I imagine the rules are different from state to state. I got home care for my DH through a veterans organization. the caregivers t hey refered me to were shorthanded and offered me a job before I even enquired. This is how it works for us here in AZ. I work 40 hours a week and ALTCS which the state aid long term care program in AZ allows me 46 hours a week for in home care with which I work my 40 hours and have a little time for commute. When I do not work on Friday or when I come home everyday and have hours left over at the end of the week ( I did not use all the 46 hours alotted per week.) I am paid those hours left over up to the 46 hours. If I am at home taking care of him I get paid instead of a caregiver who would normally be there. It is not ideal as I was hoping to be paid for more of the hours I am alone caring for him and I do not make an hour what I do when I go to my regular job but it does help. at least if I miss work I am paid for being at home instead.
This manner of applying his benefits may not be the same in a different state but they usually are similar.
Being on SSD limits you income wise. You are only allowed to make over so much a year. You could see if Medicaid "in home" care in ur state, will pay family to be caregivers.
This is how it works for us here in AZ.
I work 40 hours a week and ALTCS which the state aid long term care program in AZ allows me 46 hours a week for in home care with which I work my 40 hours and have a little time for commute. When I do not work on Friday or when I come home everyday and have hours left over at the end of the week ( I did not use all the 46 hours alotted per week.) I am paid those hours left over up to the 46 hours. If I am at home taking care of him I get paid instead of a caregiver who would normally be there.
It is not ideal as I was hoping to be paid for more of the hours I am alone caring for him and I do not make an hour what I do when I go to my regular job but it does help. at least if I miss work I am paid for being at home instead.
This manner of applying his benefits may not be the same in a different state but they usually are similar.
https://www.agingcare.com/articles/how-to-get-paid-for-being-a-caregiver-135476.htm
As JoAnn had suggested, check with your State Medicaid office [Mediciad is different from Medicare] to see what is available in your State.