
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Now, my father has mesothelioma and his girlfriend and I are his care givers. He cannot be left alone at all and is ALWAYS obsessing about something that is bothering him......this making whatever it is that much worse.
I have three siblings. One is out of state so he can't help. Two are local. One is a drug addict and can't take care of herself let alone anyone else. The other is controlled by her husband so she never helps either.
I also work full time and am at risk for losing my job because I have exhausted my fmla.
I am sooooo tired all the time.
My parents throughout the years, became wrapped up in many money matters w/my brother I've written about, "Golden Boy," over the years. He always seemed to have some special status. He was given money after high school to supposedly open a studio for photography. He was neither a photographer, nor business man.
All he did was have a studio, and invite his party buddies to hang out there w/women. My parents paid a one year lease on this place, and he never did anything with it. Much later when he married and had his children, my parents again lent him a huge lump sum, so he could rent a tool truck, to see if he could start his own business again. This truck just sat parked in front of his house. This fell through also. As time went on, my dad at least got the picture that Golden Boy, not only was bad w/money, but also took advantage. Dad took measures to not be his open wallet.
Anyway, my point is that I really believe parents must be very careful to whom they plan on giving money to, for how long etc. A gift to someone, well I think that is a different story. If you are saying that your son and DIL are not responsible w/money, and had debt before the marriage, unless they win the lotto, or something of sorts, how will they handle a mortgage, anyway? You have done a lot already, by just having them live in your home since 2009.
I really feel at least in my family w/Golden Boy, and the way my parents unfortunately just gave and gave for awhile, it did not teach him some values about responsibility, and being grateful.
Your son's MIL, sounds like a manipulator. It's just none of her business.
Anyway, please don't feel as if you are unfair, and some manipulator, is trying to push your buttons! Stay strong! Margeaux
We then became aware of the letters she had sent causing all of this as she had insanely sent copies to our brother in USA and he sent them to me. Immediately I contacted social services and showed them that I was immediately able to clear my name - I showed them that I had no criminal record and offered my medical records to them to prove I had no mental illness or schizophrenia etc. With the help of other social workers who had met me the previous year when she had begun to make these allegations, and a retired doctor we knew, the whole thing was proven again to be malicious. WHAT DISTURBS ME IS THAT she was allowed to make these complaints without any real investigation into their truth - I literally had to PROVE my own innocence! I now have the whole matter with a lawyer, despite social services sending me a letter saying that it will be to my and my mother's 'detriment' if we pursue the way they handled it! We do know that now, however, the social work files are updated to make sure she can never do this again.
Since it happened, and my mum again now lives with me, the said sister has sent a letter to our brother in USA claiming again that she wants to know if I am 'anywhere near my (her) mom'. She also says in the letter that she has been diagnosed with a bipolar illness!!
Apart from the extremity of what happened, still I remain the only one of four to be there at all for my mum. Even my brother, over a decade my senior and in USA, does very little - he phones hardly at all, and when he heard that since my mum has moved in with me, and I have my friends helping with her care, that in his opinion I should not 'be putting that sort of responsibility onto other people'. Unbelievable I know. I pointed out to him that friends offer because they see that no other family members seem willing to help in any way. He says he cannot do anything living in USA. I told him that I am NOT here to be the only one helping our mother with no help from anyone else and that if he feels my friends should not be helping then he should be over here. He says if I want my full freedom in life then I must place her in a carehome (which neither I, my mum or my friends or social services expect) - all to ease his guilt, I suppose, at doing NOTHING. He is the only sibling I (or his mum) is now in touch with. I have read some stories on here but feel mine is depressingly extreme, involving people who refuse all responsibility but even then cannot just have the guts to say it as that, instead making up all manner of lies to cover it.
Here's the good news Sharynmarie; my son has been dating and now living with a very nice woman (his age) who is a nurse and makes really good money. She is very easy going, no flipping drama, doesn't need to be saved and knows what she wants. They get along so well and just seem like a perfect fit. I hesitate to say that, but in fact it's true. So this is a comfort to me in my old age. He's happy, he's got a good job again, he's found someone who makes him happy and it's not about money or possessions. So there is hope.
We put my dad in respite care over Mother's day weekend and I flew to North Dakota to see my granddaughter. I have not been able to visit her for the past 4 years due to my folks needs. She is getting married this August and, yes, we are helping financially with the wedding. I got to be with her for her final wedding dress fitting and do other special wedding things with her. It was very special to me. She's a little young to be getting married, but really she is an old soul at heart and the guy she is marrying is so wonderful. I am very encouraged for their future.
So now I'm babbling on, but I just want you to know that I am behind you all the way. Your son has a lot to learn, but let him learn them. Everyone has the right to make their own mistakes, just don't rescue him. (When I say that, I'm not suggesting that you let him live on the street. You can put a roof over his head, but you don't assume his debts or make it possible for him to incur more debt.) Someday he will be 44, like my son, and he will have experienced many things and be a better person for it.
