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My husband's family has a history of dementia. His grandmother, a great-aunt, and an uncle all had it and his mother just moved into full-time dementia care after 3 years of home care. For his mother and grandmother the dementia appeared very late, in their 90s. I am not sure about the onset for the other two family members except that the uncle's onset was much earlier. My husband and I are in our 50s and we've known each other for 20 years. He is fit and healthy with no addiction concerns.


He's never been good with time, not knowing if something happened a couple months ago or a couple years ago. We have started bumping heads over his lying about me (just to me, not to other people). There are 3 instances I can point to.


He is lactose intolerant. He drinks dairy-substitutes and I keep lactose-free milk for myself so I can use it cooking for him. I am not and have never been lactose intolerant. Occasionally he'll suggest I have a Lact-Aid pill with food, since it might have milk. He is convinced that I am occasionally bothered by dairy and that I have told him that before. I have never, never said that and I have no problem with dairy. He says I've told him before that I am bothered by dairy and often gets upset with me that I am always changing what I tell him I like and dislike from day to day. It is also one of the few instances where I can say with 100% certainty that I have never claimed to be sensitive to dairy. Other similar arguments on different topics have been making me question myself.


A few days ago he was making us dinner and was very angry with me about one of the potatoes being rotten. He accused me of putting a rotten potato in with the good potatoes to ruin them. I questioned his accusation and he said that it was "just like me" to do something like that. I got very angry and told him in no uncertain terms that I did no such thing. I don't even know where I was supposed to have gotten a rotten potato from! Later that evening he did apologize, which is extremely rare for him to do, but I was angrier than he's seen me since the cell phone problem below.


The worst and one of the earliest issues that scared me needs a bit of history first. He hates cell-phones, and we did not own one until about 4 years ago. I finally got one as a gift from my sister, but before I got it, he and I talked and agreed that we didn't want his family to know we had one because he didn't want them to be able to call while we were away from home. Especially his mom, who was not showing signs of dementia yet, but has always been quite clingy. I agreed completely with not sharing with them that I had a cell phone since I didn't want to have to field phone calls from them (we've always agreed that I "do" my family and he "does" his). About a year later, we had a big argument (we don't argue often). In the end he accused me of spending an entire visit at his mother's "playing on my cell phone". The problem is, whenever we'd been at her house it was on "do not disturb" and hidden in my purse. There was never a chance for her to ever see it or hear it or even suspect it existed. I never took it out of my purse while we were there. I know he's opposed to cell phones in general so I never "play" on it around him at all and keep it on silent when he's around. I have no idea where that came from or why he'd say such a thing. It was as outlandish and unrealistic as saying I ran in and punched his mother in the nose!


I really don't know what to think or what to do. I am hurt, scared, and frustrated at the entirely false and unrealistic accusations from him and I'm worried that they are increasing in frequency.

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Well, you only use it to contact your family. I imagine it's like many cell phones. It needs an access code to wake it. Mine is a 4 digit number. Hubby's is a thumb print. I think it would be fun if they make a cell phone that took nose prints... :)
can you imagine? :)
Just turn your phone OFF COMPLETELY if you are visiting anyone your hubby has issues with, say for instance HIS MOM... OF ALL PEOPLE... HIS MOM.... Not your mom HIS MOM...
Got to the time in our routine.. he sees his, and I see mine.. My kid sees the grandparent who recognizes grandchild the most...that was a few years ago... all grandparents died :(
CASE IN POINT::: CELL PHONES ARE NOT A POINT OF ARGUMENT. TELL HIM TO THINK OF SOMETHING ELSE TO FIGHT ABOUT. SERIOUSLY. TURN YOUR PHONE OFF, LEAVE IT IN THE CAR. GEEZ. Yes, cell phones are nice in EMERGENCIES... NOT TO FIGHT OVER. make it clear to him.. nurses and ER people need to be able to get in touch with you... If you have elders who need you...
MILK.... OK... NOW WE ARE ARGUING ABOUT MILK... GET RID OF IT.. BUY OATMILK.. PURCHASE ALMOND MILK... GET RID OF THE ARGUMENTS...Don't Buy dairy--PERIOD... Let him go out, bring back.
What are we going to gripe about now? NUTS... Yes,, people are allergic to nuts.. do they have affects on spouse?
What about chocolate? spouse have issues? Potatoes? Bad? seriously? Your hubby helps in the kitchen? AND HE THINKS A PIECE OF POTATO IS GOING TO KILL HIM? Honestly... MY SPOUSE WOULD HAVE DIED YEARS AGO ... what did I do wrong? :-
Spouse is allergic to a lot of things. Almost killed spouse at a very nice restaurant over 20 years ago... THE BAD OYSTER... not my fault... Restaurant actually called us at hotel to tell us to go to ER... That's how bad, bad oysters can be... DEADLY... guess there was only one that was not good. yes, we are together in harmony or agony... you toss the coin. I have my DNR in place. do you?
I hope we can get out of this rut and have a nice day off sometime soon.. we both need it.
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KatieWorry Aug 2020
My phone was effectively off the whole time. Do not disturb is what you use when sleeping so the phone makes no noise and does not vibrate.

