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My husband is only 75. He seems to be declining fast. Just wondered is anyone knows what to expect with Lewy Body. This? is a new diagnosis.

My husband has Parkinson’s disease but no dementia.
First noticed by his GP almost 15 years ago then formally diagnosed by neurologist over 10 years ago.
Until about 5 years ago he was fine, his is no tremor type of Parkinson which is apparently worse, however we truly enjoyed years of living fairly normal life, apart from taking few pills daily, my husband was overall in excellent health.
Right now the progression is fast and relentless.
In last 10 months, hospitalized 8 times. Constant pain for which even morphine does not help anymore. And other complications.
My message is simple, do whatever you enjoy doing right now.
It is progressive disease with no cure.
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Reply to Evamar
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I’m so sorry you and your husband are facing this. Lewy Body Dementia (LBD) combined with Parkinson’s can feel overwhelming, especially in the early stages of the diagnosis. Everyone’s journey is different, but some common things families notice are fluctuations in alertness (good days and confusing days), vivid dreams or hallucinations, mobility issues similar to Parkinson’s, and changes in thinking and memory that may come on more quickly than with other dementias.

It can progress faster than some other dementias, but the course really varies from person to person. What helps many caregivers is:

• Keeping routines simple and predictable.
• Watching carefully for medication side effects (especially certain Parkinson’s or antipsychotic drugs that can make LBD symptoms worse).
• Building a strong support network early — neurologist, movement disorder specialist, and caregiver support groups.

Please know you’re not alone. Many here have walked this road and can share what’s worked for them. Reaching out like you just did is a powerful first step
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Reply to TenderStrength5
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I've known several ladies whose husbands had Lewy Body dementia along with Parkinson's, and I can tell you that Lewy Body dementia is the second most aggressive of all the dementias with a life expectancy of just 5-7 years.
And all of the husbands with it that I have known of did end up completely bedridden towards the end of their lives.
I wish you well as you travel this very difficult road with your husband.
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Reply to funkygrandma59
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