is his brother.
My son is paralyzed and lives quite a distance. My daughter and her family live a ways away too. Her youngest has autism. She's mad at me, because I can't travel to see her. So now she won't talk to me. I CAN'T travel! I can't leave my husband and he can't travel with all of his needs.
I don't like to complain. I love my husband and will always take care of him. I am just SO tired!