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I feel guilty as heck but I didnt envision my retirement this way. I just want to stop having to be responsible for an elderly parent. I often times think i will die before she does. Will this ever end?

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I read your replies .
You don’t have to continue to be “ on call” or even a regular caregiver . Your sister is choosing this . Your sister does not get to control your life .

You tell sis you are not supporting this any longer . Either sis figures out another way without you or mom gets placed .

Your sister can not make you keep doing this . You are giving in to her . The way you “ get over the psychologist aspect “ of not being in control of your own life is you learn the word “ No “ .

Practice saying ….
No
I will not do that
That does not work for me
That will not be possible .

You are not responsible for anyone else’s only wishes or happiness .
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JeanLouise Aug 28, 2024
Exactly. Sounds like sis is dragging him into her world. Step back, time to establish boundaries
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Your feelings of responsibility are something that you have assumed yourself.
No one is responsible for their parents.
We are responsible for our CHILDREN until they reach age of majority, then they are responsible for themselves and any children they bring into the world (until those children ALSO reach age of majority.

You well may die before your parent. We have seen that happen. We have also seen people ignore their careers and savings to care for parents and end up homeless and without a job history; we have had to suggest they start at a homeless shelter, often at the ripe old age of 65 or so. We have also seem people mentally broken by caregiving.

This will stop when you yourself put a stop to it. You, as a grown adult, are responsible for your choices in life, and the consequences. There is much support out there for you if you simply level honestly with family and those you care for, that you cannot go on any longers.

You didn't cause the aging process, you cannot prevent it, and you cannot cure it. There should be no guilt in choosing to have a life. You deserve that, rather than wasting your own life by throwing it on the slow burning funeral pyre of your elders.

Please consider counseling to seek options for paths that after 25 years have become rote and habitual. I wish you the very best.
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FixItPhyl Aug 28, 2024
Very good advice ("You didn't cause the aging process, you cannot prevent it, and you cannot cure it. There should be no guilt in choosing to have a life. ) ... it seems to take some of us longer to learn to follow it, but better later than never.
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Your last post was asking about resuscitating your 99 year old mother who's 4'11 and weighs 110 lbs and worrying about broken ribs!!!

I would imagine your stint as a caregiver will end once you agree to either place mother in managed care and also stop questioning a DNR at 99! CPR causes more damage than it cures, and being alive for 99 years +, mom has already lived way beyond the mortality rate for 99% of women on earth.

If you feel like mom will outlive you, please look into AL right away. It's not the horrible place some think it is.

Good luck to you.
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Valentine15 Aug 19, 2024
I guess I should provide a little more info. My sisters only wish in life is for our mom to live as long as is humanly possible. She has every alarm you can imagine in her house. She gets up in the night several times when an alarm goes off to take Mom to the commode bc she wont let her wear pads bc they cause skin breakdown and that is just the tip of the iceberg. My sister would never let Mom go anywhere else unless she needed skilled nursing. Mom is her entire life. She takes great care of her dont get me wrong but the older Mom gets the more desperate my sister becomes to make sure she doesnt die. It's become incredibly hard because she and I see things so differently. If our mom dies at age 100 I wont completely go to pieces like she will. I just want to stop feeling so sick of all of this and wanting for it to be over.
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After reading the further information you provided about your sister, which is beyond sad and concerning, I’d even more say you need, and she needs an honest conversation about the toll this is taking, as well as where it’s inevitably headed. You’re tiptoeing around your sister, she’s in a mental health crisis desperate to prevent what’s sure to come, and you’re both exhausted from it all. None of this is good for your mother. Sister needs someone to be frank with her, she’s not seeing the situation clearly in her unrealistic plans. She likely needs therapy. Please take action on this and don’t let fear rule. Everyone involved deserves better. I wish you all peace
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Beatty Aug 19, 2024
Yes & more yes.
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Enough is enough, Valentine. There's two choices here.

1) The elderly parent goes into AL or whatever type residential facility is right for their needs.

2) A live-in caregiver moves in and the elderly parent pays for it.

These are the only choices you should be willing to accept.

It's time for you to retire after 25 years of caregiving and accept the metaphorical 'gold watch' which is you get your life back and can actually enjoy your retirement.

It's okay if you see your mother as your responsibility. That doesn't mean that you have to be a care slave. That doesn't mean that you personally have to meet all of her needs and make her happy.

