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She is bed ridden and very bad off. This is a hands on 24 hour a day job. My mother has a bone deterating desiase.she is very bad off.bed ridden and has to be bathed spoon feed and there is a lot of lifting involved.i have had to move in with her and my father.wich he is elderly and unable to help.this is a true 24 hour a day job.some times I will go days before able to sleepdad is trying to keep up on a small retirement amount.this is just not working.i have been three years with no pay what so ever to help me. I am having a rough time as my health declines from diabetes 1 with out insurance.this is terrible.is there any programs out there to help soul care givers like myself.i have tried and turned over every rock to find nothing but broken promises.i know I am not the only one in this position.you just can not take care of them.would you dis your dieng mother for a paying job?i'm not that kind of person.so,meanwhile I have not a dime to my name for quite some time and it is getting worse by the day.so what are you suppose to do?abandon her and work or let diabetes decline your health and just be broke.can anyone help me with a lead of some sort to resolve this issue.granted I have tried and searched nothing but dead ends.does anyone know anything?or am I just doomed?

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if health insurance was not tied to jobs, but was something that you could buy on your own like auto insurance, and the cost was regulated. i could go for that. tying health insurance to a job was never a smart idea.
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This is why I believe until we get to where we have affordable health insurance for all, we need a special program so that caregivers receive insurance benefits with the opportunity to buy in when their caregiving is finished. Going without your own diabetes care is not going to be a good thing, your mom and dad could easily find themselves without a caregiver!! Are there any free clinics in town? If you we're in Central or NW Arkansas I would be able to suggest a couple.
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Are Mom and/or Dad on Medicaid? If they qualify for in-home help and you qualify to give it, you could get paid. Not a high salary but better than nothing.

I would start by calling Social Services in your county and asking for a needs assessment. They are familiar with not what the county offers but also other resources in your community. They hooked me up with respite volunteers, for example, and recommended that I apply for Medicaid for my husband who had dementia. We used Medicaid's Elderly Waiver program, designed to help seniors stay in the community rather than go to a nursing home. If this is a stone you've left unturned because you thought it was only for nursing home help, I urge you to call Social Services and find out what is really available to your parents.
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