When a Pateint is "talked into" home hospice because being at home is a better way to die", why are almost all services that you would receive in the hospital DENIED for home hospice?? I tried to remove my Lovely late wife from Home Hospice to take her to National Cancer Institute for (TIL) therapy which has been recently successful in the treating of Ovarian Cencer therapy using the T Cells of the patient's own body. I tried to explain to the Doctors and to the St Alphonsus Medical establishment that my lovely wife was not receiving adequate nursing care or care for personal needs by asking them: "Do you know any nurses I can hire who will work 24 hour shifts for 8 hour pay???. When I tried to remove my wife from "Home Hospice" a Registered Nurse who reported that she had been promoted to be our doctor's Assistant stated that it was impossible for me to remove my wife from Home Hospice. Further, our doctors at St Alophonsus Med REFUSED TO GIVE MY WIFE A BRAIN SCAN, (which was covered by insurance), which was required by the Stem Cell Treatment facility at National Cancer Institute to affirm that the cancer had not reached my wife's brain. The St. Alphonsus Med facility "Home Hospice managers gave two CNA's VACATION TIME OFF so that there was NO ADEQUATE CARE & and they forced one CNA to do the work of three. The "marketing" nurse asked me if she could attend the meeting we had scheduled with the St. Alophonusu Med Doctors and PA on the condition that she would keep her mouth shut and be a "fly on the wall" as she described it. Instead, when we met with the Doctor and PA this "marketing nurse" performed an Acanemy Award performance crying and screamin to convince my wife TO DIE at home. What followed was the most miserable experience where I slept on 4 hours per day, had to keep calling the Home Hospice, (left messages) as to the proper amount of pain medication to give her. The only personal care my lovely wife received at home was by a CNA, who was doing her best to cover THREE CNA's schedules flooded our bathroom as I assisted her in giving my lovely wife a "shower bath"..... I took my wife to the bathroom dozens of times a day by "waltzing her to the toilet singing in her ear" until she was dead weight and when I called for a catheter to be installed, the nurse who came put the catheter in wrong which prevented any urine accumulating but was kept back in her kidneys/bladder. (My wife had suffered from fist sized kidney stones which the doctor failed to 'NOTICE' on a CT scan which earlier caused me to take my wife to an emergency room halfway to Portland Oregon without benefit of pain medication.
Home hospice is a fraud, and I missed saying goodbye to my wife and was unable to provide her t cell therapy which might have given her much longer to live in relative comfort. I am seething. I am a lawyer with a pre-med degree so I am not clueless, who makes the decision to withhold medical care and paid for nursing care during "home hospice"????