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When my parents divorced my aunt, dad's sister, immediately got POA for my dad (who has bipolar disorder) and became his local caregiver. As a 30-something only child with my own life several states away I didn't think I should argue.


Now she's in her 80s and she is exhausted. She had dad committed to a psych hospital 3 months ago because he was belligerent, kept driving places and then getting picked up by police or taken to the hospital because he was confused. She seems to think this will force him to move to assisted living. He’s become severely depressed and can't get out of the hospital. He refuses to do any cognitive tests or any more advanced therapies because he says he's already dead and there is no point.


I went back to visit for a week in June and offered to my aunt to take over anything she wanted me to. She said there was no way I could do it all from so far away. She's been managing his finances, managing his apartment house, working with his doctors for the last 7 years. She does it all by phone and mail, she only recently learned how to move money between his accounts via the web.


She's also been cleaning out his house, more than ever since he went into the hospital. My whole visit I kept saying "we have to see where he ends up living first" when she wanted my help deciding what things to get rid of. She's down to furniture and even getting rid of his clothes! He is a pack rat, but I don't see where she gets the right to just clean him out.


He's never lived anywhere but his house in his entire 76 years (grew up there and then inherited it from his dad). I'm sure her insistence that he's never going home is not helping his mental state.


She's also terrible at sending me updates. I'm deaf and don't use the phone easily but told her she could call, and I'd get someone to transcribe voice mails. Instead, I get texts once in a while and "letters" that she types out in a Word doc and then emails. In the letters she makes everything so dramatic which I can't stand (I'm an engineer, just the facts please).


Dad's brother also lives in the area in the summer, and he stepped up to try to help find a new home for dad. Unfortunately, with his mental health diagnosis most assisted living facilities won't accept him. Without a medical diagnosis a nursing home or memory care facility won't accept him. I really think the solution is to let him go back to his own house and hire in home care as needed. Otherwise maybe we can find a special program or a group home... if he stops being so depressed.


It's all sad and I don't feel like I have much control over the situation being so far away and not legally having POA. It puts me in the place where I could try to insist my aunt steps aside, but I'm scared of that situation too.

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Dealing with the aging mentally ill population is no joke. I'm seeing this more and more in home care settings wanting home health aides to monitor mentally ill clients. Home Health Aides and CNAs are registered with the Department of Health which is a separate entity from the mental health sector. I ran into a situation due to task problems not being completed and called the Department of Health to get some feed back. I was told the mental health organization would need to be contacted. Department of Health that licenses the home health care and home care agencies and medical personnel don't handle the mental health sector. A Home Health Aide could provide personal care, but the majority of us are not trained in behavioral health. We are not behavioral health aides or behavioral techs. We are trained in elder care and handling dementia clients.

I would contact NAMI to see what services are available for your father in this age group. It seems like your aunt has been handling the situation with the POA. Your father is no longer safe to live alone because of the complexities of his mental health issues, physical failing health, and possibly the onset of dementia.
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To me it sounds like your father is showing clear signs of some kind of dementia. Studies have shown that people that have suffered with any depression, especially long term are at a much higher risk of developing dementia in their later years.
I would request(or have your aunt request)that the psych hospital do an evaluation for dementia, and then let them take it from there.
There has to be some type of facility that will take him, and it should be up to the social worker at the psych hospital to do just that.
I hope for your fathers sake that things get figured out soon.
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dadinny Jul 6, 2023
We agree it sounds like dementia and the risk for it with bipolar is higher.

The hospital says they have tried to do cognitive tests but he refuses to cooperate so they can’t.

The social worker there has only said he’ll never get placed anywhere directly from their floor and suggested family take him home and then try finding him somewhere. He did go to his bother's house a month ago. Lasted 36 hours and the had to return to the hospital because he refused to get up off their floor even to use the bathroom and said he was dead. They’re not a good fit for caring for him, his brother has never believed in his mental illness. Thinks he’d be fine if he tried harder.
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Get yourself a free Clear Captions phone. This is a free phone for deaf people so the conversation of the speaking party on the other end is immediately transcribed for you. (There are TV ads for this about grandpa having played first base like the grandson does now.) This is legit...they provide the equipment and show you how to use it. This is financed by a tiny federal excise tax we all pay on our telephone bills that helps those who need it.
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dadinny Jul 6, 2023
I have this. My aunt finds it a hassle because the captions can’t understand her, but I do use it for calling places that won’t text or email.
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Your aunt has been managing this well for all this time, and still is and apparently still wants to. I would offer what help you are able to give her that she requests of you, and you have already volunteered to take over (which would be a great deal harder than you can imagine, and almost impossible with your own disability living so far away.

Offer help would be my advice and do as your Dad's POA requests of you to the best of your ability.

No ALF will take your Dad. He may require psychiatric care for life; may require residential living with other mentally ill folk unable to care for themselves.

Again, for now, the aunt is managing and I think myself you are very lucky in that. The care of your dad would be likely TERRIBLY difficult.

Just my opinion and I wish your Dad well, as I do your Aunt and yourself.
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AlvaDeer Jul 6, 2023
I will also recommend a book, a memoir by Liz Scheier called Never Simple about her attempts to help her mentally ill mom over the course of some decades. She enlisted the help of the city and state of New York Social Services networks, and honestly, all of this mostly to no avail. While depressing it will ground you in the realities of mental illness/health in our country, and how little we know about it and do to address it.
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