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Something similar happened to me. I was told I could not talk to the staff and that all questions needed to go through our POA, even though I know mom the best medically. Sadly, they missed an infection and now she's on another antibiotic and they have not even told my dad (her POA about this antibiotic or the reason for it!). The miscommunication from the facility is very frustrating and being shut down from being able to communicate is honestly a power hungry way of bullying in the adult world.
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tf2766 Mar 2020
It's a personal thing with a lady in management at facility where my mom stays. She don't like me. I'm so sorry for your situation. My sister (not the poa) was visiting her yesterday. She was checking mom's feet because mom is a bad diabetic. She found an open wound. She sent me a pic. Well I know how bad that can turn out to be. I told her to break the rule. Go ask the med tech if they were aware of it. Med tech said no. She looked at it and documented it. Just so happen I was on the phone with DSS. I explained the foot situation to her and how my sister isn't allowed to go to the staff. Well after DSS calling the facility they called me back. Our (children) rights/voice has been given back to us. Then i got a call from the facility apologizing for "the misunderstanding." Lol. It was no misunderstanding. On top of that. My sister (poa) gave the facility a legal document giving me and my other sister rights to all mom's medical needs, care, information, etc. Don't give up. Find the name and numbers of the Ombudsman and the Complaint intake unit. They have to be posted in the facility. Call them. Call DSS. Find out who monitors that facility and talk to that person telling them the situation. It worked for me! And prayers also. I wish you the best and send prayers up for your situation. Never give up!
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With 6 adult children all giving instructions, things could be a bit hard on the staff. What you see as voicing concerns - 'could you check x, I think y' -could well double as giving instructions. It would be even worse if different children were sometimes giving different instructions, or if one of you is particularly critical. This last is actually very common. People who were unable to provide care themselves can be unrealistically demanding about the level of care they expect from staff. Think hard whether this might have happened, because it sounds almost inevitable, and is an obvious reason for this new ‘rule’. If your sister asked for all of the other 5 children to be able to continue the instructions, it is also obvious why the answer might have been no. Perhaps they might be more amenable to one person being delegated by the POA sister, rather than all 5.
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tf2766 Mar 2020
Ffirst of all don't assume having 6 kids is a bad thing. And don't ASSUME we give instructions. We never have. But you can best believe if I walk in and my mother looks flushed and feels warm I will ask the staff to please check her temperature. Key word: Please. We have always been respectful. Monday my sister visits. Checking mom's feet because she's a bad diabetic. Finds an open wound on the bottom of her foot. She sends me a pic and I call her, tell her to break the rule and go ask the med tech if they were aware of it. The answer was no of course. Just so happens at that moment I was on the phone with DSS and after 2 conversations with DSS, we got our rights to "address" not order medical concerns. Then I got a call from the facility apologing for "the misunderstanding" lol haha there was no misunderstanding of their new rule. They knew they were breaking policy and tried to smooth it over as a misunderstanding. We (children) do her laundry, change her bedding, give showers among other things that help lighten the load of the staff. We do realize they have other residents to care for and many that have no family that comes to help. So don't always assume that 6 kids is whoa! That we give orders or instructions. All we have ever done was voice a "concern." But it has been taken care of. Thank you for you reply although it was totally out of line.
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See if they will allow sister to assign someone as her representative.
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tf2766 Mar 2020
Thank you JoAnn. I called DSS. The facility can not take away family voicing their concerns. Thanks to DSS, our rights and voice has been restored.
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I might ask sister POA to get a copy of the rule in writing, just for your own clarification. The facility should be able to provide it. I wonder if this is due to many different instructions from all the different children and it getting out of hand. Also, maybe, the facility was saying that the medical treatment could only be requested by the POA. I'd try to figure out what they really meant. Maybe, a miscommunication. Certainly, the facility wants to know if a resident is hurting or in need. In the meantime, I'd text sister POA, so she can call and relay the information to the staff.
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tf2766 Mar 2020
Thank you for replying. There has never been "instructions" given by us children. We only voiced concerns when we seen something on our visits. My sister (poa) works at a state prison. She can not have her cell phone on the premises. She can only get emergency phone calls. This job is new. She explained her unavailability due to her job, asked for her siblings to be able to communicate with the staff because she can't be there nor do calls. They told her no, she will just have to handle things when she can get there. I see this as being wrong on every level.
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