My wife is paralyzed, confined to a wheelchair and sleeps on a hospital grade bed to prevent bedsores. I work 6 days a week and have an aide there while I am gone. They help her in the morning with bed bathing, dresssing etc and transfer to her electric wheelchair. If the day doesn't involve a doctor appt they will do light housework laundry etc. which she helps where she can. She was so active before the accident 7 years ago and I know she wants to do more and feels so helpless. It doesn't help that she deals with chronic nero pain which is common for SCI people and must lay down every 4-5 hours. The aide leaves an hour before I get off work and I usually call my wife to see how she is doing to see if I can make a quick trip for grogeries or some other needed errand. Many times I will get a text to hurry up while I am doing that because she needs to lay down or requires a BM or her bladder spasm caused her to soil her pants and she is sitting in pee. The level of stress I get is high as I try to hurry up with the shopping to get home. I get she feels horrible about this and I try very hard to put on a happy face when I get home. It can be very hard to treat the event like it's no big deal everytime but I try cause I don't want her feeling any more of burden than I know she already does. So I take care of my caregiver duty and lay her down after. I than try to find something quick and easy for my late lunch and sit down. I try to unwind and "refresh" but it's hard not to focus on the day and where my life at 49 is at and the future. There are not many options or family and she would need to be in a home without me which scares me to think about and doesn't help the anxiety and stress I already have. I don't know what type of feedback I am looking for if anyone has words and maybe this is just a "vent session" for me. I don't feel any different for typing it out and my outlook seems the same but I'll get through the day and we will see what tomorrow brings.