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At my wits end. I am my 58 year old brothers POA. He had a stroke a couple weeks back and now has no movement on his right side which also caused swallowing and speech issues. His mind is still sharp although he cannot be understood. He gets very angry when you ask him him to repeat what he is saying. He has since been moved to rehabilitation hospital for 3 weeks. Second week in he pretty much has refused all therapy sessions. He will have to go to nursing home as he can not so much other than feed himself with his left hand. It’s a roller coaster ride with him. One day he is calm and looks off into space and the next he is mean and cusses at everyone. They do have him on an anti depressant. He also is a diabetic which he did not control which I’m sure lead to the stroke. He’s never said he wants to die, but many days he refuses to eat or drink and so they have started an IV and caloric counts on his food. I’m just not sure what to do at this point. He is so young, but I just know he does not want to spend the rest of his days confined to a bed, eating puréed foods. What kind of life is that. Is he indicating that he wants to die? Should I talk to him about if he does stop all food and drink he will die. I do believe the IV and the meds they give him is what is keeping him alive. I’m just not sure what my role is as his sister is, not to mention as his POA.


Our dad died 3 years ago. He made up his mind he wanted to die and stopped all food, drinks and medication. He just gave up and slipped into a comatose sleep and died 3 weeks later.

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When you say "a couple" of weeks back, do you literally mean two weeks? And he has only just been moved to rehab?

The thing is, I suspect you're getting WAY ahead of yourself. Your brother's brain has suffered what is called "a massive insult." Recovery from that will be a project over a long time, but that does not mean his quality of life can't improve enormously within the next three weeks in rehab. Truly: with care, support and a bit of luck, he will seem like a different man even next month. Don't give up on him just yet!

First of all, go to https://www.strokeassociation.org/en/life-after-stroke/stroke-rehab.

This site has all kinds of information which I think you'll find very helpful.

But most of all, don't be in a hurry. Your brother's mood is likely to be all over the place; right now he is in a miserable position but this does NOT have to be forever. The human brain has astonishing powers of recovery,* and at 58 he is still young enough to enjoy the full benefits of that. He may never be as he was before, but then again - before, he wasn't looking after himself and I doubt if he ever did feel really great. Wouldn't it be amazing if the outcome of this is actually that he ends up with a *better* life than he had?

Don't push him, don't try to "correct" him when he is angry or down. Step back and be patient; whenever he shows positive signs be his cheerleader; and be his fearless advocate with the staff. Motivating him is the job of the trained professionals in rehab, and with a 58 year old patient they have something to work with.

I'm going to leave it there for now, but please do come back with updates or further questions.

*You may have been told, and it is true, that the brain tissue that was killed by the stroke will never grow back. What happens instead is that the brain creates new nerve pathways and connections to recover function. It will be hard work, but read up on other patients' recovery stories and have faith!
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Shell38314 Apr 13, 2019
This is so true! The brain can remap itself and it is amazing on how it works.

Keptreasures, just be supportive and be there for him. If he feels you are there fighting with him that can make all the difference in the world.

I wish both of you the best of luck & God bless both of you.

Hugs!!
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Who else is in his life? Is your mother still alive? Any other siblings? Has he ever been married? Any children? Is he close to a golf buddy or a fishing pal? Maybe getting cards from them might help him realize there are people who care about his well being.

I believe that every adult in their right mind is entitled to make life-and-death decisions for themselves. Their decisions should be honored. But I don't think your brother can really be in his right mind under the circumstances. That is temporary condition. He may really think he wants to die now, and not feel that way 2 months from now. But he has to be able to make it through those 2 months in order to make that decision. Anything you can do to help him get through this day by day will be effort well spent.

Has he been given a realistic prognosis from the medical team? (It might be too early.) For example, what are the chances he can eat a hamburger again? Is the pureed food forever?

Surely he need not be bed bound forever. What will it take for him to use a wheelchair regularly? How about progressing to an electric wheelchair? What would have to happen for that to be possible? Is any of the therapy directed toward that?

The thing that would drive me to despair is having a sharp mind and not being able to communicate! What is the prognosis for that? Is it likely to improve? Is it time to start looking into the many assistive devices for that? The person who can probably help you most with this is the speech/language therapist.

Antidepressants often take weeks to build up and be effective. And sometimes the first medication prescribed isn't the best one for that particular patient and has to be adjusted or changed. Don't give up on that yet!