Your responsibility is making sure she has a safe, clean place to live. To make sure she receives necessary medical care and decent food.
This responsibility can easily be met in AL or any other care facility.
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OH and to answer your question - I am also tired of being responsible for my elderly parent. She's 81 but old for her age and not doing so well. Currently in rehab and will transition to LTC once she's "ready". I've been providing care for her for almost 10 years - first just general things at my home, then she started having cognitive issues, then need to place her for my sanity and to have time to spend with my kids and grandkids. It's not easy, but you have to pull away to be able to live your own life.
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Valentine15: I feel for you. I've only had my mother for 5 years and I am going bonkers. As far as your parent outliving you is one I think about a lot. You want a life; I want a life. I don't want my mother to die, but it would surely take away her pain and let me live again. I just had a birthday, so I'm now 71. Then I read in the paper that we lost another classmate. Life is passing me by. I don't have any suggestions for you, just that I commiserate with you and have a great deal of empathy for those in our situations.
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BurntCaregiver Aug 29, 2024
@uarew6

Put her in a nursing home, memory care, or AL. At your age (71) how many good years do you think you have left?

I'm going to tell you the same thing I told Valentine who's had the yoke of care-slavery around her neck for the last 25 years with her mother.

Take the metaphorical 'gold watch' and retire from caregiving. Five years is long enough. Take back your life. You deserve caregiver retirement. It comes with a pension too. Your pension is time. Time to enjoy your life. Time to go places and have fun socializing. Time to do fun active senior things like go on cruises and play bridge.

There are people whose job it is to take care of your mother. They are who staffs care facilities or they staff a person's home. I was one of these people for 25 years and not I'm the boss of people like this.

I did caregiving for my mother and it was the most miserable time of my life. More miserable even then post-divorce when I was living cross country, barely making the rent, and eating peanut butter and jelly sandwiches for dinner. I was more miserable being chained to care slavery for my mother.

I'm in an office now usually six days a week for the business. It's hard and long hours, but I'm happy. You deserve to be happy too.
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Hopefully some of these replies have started to lift a little fog from your eyes.

Fear. Of damaging your relationship with your sister.
Obligation. To provide help to Mom because sister does so much.
Guilt. As above, plus
"lot of guilt trips when I stand up to her"

It's all wrapped up together & can be hard to unpick.

With practice I started to be able to see the patterns better.

I saw that my family was a little stuck in *family only must help*.
Based on fear of strangers.

I saw people taking on responsibilty that was never theirs. Obligations were just assumptions, not fact.

I saw quiet people avoiding the unpleasantness of confrontation - saying a yes instead of the potential drama/guilt tripping of no.

It's OK if your sister wants to be Mom's #1 caregiver. If her values lean her towards martyrdom even.

However, it's not OK for her to control your life.

There are many ways to proceed. In your own time, at your own pace. From cold turkey I quit! To a gradual cutting back, being less available.

I have heard of a very quiet way to quit by filing up your time up a new interest eg new job, volunteer role, study, craft or exercise group.
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waytomisery Aug 20, 2024
Yes,
Quiet quitting by gradually not being available ,

first on Fridays

then Fridays and Mondays

may have sister realize she can’t control other people .
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I know of people who have died before the person they were taking care of...it sucks the life out of you. You are entitled to a retirement yourself. I don't know the particulars of your situation...level of care your parent needs, their finances, etc, but you should try to find a facility for this last segment of her life.

My mom is in memory care and there is still a lot to manage and stress about. Laundry missing, her monthly banking needs because of the miller trust, medicaid filings and bills, her health (she recently had covid again and was isolated) which caused her to decline even more. Spending time with her even though she doesn't know who I am and feeling like crap after leaving there because it's traumatic to watch. It's exhausting even if they aren't in your home.

Try to find other solutions and save yourself. There is no prize at the end of this.
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Madisoncuckoo7 Aug 27, 2024
This! Yes! Thank you! My mom’s been in MC for 4 years - thank god!!! - and I’ve been The One in Charge and I swear I feel crazier than she is. All she worries about is when lunch is. Meanwhile oh the emergencies and situations. Been doing parent care management and my mom for 8 yrs now.

Someone coined the term, ‘emotional hangover’ for the feeling after being with a difficult LO , and that feels so appropriate. I’ve started taking a ukelele with me to every visit , she likes the music but I swear it’s for my own scraps of remaining sanity. I just make up songs on the fly.

It is a looong road leading to bleah
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My friend’s cousin did die before her elderly parents. She has been dead for years now, maybe 5 or so. They are still alive.

It happens all the time.
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