By the way, I have a great husband too. I'm so glad to be able to get to know you better. Love and Hugs, Cattails
Cattails how right you are about buying a house in San Clements. Being a resort area ot is very expensive. All the homes in the city proper have been converted to appartments.
We all want to help our kids, but each child is different. Where could they possibly afford a house in San Clemente anyway?
Hugs, Cattails
bikmo - I am on the road to the family drama in a couple of hours -wishing you well with yours on Saturday. And, from another post, you can have a romantic relationship in your 60s and 70s, The important thing is not to repeat past mistakes. I think I finally have it right. I have been done wrong too.
Margeaux, it is sad to see them go down hill, as difficult as they can be, it is still sad.
cmag -glad you are feeling better You have a lot of senior family members nearing the edge. Keep looking after you
austin, I do enjoy your encouraging posts
tbailey, sounds like you have dealt very well with quite a lot - and yes, who cares what they think
brandy - glad your mum liked your mother's day gifts, sounds like sis is a real big controller. How is your husband?
thinking of you all - if I have forgotten anyone it is not intentional - I love hearing about how everyone is doing
take care - I will check in when I am settled in the hotel.
Joan
That goes for everyone - look after you.
Well I'm glad to hear that you're not feeling as overwhelmed as you felt I guess it was a couple of weeks ago, now? What you said about your dad and the caregiver's input, with your mom and stirring things up when they've been maybe giving her ideas that she'd leave the nursing home, I'm sure that made it extra difficult for you. So yes, this must make her feel more confused.
I know as time goes on, since I'm really learning what the effects of ALZ can do to a loved one, I'm having to realize that there could be some decline going on with mom. On account of this, I totally understand how you feel when you've written about your mom's situation. Yes, I've had my sad moments. Last year I had a grieving of sorts, realizing mom would never be the same. But now I have tried to adjust my attitude to the now. What I do is try to work with it, and try to be on the look out for changes, clues....then maybe I can put my little grain of sand to make things a bit more comfortable for her.
Well, that is good, Cmagnum, that you do have the long term insurance, and she is in the NH. So at this level, this is a very good thing. You're a good man, I know from reading here you take care of a lot of people and business. Stay strong!
Love & light! Margeaux
knew my husband & I had plans to go see some of his family in tenn. that summer so they just gave me a small amount before vacation then rest when I got back Which I told my mom to do because I didnt need all they were giving us to blow on a trip. Its your business who cares what they think...I just hope your son isnt influenced by them he probaly knows how they are. He is around them more than you. GOOD luck...
How is your friend? Was she trying to decide to quit caregiving with no regrets was that it? just wondering...
Margeaux~Alz affects them differently at different stages. As I told cmag, my mother confuses me and my sis all the time now. She continues to disregard anything we tell her and I don't expect that to change...it's what I see as her not recognizing us as adults or as separate beings from herself (personality disorder). It's a shame family get to together's are so uncomfortable. With my family I am comfortable because they accept me. My husband's family is a different story. They want me to follow their traditions,etc. and disregard anything that is about my family and I refuse to do that. Maybe I am wrong, but I do not believe I should clone myself after my mother-in-law to be accepted by them.
Pineapple~I am happy you have a great attorney working in your behalf. It will make things easier in the long run.
Bilmo~I love your sense of humor and totally get it.
I returned yesterday from visiting my son and daughter in law. There are some issues there that I have not shared. Back in February my sons MIL sent me, my husband, my daughter a message about how their family comes together in a time of need. It went on about how my DIL's brother gave my son and DIL a down payment on a car, and how brothers and sisters should help each other during times of need. All three of us were very offended with this message. If she had just posted it on F/B we would not have taken personal. My son and DIL lived with us until January 1st of this year. They were suppose to pay us $200 a month. Not because we need it, because we wanted them to know it wasn't a free ride. When they got married in 2009 they both brought debut into the marriage. My son wasn't raised that way but he doesn't seem to be able to handle money well. They lived with us without paying anything. We continued to give them money to help them out just as we did before they moved in with us.Apparently they were also getting money from DIL parents. When my son left here in NorCal to go to SoCal (San Clemente is about 375 miles south of us), he blew the engine in his car because he wasn't getting regular oil changes, etc. He then drove his wife's car for about 3 weeks when it went dead too. MIL blames my son for DIL's car biting the dust which I dont think is deserved in that short of time. Because of the message MIL sent us, my daughter (I told her not to respond) who is very assertive and does not put up with other people's garbage told MIL that she is way off base and that we as a family have helped them as much as we can without going into debut which we are not willing to do. She also told her that she was not aware that both cars had died and that she and her husband could not have helped them anyway. MIL responded that me and my husband favor her over our son. This is because when my daughter moved to Idaho, she was living with her fiance and his parents and they(daughter and son-in-to be were saving money ) While I was planning their wedding here