I do not need to get rid of milk, I have no issue with dairy and prefer it to non-dairy milk alternatives. The issue is that he's decided I am lactose intolerant and that is not and has never been true.

We don't argue about nuts nor chocolate nor oysters. I do not understand your reply or how it applies to my situation at all.

The issue is not with day-to-day spousal disagreements. It is with these specific types of disagreements where he is very angry over things that are not real, but he is making up (or imagining, or, lying; I don't know) about me. Things I would never do.
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His mom has dementia... Is it clinically clear ? does he have other family near? and you do not want to cut mom out of picture if she needs help... that is not right.
I may have been blogging things, but let me be clear... You Cannot Abandon Your Mom. should not. And you need to get her house in order. Who has Power of Attorney for finances and health? Who does she depend on mostly when she does need help? Who is the closest to her physically, mentally, emotionally? Hubby sounds like he doesn't want anything to do with her. Does mom have other children who are willing to step up to the plate and take care of MOM?
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KatieWorry Aug 2020
This is not about his mother's dementia care.
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Why was hubby NOT WITH YOU, while VISITING HIS MOM? strange.... yes..

AN ENTIRE VISIT AT HIS MOM's... WAS HE WITH YOU?

If that is the case... tell hubby it is his responsibility to VISIT HIS MOM... not yours. You have your immediate family to visit...

HONEY... YOU NEED TO TAKE CARE AND SEE YOUR MOM... It is okay,

Are you sure he doesn't have a secret cell you are not aware of?
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KatieWorry Aug 2020
We were together the entire time at his mom's.

This has nothing to do with my mom.

No he doesn't have a "secret cell"
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Just buy frozen foods or make him do the shopping, or just order OUT.

DO NOT BUY DAIRY

DO NOT BUY FRESH PRODUCE

BUY DRIED FOODS, TV DINNERS, FROZEN FOODS
to avoid confrontations.
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elaine1962 Aug 2020
Or perhaps don’t buy any food at all to avoid confrontation, right MAYDAY???
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Hi, Katie.

You sound very worried about your husband. Have you shared with him that you are worried?

When was his last complete physical? Are you in touch with his doctor (like maybe you have the same doctor)?

If I was in your shoes, I'd be in touch with his doc and give him a short version if what you've told us. It sounds as though he is having instances of mis-remembering things, or false memories.

I wouldn't necessarily jump to a dementia dx, but I would talk to his doctor about it.
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KatieWorry Aug 2020
Thank you very much for your reply. I am very worried about him. It has been years since his last physical. Partly because he's convinced he's healthy, and he otherwise is, and partly because where we live there is a dearth of physicians and it is almost impossible to find one taking on new patients. Our previous doctor moved away without notice and we've been without for quite a while now. I'll see to it I find us a doctor and get him to a physical.

