My husband is 56 and ill for over a year - help. I see a HUGE need for manyi people.....who are alone, little or now family support, who need support like me. An ill husband, no kids near buy, all parents dead, friends - but they have their own problems....limited funds due to $6,000 in hospital copays ....husband in 4 hospitals, 5 ER's and not better. Has burning in arms/ and body - suffers each day - no help...why?
As far as the un-diagnosed problem...stick with it. When my husband had cancer about 9 years ago, we started a notebook and got copies of every test (yes including color pictures of his tumor) and blood work results and it went into the notebook. It really helped as we went to several different docs for diagnosis and treatment. Plus the book helped me to see the progress we were making (or not). He has chemo & radiation followed by surgery and more chemo but is still with me today! Hang in there!
Does your husband have a good Primary care doctor? can He/she help?
Prayers to you and your husband.
Have you had a social worker involved? Contact one from his most recent hospital stay. Or call your county's Human Services Department and ask for a needs assessment.
You shouldn't be facing this all alone!