Well my husband has dementia, and getting worse everyday. He also has an ostomy. I have to change that bag every week. This week he said he is not a sissy and doesnt want the bag. So that was the start of my day. This is not easy, and really you are alone. My kids long distance, think they help me with suggestions. They don't. Friends have abandoned us, they don't want the drama. I still take him out everyday for 2 hours. Just to get him to wash and brush his teeth. Been on eldercare wait list for over a year. So we can talk all we want, but we are alone, living a lonely life. And the responsibility of someone who really is no longer the same person, we are a caregiver. It drains the life out of you. You need to find a way to get some little bit of respite. I tried. But he doesn't want anyone in the house. I am responsible for everything, cooking, cleaning, banking and his 24/7 needs. I have been yelled at and pushed and I could go on, but why bother. It's a lousy end for you and your loved one. Friends see you coming and they look the other way, no invites, no nothing. Kids big ideas, but no help. So just know the truth....You're on your own!