Thank you, also, for your earlier reply and the link as well. I'll take a look at it.
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it sounds like he wants to start something. I guess, if you eliminate the things he does not like, he will find other things to argue about.
come on, have you heard about someone getting sick over one potato? If he saw it while helping you cook, he should have just grabbed it and tossed it.
that's what I did. I had a bag over a couple weeks,,, thinking I can salvage something. Chop off the bad stuff, but when the flesh is green, and weird.. yup, I tossed it.
If he is so scared about cell phones, the both of you should acknowledge, you have it, and it stays in the car when you see his mom. Glad he was there, sounded like you were the only one visiting... My apologies
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anything else happen within this time period?
Verbal abuse is just as bad as physical abuse... If he is getting more abusive in any form, you may want to consult your doctor, and his..
Jumping through hoops to keep him calm is not a solution.. find help. others will post now too.
take care.
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CrushedLove18 Sep 2020
My thoughts too. 😕 (Sadly)
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Katie, here's an interesting article:

https://www.healthline.com/health/confabulation
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graygrammie Sep 2020
Oh my word, thank you for that link. I was thinking Katie could be describing my husband in so many ways but that link describes my husband to a T.

About a year ago, he started telling people that he turned down an appointment to the Naval Academy! In all the years I've known him, no one ever mentioned such a thing. I was planning to ask his brother but he passed suddenly from Covid in March. I did ask my sister-in-law a few weeks ago and she said that it wasn't true.

And he keeps saying I said things that I never said. I keep attributing it as gaslighting. I have to stand my ground and say, "I never said that," even when other people are around to hear.

My husband does have a diagnosis of fronto-temporal disorder from a hospital stay when an MRI was done. BUT neither his neurologist nor his pcp have ever addressed this.
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Katie, some folks would call what your husband is doing "confabulation". It is a symotom of various kinds of cognitive issues.

Another source of information about this issue is the "nurse line" if your insurance company has one. It's basically a non-emergency phone line staffed by an RN who can help with sorting out symptoms, and when to seek care.

