I love my parents but also need to get my life back. What can I do?

My sister and I removed our Mom from her home about 2 years ago after she forgot to pay her bills for 3 months and took her car in to be serviced and was taken advantaged of with a very large bill.We shared her care with her going back and forth til my sister came down with cancer.Now I am her only care giver.She can barely walk around to get from her room to the bath room and I have to help her with bathing and dressing and tell her to brush her teeth and brush her hair.Her mind is almost gone. All she cares about doing is watching old movies and reading the news aper, even though she cant tell you what she is watching or reading.She is 86 years old and doesnt have any other health problems
I on the other hand have aurtheritus and have had 3 complete knee operations, have diabetic and a bunch of health problems.I have decided I am going to try taking her to an adult daycare next week while I do my by weekly shopping.It will be worth the fourty dollars it will cost.I hope she enjoys it, They lay bingo and she always loved to go play bingo.

I think the real answer here is if your parents are still able, sit down and have serious conversation about their future. You may have to do this time and time again...even write it down so they can read over these thoughts on their own. My parents thought they would live forever. Get your own house in order as well.

Dad died suddenly (which I know in my heart is a real blessing) 25 years ago and Mother still thinks her doctors can find a pill to reverse all the effects of aging. Even after all the hassle of probate, etc. Mother still just says "do what you all think is best". That includes do not disrupt her life and forget anyone else needing to have their own life.

The sad thing is, I know my Mother would have never done what we did 24/7 for two years and what my Sister is now doing. The idea of someone moving into her home and needed 24/7 care would have sent her running in the other direction. It was always what Mother wanted and the rest of us just fell in step.

I wish everyone the best! God bless you for what you are doing.

JMLouise: I like beautifulsc's answer. It WILL ONLY GET WORSE. Mom lives with me and some of the time with my retired sister (I work full-time). My biggest regret is not having this talk with mom prior to stroke/dementia. I wake up and tip toe around my house just begging for a few minutes to start MY day (work from home). I am being taken advantage of because I work from home and because of GUILT (my doing). My life is miserable. My family is disrupted. My mom does not think she is a bother. She cannot even locate the bathroom a few feet away. But I don't want this to be about me...I just think you need to deal with this before real misery sets in because if something happens to one of them, you could end up with my situation. Deal with it now while they still have each other so when one goes, the arrangment of living in an apartment complex or having agency help is already in place. You are already feeling trapped and miserable, and none of this is going to get better. No one is going to win in this situation.

Why is this happening to so many of us? Because no one made a plan or they did not stick to their plan OR better yet, they did not think it would happen to them. I never thought about dementia the way I should have. Same old story. I did not think this would happen to me. I love my mom but I hate what this has done to my life.

My memories of mom will be misery and guilt for being miserable when she is gone.

She is awake now. I hear her. I will walk into her room and she will ask me if I am her sister (that is usually first) and then she will come around and remember she is my mom...but she doesn't know what "mom" means anymore because if she did, she would feel sorry for me. She would want to help me. She would want me to be happy.

It is understandable the elderly are resistant to change, but to expect their adult children to alter their lives completely to meet their needs is unfair and selfish. Elderly parents must be willing to compromise with their children when it comes to their living situation as the need for care progresses. My mother refuses to consider any alternatives for her future care. She assumes she will continue living independently, as is, until she dies. I live an hours drive and cannot attend to her needs on a daily basis. I have tried to discuss future alternative living arrangements, but she just tunes me out. Her reliance on me is too much at such a distance. She also refuses to hire outside help to do housekeeping, laundry and shopping. Nor does she utilize free transportation provided in her town to take her to doctor's appointments. Her major health issue is COPD which limits her mobility, but she has allowed it to make her act like an invalid. I have limited myself to her needs and visit every other week. She continues to live in her world of denial and lives day by day as if her situation will never change. Dreading the day when her illusionary life shatters and I am forced to pick up the pieces.

