Follow
Share

My mom is 82 year old and was recently treated with radiation on 2 masses on her spine due to follicular lymphoma. One day she woke up and could not walk due to (later found out) compression of the spinal cord. Her bladder has also been affected and she can no longer urinate on her own and uses a foley catheter which we are hearing may be a permanent thing. Her overall condition with lymphoma is stabilized, but she may never urinate or walk on her own again (still needs hoyer lift in rehab). She is currently in short term rehab, but progress is VERY SLOW and long term care seems inevitable (although I am still keeping the faith that things can turn around). This all started 6 weeks ago - before this she lived alone with part time live-in company of my brother, and me and another brother live close by. She is a vibrant women who still have her faculties and wants to live. She and her family do not have much money and are in the process of applying for Medicaid. I would love to get her home eventually even if she cannot walk or urinate, but not sure this is logical. Are there any programs through Medicaid in NYC to get at home services for her disabilities so she doesn't need long term care in a nursing home? Would love any help and advice I could get. If my desires are unreasonable I would like to know that too, so I can resign myself to the fact she will likely always have to live away from home in a nursing home facility. Thank you everyone.

This question has been closed for answers. Ask a New Question.
From what I have read, on average Medicaid can send over a caregiver but it would be only for a couple of hours each day [this all depends on the programs offered by your State, each State is different and programs keep changing depending on budget cuts].

You need to do what is the best interest of your Mom and if you and your family would be able to give her that higher level of care, on your own, at home 24 hours a day.
Helpful Answer (0)
Report

In my state, CT, it is sometimes possible to get something called "PCA Waiver." This gives a person living at home extra hours of in-home help. Ask your local area agency on aging.
Helpful Answer (0)
Report

As far as I know, in New York State , with medicaid, your mom would need to join a Managed Long Term Care program. They would then determine. how many hours of care she would need per day usually up to five hours,but could be more in her situation. You need to contact your local Department of Human Services. The wheels turn very slowly so the sooner you contact them , the better. Around here it takes about three months or more to get enrolled. Best wishesto you and your family!
Helpful Answer (1)
Report

This question has been closed for answers. Ask a New Question.
Ask a Question
Subscribe to
Our Newsletter