Does your husband work? Any issues there?
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CrushedLove18 Sep 2020
Good idea.. I really don’t have a lot of experience with Dementia. However, in my previous marriage I discovered that whenever my ex husband was having difficulties within his business- he became distant. Of course he was also cheating on me. But I degrees (sorry)
Maybe your husband’s behaviors are the beginnings of something associated with Alzheimer’s. But they seem controlling to me. I hope that I am wrong. If these are new behaviors and he has never made you feel less; I apologize. Please call his doctor, ahead, and explain your concerns. Also, try to talk to your husband about your concerns. Ask him if there is something he is worrying about.
Best wishes.
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Katieworry, I was just kidding about don’t buy any food. I thought what MAYDAY said was absurd. Please consult his doctor. Hopefully you are his healthcare proxy so you can talk to his doctor.
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Time now to keep a diary. Sorry to say that, as it will cause you to "watch" for things, and perhaps to take things too seriously. But it is time to do so.
You could be looking at other stressors, to tell the truth. His own aging, what he is seeing with family that is aging, any job changes or life changes. It could be something else to do with anxiety that is being kept in. It could be depression due to covid-19 shut in?
I have a question. When you speak of any of this calmly, sitting down with him, is he very upset, very much in denial? That would be a que that he himself may be noting changes that are scaring him.
I would, as I said, keep a diary of sorts. Just a date and an incident. You will know soon enough. This could be what you fear, but it could be also a general depression and anxiety. Wait and see is easy enough to say, and oh so hard to do. I am wishing you luck and hoping you will update us. If there is a way for you to join any dementia forums, such a groups on FB that are private, and if he doesn't meddle with your computer sites, do so. You will get a world of info. If you get questioned if he finds something say you were worrying about yourself, about your family, and that you feared you were having, YOURSELF, episodes of forgetfulness such as when and how much you used your cell phone. I agree, it is by far the most disturbing of the instances. But he could be very threatened that you are moving into the 21st century and he doesn't want to "go there". Watch and wait. You will know soon enough.
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These could all be separate issues. My kid's father is in his 50s and has a strong dislike of cell phones, and I could see him saying I was "playing on my phone" just out of bitterness that I had one at all. My mother, who is in her 70s, has literally accused me of "playing on my cell phone like a naughty school girl" when I was in fact not on my phone. She uses a smart phone but hates the technology as a concept and misses greatly when the world did not include these devices. They get sad and angry about the world moving in a direction they do not feel at home in. Sometimes people also just get spiteful and want to express that by starting a fight. I often just apologize even though we both know I didn't do whatever it is they are up in arms about, just to stop the fuss they want to raise. With the lactose issue, he could be either confusing you with someone else in his family who is also lactose intolerant or perhaps has concerns that you might be growing to have problems with dairy. Or he could be saying it to annoy you because sometimes people just grow spiteful in age and ill health. It is also a symptom of dementia. Or they could be feeling poorly for any reason and be grumpier than usual and just wants to fight. If you try not to get angry yourself - recognize he might not be able to control this behavior- try just agreeing with him and apologizing and see how he responds- does he look surprised? It should help you see if it's deliberate lying to start a fight or confabulation. Or try and remain calm - you mentioned you got angry too- and ask him for more details in a low key way like "Did I ever have trouble with lactose? I don't remember!" And see if he can give any details that might lead you to better understand if he is confused or just playing a trick to get you upset. Both as providing dementia care for clients, and in my interpersonal relationships, I can recall people wanting to play little tricks on you to try and get a rise out of you for various reasons. If you can manage to remain calm and not take the bait if he is doing it on purpose it might help. Or he might start even bigger fights and try harder to get a reaction out of you. I have had multiple clients get into the habit of winding you up with little tricks and mind games so you can't be sure when they really are confused or just pulling your leg, or maybe they are just having some difficult emotions and aren't sure how to express it other than they want your attention. Maybe he is feeling resentful he has to take pills and you do not. Maybe he needs to ask you to bring him a pill and feels more comfortable offering you one instead of asking for himself. The best thing I have found is to just stay calm yourself, diffuse the fight before it blows up, and ask them lots of questions about how they feel. The potato thing, as people get older their taste buds change, and food does not taste like they expect it to. And if dementia or memory loss is present, they will forget why the food does not taste right to them. It is quite common for clients to express fears that their loved ones are trying to poison them or that food is spoiled when it is not because nothing tastes the way they expect it to. Saying it's "just like you" to ruin the potatoes could mean he has been wondering about foods tasting differently for awhile. Maybe make a point of asking him how he is enjoying his food to see if it is that? Or it could be just a regular relationship issue of the person taking their frustrations out on you, because you are the one who is there. Because you mentioned you also got very angry and forgetful about things, it could be you are both just getting on each others nerves and stressing each other out, and could benefit from some time apart and self-care, if possible, even just making sure you go to the movies or out for coffee with a friend once a week or so, so you do not trigger each other so much.
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If this is a new pattern for him, then it does sound like early dementia. You just can’t argue with a dementia patient, because their version of reality is very different from that of the rest of us.
I hope you are able to find a doctor for him to go to nearby, to get a definitive diagnosis (vs online opinions). If you are able and interested, reading books about Alzheimer’s/Dementia may be very helpful. I’m currently reading “I Will Never Forget”, about a daughter dealing with her mom’s dementia, and it’s been very helpful. This site is a great resource too, of finding others in the same boat.
My heart goes out to you, for the difficult journey ahead.
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There are some good solutions here and some not so much. (Ignore the not so much ones. They seem to be obvious. ) If he is reluctant to get a physical suggest you both get one with your new family doctor. You really should have a family doctor for you both. They can help you track cognitive as well as health issues. I guess ask a lot of questions in a calm way when hubby gets weird with his perceptions. Maybe see if you can figure out why. Again don’t let it get to you.
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jacobsonbob Sep 2020
Choupette--I agree with your comment for a couple reasons ;-). Yes, they BOTH should go to the doctor. If KatieWorry doesn't make an appointment for herself too, her husband might get suspicious. If possible, she should contact the office before her husband's appointment to let the doctor know her concerns about her husband.
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Sounds like he needs a thorough examination from his doctor and testing done, Goggle test questions you can ask him to check somethings yourself.
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I can see why you would be concerned. I agree that finding and seeing a doctor would be a priority. It may be difficult and you may have have to travel some but it could be important. Behavioral change is an indication of some alteration in brain function. There could be multiple causes; there are 150 types of dementia. He is likely not seeing anything wrong so getting him checked you could be tough. I know you don’t want to start a fight by asking him about it but maybe you can get him to recall the circumstances that got him to apologize and see if he will bring up anything he might have noticed himself. If he is starting to notice things, he might not be willing to bring it up out of fear of what it could mean. But the scary stuff in life does not go away by ignoring it.
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His symptoms seem to display early dementia. He needs to be evaluated by a neurologist ,his general physician and a nuerophyscololist which helps doing a cognitive test. My husband displayed similar symptoms starting in his early 50's. Please seek family support and make your kids aware. Caring for someone for dementia is very challenging and long journey. My own husband passed away last year. I wish you the best, take care of yourself please. And may god bless you and your husband.
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My mother would say off the wall things and accusatory things that didn't make any sense and would totally piss me off.  She was still in her 50's at the time, and we have no family history of dementia, so I did not suspect dementia.  Looking back on it, all of the pieces have fallen into place and they were definitely early signs of dementia. My mom has been living with a diagnosis of dementia for 10 years now.  After 3 years I placed her in assisted living.