in Norcal, my daughter surprised us by telling us they bought a house in Idaho. Her fiance did not want a formal wedding so my daughter was torn on what she wanted to do. We could not afford a big formal wedding and were planning a simple formal wedding that was going to cost us around $3,500.00. Because she was torn on what she wanted to do, we offered to give her $3,000 as a gift for her house and have an informal wedding. They went for that instead. My son and DIL had a formal wedding that cost around $10,000. We paid $500 for flowers, the tux rental for our son and my husband, 2 nights stay in a luxury hotel because his MIL want nothing but the best. We ended up spending close to $2,000. Plus we were giving them money to help them out when the wedding was over because they were and still are financially strapped. MIL stated that we should have offered my son and DIL money to get a house like we did for our daughter. I told her it was none of her business and that she is trying to place a wedge between us and our son. Please be honest, are we wrong in not giving them money for a downpayment on a house when I received a call as recently as today from a company down south that they are behind in a payment??? I just returned from a visit with my son and DIL. I offered the olive branch to MIL. She took over the conversation (she is very assertive and describes herself as having a "BIG" personality"). I took control back and told her I was not going to split hairs over our differences and that I apologize for "misunderstanding" the message she sent to us. I did this only because we will be seeing each other from time to time and yes, I am being selfish because I will demand my rights to my grandchildren regardless of what MIL may say. When my son and DIL can get out of debut, save the money for a downpayment on a house, and qualify for loan...all on their own, we will give them a monetary gift as well. Is this fair or are we showing favoritism toward our daughter??
On a more morbid note and I don't know why my mind keeps wondering about this, but in light of what I know now, there is a high probability that with the next 6 months my step-mother will die from her pulmonary fibrosis; some time within the next year I think my MIL will die from her heart problems followed by very likely my dad dying within the next two years given how weak he is and how lost he will be without my step-mother and somewhere parallel to that time frame my step-dad might pass away given he is the same age as my dad and not in good health, as well as my mother might last another 3 or so years in the nursing home.
My wife remains in a lot of pain and the doctors have not been able to do much for her pain. I hope the physical therapist that she sees at the end of this month will help her.
I'm doing better than I was when I went through that overwhelmed phase.
I think mom's condition is mainly her worsening dementia. My step-dad and his helper created confusion when they told her that I could over ride the nursing home doctor and get her home. That is not something that I view as a wise action to take. I know that my mother is on some strong anti-seizure meds, but she's been on those for years. Speaking of years, this is the start of her fourth year in the nursing home. I'm so glad that she has long term care insurance!
Changing the subject, I learned last night from my dad, that his wife has been given 6 months to live given how bad her pulmonary fibrosis has become. My dad has been very realistic about her increased decline, but my step-mother's daughter who lives in the same city and comes over a lot has been in denial about how bad off her mom is. Given how super close she and her brother are with their mother, the death of my step-mother will hit them hard. My dad has a very good long term care insurance policy and has wanted to go to assisted living for some time, but my step-mother did not, but now I think he will after she dies. Out of the guilt of his first marriage ending in divorce, he has bent over backwards trying to make that marriage work by trying to keep my rather narcissistic step-mother happy. He is so co-dependent on her that he's going to be lost without her. So, it looks like among my three elderly relatives and one elderly inlaw, that her's will be the first funeral. Sorry to be so matter of fact, but that is how I feel today.
How are you and your wife doing? I read your post about your visit to the NH.
Do you think maybe she was just having one of those sleepy tuned out days?
But you do mention confusion.
Well, my mom seems sometimes also getting things confused when one talks to her. My sister thinks she's more alert. So about a week ago, I relieved my sister.
I ask mom very simple questions now, it's just easier for her. But she'd just been to my brother's for a visit. So I asked her if she had a good time there. She said yes, and started to tell me how cute the great grandchild is, etc. This was followed by, "Oh and then I went to see Lila." So I asked her, Lila, my neice's aunt?
She responded, "No Lila, your sister.:" Well, mom lives w/Lila, my sister. She told it to me in such a way, like she thought it an odd question. But I became aware of how the ALZ, is affecting her too. It is really difficult to gage what is going on w/them at times, isn't it? But this makes me aware, that possibly the ALZ could be progressing. I don't know how mom has processed the recent passing of her sister who lived w/her for many years.
Well Cmagnum, we can't tell what causes the confusion, but my mom was being so sleepy after taking I think Namenda. I know my sister just went to an appointment w/her Mon., and hasn't given me an update, because other dysfunction is taking precedence right now, w/our Golden Boy brother.
Possibly you might want to see what medications they are giving her, but if you sense too that your step dad may be saying certain things to her, this could cause someone in her condition confusion.
I'm happy for you and your wife that your son w/be visiting and helping you out,.
Meanwhile, take care of yourself, we missed you! Love & light! Margeaux