Momizz, you are doing the right thing. Look up Louise Hay on the internet. No one can take advantage of you unless you let them. Consider trying Al- Anon. You'll find good ideas there to not feel guilty taking care of yourself and leaving this cycle of abuse so that you can stop it in your life, and move to a healthier place. Hugs

We helped my parents get over the idea of a "stranger" by calling an agency that our hospital social worker recommended. They LOVE the two people who come in for 2 hours per day. Your parents may be happier staying in their own home than moving, as when elderly are uprooted from familiar settings, they sometimes digress, and you'd have even more responsibility on your hands. Then again, you wouldn't have the 5 hour travel time, so good luck with this option for them. You do have a right to live your own life, and to give them these options. Most importantly, do tell them you will be there to watch the people who come in and pick and chose which ones you all have a good feeling about. Also, perhaps you can go to senior centers in the community and network there, about who enjoys elderly people and perhaps you can hire a volunteer there to come into their home. Just a few thoughts, my heart goes out to you. Been there, done that.

JMLouise, you cannot give up your life, especially when you still need to work and have a family of your own who also need you. Our elderly parents need to start figuring things out as they age and when they can no longer do for themselves. Your parents are not bedridden, have no life-threatening illnesses, are not in-firm in mind, and are self-sufficient for the most part. Let them know that if that were the case, you would come and help out more. So, you and your sister are doing the right thing. Listen, there are people who have no one to help them and must rely on paid help or agencies to fill the gaps. It doesn't cost an arm and a leg to have someone come in to help occasionally. Ask around and call your council on aging about people who can come to the home and help with errands, shop for them, take them to appointments, etc.

Your parents have each other and have for many years. They know how to manipulate, and they know how to make you feel guilty. However, you need to point out that they are quite capable of caring for themselves. Elderly people get bored easily, dependent, and now they cannot up and go as much as they used to. What were they doing at age 63? Did they care for their elderly parents in their home? Did they work? Or maybe their parents lived close by.

You have done enough. Go back home, and trust me when I say they will decide what to do on their own. You are not abandoning them for heavens sake! You must put your foot down before this situation consumes your life and resources.....and you end up all alone with no one to help you when the time comes. Take care of yourself first.

I really think being honest about your own feelings about what is best for ALL of you is important. When our elderly parents care becomes so overwhelming, they need to be told when it is too much for their children to do and they need to be willing to make a move that is best for ALL. It can no longer be "what they want" as they lose independence. They may not even be able to consider a son or daughter's needs, too, so sometimes they need to be "strongly encouraged" to do what is the best for everyone. My 91 yr. old mother-in-law insists on living in her own home, yet she is a fall risk, has had a stroke, etc. At what point should her children say: Mom, we have our lives to consider, too. In her case, she can afford an assisted living senior apt. where she could have meals and activities with others her age. Why not relieve all of us and move? Siblings need to communicate with each other and then carefully and lovingly tell Mom or Dad that it is time to move where they are safe and cared for. It is not wrong to consider yourself and your life! It truly is the sandwich generation and it is not selfish to assess the other side of the "sandwich", which is children and grandchildren.

I moved to my Mother's house. Her significant was living there and my alcoholic brother. I have been here for five months. My Mom's companion passed within two months of my being here after a long illness. They cared for each other until he made stages into an assisted living facility then to a hospital where he passed. There was abuse in the house from the start, from my Mom's significant and my brother. My Mom's significant was also a classic hoarder, the house was filthy everywhere you looked. The hoarding in the house and outside the property is gone. The house is clean. The abuse continues from my brother. I realized last weekend I am in the cycle of abuse. I saw within myself why people do not leave. That day I made a decision to make different decisions. I am leaving. I spoke to my brother and sister who live out of state to let them know and that we need another plan. This week I am going to research home health care providers for my Mom. My Mom is still driving in the day time. She can't hear on the phone and needs help with cleaning.
She has long and short term memory loss and dementia. Yet she is still in controll of her faculties. She writes her checks and pays her bills so far. The abuse is escalating. It's not physical abuse. It's the subtle abuse of triggers, degradation domination. An ugly phenomenon where my brother triggers my Mom and she follows his lead in the abuse. I am the target. As for my Mom, I am aware it is due to her own childhood abuse. It is the Maternal / Paternal cycle of abuse. Before I came here I called adult protective agencies but they could not do anything unless my Mom invited them in. She would not. This has been on going. My Mother does not want my brother to leave. He works, pays no rent, and has all the attributes of entitlement. My Mom washes and irons his clothes and takes care of him. My Mom is patriarchal. She only listen's to men. Please comment.