I totally understand how scared you must be.  Most of us think that dementia is an "old persons disease" and that we won't have to deal with it in our 50's and 60's, but early onset is becoming more and more common.  Odds are you will have trouble getting him to understand/admit that there is a problem and that he should go to a doctor and have some testing done.

My heart goes out to you.  Don't forget to take care of yourself while you're trying to deal with him.
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I was using the word "dementia" in my posting, but he could have any number of neurological disorders.  The bottom line is that he is saying irrational/illogical things and from what you have said it is out of character for him and therefore worth a visit to the doctor.
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I would say early dementia -- or perhaps a head injury that is unknown or not seen at the time of injury as problematic -- old football/sports injury, car accident perhaps? Old head injuries can wreak havoc on the aging brain and can manifest as dementia. Medical research is only at its beginning stages on this one because most research is tackling years of sports head injuries in the professional athlete, but the occasional or short-term / high school athlete has yet to be truly examined.
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jacobsonbob Sep 2020
Not to sound scary, but another possibility could be a brain tumor--even if benign, it could have effects due to the pressure it creates.

(My apologies to Taarna--I typed the foregoing before seeing your comment.)
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My heart goes out to you as it’s so difficult watching our LO change before our very eyes. A book I’d recommend you get is The 36 Hour Day. It discusses dementia and Alzheimer’s and gives practical tips for coping with the challenges they present. Excellent for caregivers, family, medical staff, etc. the book gives helpful advice, lists resources to check out and is practical. Money well spent- God bless you, your husband and family.
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The 36 Hour Day,
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A little info about dementia. Dementia can be caused by strokes, Parkinson's disease (aka Lewy Body dementia), or Alzheimer's disease. Alzheimer's disease is the most common and can strike as early as 50's but not usually until 70's or later. Most of the time it manifests as errors in judgment at first and progresses into memory problems. Most Alzheimer's patients are unaware that they have this disease

It appears that something is going on with your husband's thought processes. It could be blood chemistry imbalances, one of the above dementias, or even a tumor. Please get him to agree to a doctor's appointment so you can pinpoint the problem. If he does have early Alzheimer's disease, there are wonderful medications that will help him have better thought processes for many years. The key is early diagnosis and treatment.
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katiekat2009 Sep 2020
Another consideration - vitamin deficiency, especially B vitamins.
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KatieWorry,
unfortunately, as I read your question and descriptions of behaviors, I do think your husband is starting dementia. I lost my mother last December. LBD. Upon reading your husbands behavior reminded me of exactly similar behaviors my mother had at the very beginning. Very early. Now I understand why she was accusing me of silly simple things that I didn’t do. She was confabulating. Later, other symptoms developed which were extreme and hard to handle. But your descriptions match my mother’s very very early stage.
It’s a journey of 7 to 8 years. I’m sorry to tell you, it will get worse.
all I can tell you is to cling to God very tight. Do not argue, do not try to convince, do not engage. When possible re-direct.
may God bless you and accompany you.
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Katie, your immediate problem is how to get your husband to see a doctor. Do you get flu shots? You could use this as a possible reason. Or you could use the excuse that you pay for health insurance but aren’t getting your monies worth because you don’t get a yearly check up. You’ll need to brief the doctor’s office on the situation prior to your visit.
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In addition to mental illness, post traumatic brain damage, and dementia, another possible diagnosis is hydrocephalus (swelling of the brain) that can mimic dementia. There is no way to know unless he is evaluated by a healthcare provider. Specifically ask about these and make sure he is tested for all of them, Parkinson's disease also can cause dementia but it usually appears later in the disease process.
Here is an article about different causes from the UK: https://www.nhs.uk/conditions/dementia/causes/
Here is one from USA: https://www.webmd.com/alzheimers/types-dementia#1 I just did a search for Causes of Dementia and found these two articles. There are many more, but I read these and thought they might help. This is a really thorough one: https://www.mayoclinic.org/diseases-conditions/dementia/symptoms-causes/syc-20352013. Praying that you are able to find answers soon.
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Conflation, confabulation, and/or fabrication - - individually or in any combination - - are often indicators of status change in the brain. And it doesn't necessarily mean dementia of the Alzheimer's type; it could be a nutritional deficiency, TIAs, mini-strokes, etc etc - - things that could be corrected early on, unlike brain changes that bring on irreversible memory loss.