Your brother didn't ask for the stroke. He never practiced for it. This is all new territory for him. You didn't ask to be related to someone who has had a stroke. This is all new for you. I congratulate you on reaching out for some help.
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My dad suffered from several strokes before passing. Meeting other stroke victims helped motivate him tremendously. He can hopefully recover much in rehab and if he can meet others in the same boat who can talk with him about how far they’ve come that might make a difference in his attitude.
My dad became one of these motivators and doctors would ask him to spend time with their struggling patients. Maybe his doctor can help with this when he is ready for the next step of recovery.
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I agree with Countrymouse, You need to give your brother time. Of course he is mad, who wouldn't be. Then he is put in rehab. No I have never been there but I have visited lots. I wouldn't want to spend my days there between therapy sessions. Just be there for him. If he is having a problem with speech, ask if there is a board you can use where he can point to a word or a picture to answer you. Explain to him this is just a temporary thing. Just so he and u don't get frustrated. If he gets agitated and angry, he will take it out on you. They take it out on the ones they love. If you can't handle it, just walk away and go to the common area. If when you come back, he is still agitated, tell him you will come back when he feels better.

As his POA your responsibility is to handle the financial end. Make sure his bills are being paid. You should be able to sign checks with your name and POA behind it. Unless, you are on his accts. so then no problem there. Seems he can make his own decisions concerning his medical wants. You can be there just to make sure he understands what is being said. It's up to him if he wants you to make certain decisions. I wouldn't give up him at this point. Maybe he needs a Psyhic eval. I would trust a psychiatrist giving him meds over an GP which is what the rehabs doctors are.
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I am sure one of the frustrating things for him is the difficulty in communicating. Can he use an IPad I have seen great ones they use in all sorts of ways.
Have you discussed with him his wishes? DNR or POLST? these are very important and may give him some sort of control. POLST is more detailed than a DNR. (POLST is Physicians Order for Life Sustaining Treatment)
Your brother may just need more time to process the MAJOR change that has just happened in his life.
At this point all you can do is support him and whatever decisions he makes at this time.
There are support groups for people that have had strokes would he be up to meeting with one of the members? And you might want to think about attending a support group so you understand the thought process that follows.
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I'd say ask your brother, point blank, does he no longer wish to live? If the answer is yes, he'll need a DNR for the hospital. If not, see what the staff can do to help him get better. That's their job.
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The most important thing is probably having as much therapy as possible during the early weeks. I had an uncle who, due to bureaucratic issues and lack of appropriate advice, missed out on therapy during the early weeks, so his progress was limited afterward.
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When my husband had the major stroke from which he died, he kept saying over and over again "I've got to be able to drive." It was obvious that wasn't going to happen, as he was totally paralyzed on his right side and his central vision was gone. The PT said he might be able to sit up and learn to eat with his left hand. But he would not be able to read or watch TV except out of the corner of his mouth. However, he couldn't swallow without getting choked, and he said he didn't want a gastric tube (it is in both our advanced directives not to have gastric feeding tube).
It was horrible watching him waste away like that, but he said he wanted to die, and I believe that if it had been me I would want to die as well. He said he wasn't hungry, and after about ten days he went into a coma and died 5 days later. I hope that if this happens to me, that my POA for health care (my RN daughter) will do the same for me.
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shad250 Apr 13, 2019
"Read or watch tv except outout of the corner of his mouth", an unexplored talent? :}

I'm sorry for your loss.
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A friend had a bleeding stroke about that age, due to untreated high blood pressure and diabetes. He also was mentally alert, but struggled with speech. The intensive speech therapy during the early weeks was the best thing, for he slowly regained speech that he might not have if not for early intervention. He hated that therapist, but she would not leave his room until she had him practicing his voice. She learned that he followed sports, and she used the sports section of the newspaper to get him to respond to her in conversation. It was ok with her if he yelled at her, because he was using his voice! He was able to swallow better & eat more normal foods later, regaining full speech.

He was never able to walk, but used his own wheelchair and lived 5 years in a NH. He did participate in Trival Pursuit games, and was so smart with his answers. He read alot and listened to his cd player. The worst thing that was done for him was at the end of those 5 years when he lost the ability to swallow, and a feeding tube was inserted. It only brought him about 4 months more of life, and he missed eating and asked many times why he could not eat normally.
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Hi Keptreasures:
So sorry your very young Brother having such problems. If he has decent insurance coverage and a good doctor, you--as his POA--can discuss solutions with both. One of the things he needs most is good Physical Therapy, Occupational Therapy, & Speech/Cognition/Memory Therapy. These therapies are an absolute MUST for stroke survivors; more important than medication or doctor visits. At the hospital where he was originally, there was a Social Services office or Director manned by a Social Worker. That Social Worker was the one who chose the rehab hospital. Once there, a rehab Social Worker must have chosen the Nursing Home he'll move into (they'll have a Social Worker too.) Please talk to all of them. They will realize he's depressed (& obviously the antidepressant is NOT helping--in fact, it MAY be what's making him more depressed. This does happen!) Meanwhile when you visit, help him by moving his arms in tandem (neuroplasticity) as well as his legs. Ask friends, co-workers, neighbors, everybody you both know, to visit him. This is great for the brain. And it is the BRAIN that moves, controls, directs everything in our bodies, and the brain that will bring him back. Good luck.
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