I feel like you do.But I do have one adult son who comes over every day to talk and help me.He is a Godsend.But I don't recommend this kind of life to anyone,unless they really know what they are getting in to.I was promised all this help from family and no one even comes by hardly at all.Its lonely,frustrating and sad.

I found out just the other day that we are called the sandwich generation. Usually the ages in there 60's and have parents and grown children or siblings that we take care of, I tell you that so you know you are not alone. I just went through an issue like this, and quilt is on the top of the list. The one hint I can give you is you have to set your heart a little to the side, and think what is best for your parents. They are only going to get worse, and need more and more help, you are doing the right thing, you have to talk to them. Baby steps at first, then if they do not listen to you, then, you will have to do what is best for them. You are so lucky to have a sister on your side and not against you. My father gave me 100 reason;s why he did not want to move from his house, he was fine taking care of himself, he liked living in a big house, he fought me, he did not want to move in with old people, loved that one, at 87 he did not want to live with old people. My father now lives in an Assistant Living facility, and loves it. By the way, there are a lot of couples living at this facility, maybe you could find one near your or your sister's.

P.S. I regret not demanding my folks moved close to me as I left my home, my friends and relocated my business- essentially my life. I have not been able to re-build much of anything here except care for them. The feeling of being "cooped up", trapped and isolated may happen to you if you move to them. It is the single most difficult aspect of my decision- harder than caring for them actually. Be careful of making decisions based on guilt or sympathy because, as they say, you can't be a good care-giver if you do not take care of yourself. I really empathize with your position.

Brooke was so absolutely correct. I have been living with my parents for almost 5 years now and would not suggest anyone do the same unless necessary...good luck

I completely get where you are coming from. I feel bad for wanting my life back and I am only in my early 30s. I suppose the guilt feelings are normal for people in a caregiving situation, especially when they become so isolated. A great therapist once told me that all feelings and emotions are valid no matter what they are (because they are yours). The point he was driving toward in the end was that what really matters is how you deal with all these emotions. (Probably one of the wisest things anybody has ever said to me.)

On the other hand, you need your family unit (children & grandchildren) to help with your mental state. Unfortunately, I don't have a large family, but the little one I have is everything to me. You need to go home for a break and enjoy them. Your parents should understand even if they don't want you to go (and even if they don't admit to understanding). I mean, they want you right up under them...not "strangers".

It is good that your sister is coming to help you face your parents with these decisions. If the two of you can come up with some ideas that you will support each other on, it will be easier to get your parents on board...I think. I have no siblings, only my mother. Mom is very docile and it leaves me to stand alone when it comes to facing my grandparents. I have to be more assertive than I like at times because I don't really have "back up". You and your sister can help strengthen each other in these situations.

As far as their care is concerned, it seems like they just want you to be close to you. They will probably really consider relocating to a place near you because of this. Of course, when it comes down to it, I sure it will be hard for them to actually leave their home (especially if they've been there for something like 50 years.) Be prepared for that and maybe be prepared to combat their resistance by telling them you understand their feelings. Sometimes simple validation of feelings goes a long way. Maybe even offer to make a scrapbook or something revolving around their home.

Since they can care for themselves, an apartment complex for the elderly might be great. Those are usually based on income and they will be able to make new friends if they choose. These types of complexes usually have a little community center and the greatly desired front porch for rocking chair visits. Remind them how nice it will be to have them so close and that they will even get to enjoy their grandchildren on occasion.

Ultimately, you probably need to be honest with them about your position. It may not even occur to them. Tell them you want to continue to enjoy their company, but you need their help by a compromise. They might not be aware of how long it has been since you've seen your family.

Good luck to you and I hope everything works out.