Which is why medical evaluation should be sought whenever there is a noticeable deviation in behavior. Best to find out what you're dealing with diagnostically, the sooner, the better.
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DrBenshir Sep 2020
Alcohol, late effects of TBI, reaction to OTC medications, bi-polar or other mental health conditions that he is able to control up to a point, and many other health issues (such as Lyme), cerebral vasculature disorders or brain lesions can all cause signs of dementia. Even hearing loss and vision changes can mimic dementia, and are easily diagnosed and treated. Medical evaluation for both of you with brain imaging is a necessary first step. I got my DH to do a virtual physical with me, and we were able to see the brain changes caused by multiple concussions.
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Many conditions can mimic dementia. I have gone thru very similar things with my husband for the last few years. His nastiness and memory loss got so bad that I called his doctor before a routine appointment and told him what was going on. Thus began the journey toward a comprehensive neuro-psych exam. It was determined that his issues are NOT dementia but Slow Cognitive Tempo and his body is not producing testosterone anymore. Even with injections, his T levels are way too low. His doctors are working on this. He also has a bit of depression and a low dose of Lexapro has helped. Please have your husband see his doctor to start trying to figure out what is going on with him. Call his doctor and explain to him or her what you have been noticing. I know full well how hard it is to live with someone under these conditions. I hope you get answers and help soon!
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jacobsonbob Sep 2020
Did you husband acknowledge there was a problem, accept the diagnosis and treatments without fighting? If so, hopedly KatieWorry's husband will do so, too, if a doctor can provide a diagnosis and prescribe a treatment.
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I'm posting this because it relates to many brain disorders, althouth it might not be the cause of your husband's problem, it might contribute to it, and a complete nutritional assessment is always primary when addressing any illness.
Clinical studies connect microdoses of lithium with amyloid plaque ( which causes Alzheimers) reduction and cognitive improvement. Lithium is an essential element from the earth we normally would get in healthy food, but our soil and food are depleted. Here are the studies. It's worthy doing the research .

https://content.iospress.com/articles/journal-of-alzheimers-disease/jad190862?fbclid=IwAR00XaWA0BUr0BQqnnYC1D4nVSx4jpkes9uhhWiBFKIQQ3YvdgY8-3ZNEzY

https://scitechdaily.com/low-dose-lithium-may-stop-alzheimers-disease-in-its-tracks/?fbclid=IwAR0FwmWc3hXCadTbRzsnGIndR3LhXD26ohsL_gwQ9Fkqq6m21fHlHB1CZ4k

https://www.psychiatrictimes.com/view/lithium-alzheimer-prevention-what-are-we-waiting?fbclid=IwAR2hnjyERcF-sre0Ooqczoxk1nrSoeqgWUyAHIJ9dCSGvi4E9hSz1rnWf6A
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I think these are early signs of dementia. Irrational anger and accusations are often the first signs.
You need to change your attitude and quit taking it personally. That is very hard to do but necessary if you want peace of mind.
For example, in the rotten potato incident, you could say, I don't know how that got in there and simply remove the potato.
The accusation over the cell phone would be harder to turn away but maybe you could say, I don't remember that, and change the subject.
You have to know that this is dementia and not his normal behavior.
I think a thorough physical is the next step. You need to inform the medical team what you are concerned about so they can perform testing.
They may need to add certain markers in their blood work that they normally wouldn't test for or add other tests that cover this area.
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