Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Keep on hanging in there, and RELAX. You are doing fine.
book - how are things at your house?
jerlisha - glad you are getting away - you need to plan more of that! 13 years is too long without a break!!!
Jessie - my story - the one like yours - is that the summer when I turned 16, and we were with family at my grandfather's cabin, an aunt drew me aside and told me that they all knew it was difficult for me because of my mother, that she had always been like she was, and that of there was anything they could do to help they would. I don't believe they said anything to my sister, who was the "golden child". Over the years, that meant so much to me. It was an early statement that it wasn't me -not my fault, though my mother gave me the message very strongly as a child that most things that were wrong in her life were my fault -or my father's. It was a Godsend!
alabama -wondering how you are, and what has happened re the court decision. Like you, I am about ready to walk away from it all. I am executor and would not be suprised if, when mother dies, my sister takes me to court. For years, she has planned to get all the inheritance.
envision -only you can stop you from being taken advantage of. I know it is a hard lesson, but focussing more on you and your needs is healthy -just say "No"
austin - looks like you are up and at it again! Good.
hollis - how are things going?
joymoon - sometimes we have to draw some pretty firm boundaries with our children - no fun, but neceaary
cmag - looks like yoir wife is on the way to becoming independent again!!!
capn - sounds like you have things worked out well with your mum. I think they need someone firm, and I totally agree -she should do as much as she can on her own. My mother is a physiotherapist and we were brought up to do for ourselves. She is reaping the benefit of that now. I remind her of that and urge her to do as much for herself as she can. She has told me that she can do more than she thinks she can! I don't buy the helpless act very often.
Margeaux - you have some good insights - yes the relatives will put things aside for a while, if they think they need us, or can use us. It is something to be aware of. Also they will accept no responsibility for trouble that they have started. It is always someone else's fault.
However I have forgotten - not intentional -chalk it up to a stuffed up head due to the cold. I am taking everything I can think of to get rid of it.
I just got over one cold and looks like I have another one -G came home with one yesterday. Aaaargh.
My friend had her surgery Tuesday, and got through it well. They took two lymph nodes neither of which showed any metastases, so it looks like she will be OK.
I just about had a bird when i read what a well known researcher on aging -Aubrey De Grey - wrote: "the first human who will live up to 1,000 years is probably already alive now," My first thought was "Oh Lord, that will be mother." She has made it to 100 already. It was enough to depress anyone. My seond thought was that I would have to be the second person to live that long, so I could have some peace on this earth. LOL - I can't imagine!!!
Take care every one. Remember you are at least as important anyone else, and you are more responsible for looking after you, than anyone else is.
♥, higs and prayers - Joan
We have an appt. with the neurologist on Feb. 11. It's the earliest we can get in. No matter if I am working or not I go to mom's in the afternoon to give her the medicine and I take all the junk mail with me. Yesterday I had to be at work at 4pm . so I had to go to her house before the mail was delivered. Just hanging in there until we get things put in place.
As for your mom, she definitely is getting worse. Too bad you don't "pick up" her mail at the post office. This way you can automatically junk the junk mail. I've had to do that with father's mail. If he had all those junk mail, he would be ordering left and right - no matter the cost. He can spend over $200 on one herbal catalog. He orders all these pills, and then it sits in the cabinet expiring.
The scary part is if she's afraid to be by herself at nights, you may need to brainstorm on that. I hesitate to say this but you may have to do this to calm her panic. Problem is - in her dementia - she will end up accusing you of stealing things and kick you out (and if you refuse because it's night time- she might become violent).... or... she may start to think that you DO live there and when you stop spending the night - it will confuse her. I don't know what to say....What if your mom is scared of staying by herself, will she leave the apartment to "get away" from it? My mom started "wandering" at nights. We all took off in different directions looking for her. Finally, father had to add 2 different locks on the kitchen doors, the door between the kitchen/living room, and the livingroom door. She was able to unlock 2 out of 3. HUGS!!! to you.
Envision -- I spend most of my life caregiving. Yet family who earns much more than me (I only make $24,000/year) come to me for money. I spend most time at work/home I have no where to spend my money. Yet these people make over $17/hour and are always broke. I resent it very much. My fault for not knowing how to say NO.
Another day a customer and her friend came in (probably in their early 40's) around 8pm. One lady wanted a sandwich. As I was making the sandwich, I asked her if she wanted, lettuce, tomato, onions, pickles and peppers. She said I want lettuce, tomato, onions and peckers, Lol!! We laughed and she so was embarrassed about it but she wasn't uptight about it. Her friend pulled out her cell phone saying I am going to facebook it. Quit my job...no way!!!
Best to keep your answers of family life to your boss as simple as possible. The more elaborate or detailed you get, the likelihood you get caught and you end up looking bad. Maybe? The next time the boss brings it up, just tell her that mom’s situation is ever changing. When the time comes when you definitely need several weeks off to get her stuff in order, then you will apply for family leave (or whatever it’s called.) Remember, keep it simple but Vague! Once you start giving details, you are easily tripped. And you’re not telling a lie. Mom’s situation IS continually changing, and eventually You WILL be needing those leaves. You’re just waiting until you need it. Keep it simple.
And I definitely do NOT recommend you giving up your job for mom. You know from this site that there are alternatives. Your job is your sanity. Plus, like Austin said, with the economy as it is – it would be very difficult to find a steady job again.
Hi Margeaux and Cmag, Emjo and Envision, and everyone I have not mentioned!
My sister has also been assigned the DPOA, then she is the one who moved in w/mom. At times when I've been wondering about whether mom should be given certain medications for ALZ, if ever I've tried bringing this up to my sister, by her response, it is made known to me, it's been taken care of.
But I wonder about that, since my sister really can't even tell me what stage of the ALZ mom is in. I honestly don't think she has ever researched it, even when I've suggested various websites to her.
During I think it was Thanksgiving, when I asked mom how she was feeling, because she was complaining about pain in her back. She has had pain for the last several years from a fall she had. So I asked/suggested maybe I could bring some aromatherapy oil, I've used, and give her a delicate massage. My sister's reply was, "oh, the caregivers already do that for her." So you see, she w/put up any and all road blocks whenever I've expressed concern about mom's ailments or medications.. I know why she responds to me in that manner also, because she wants total control of the situation.
Well, at some point since you seem to be the one who is ready, willing and able to be there when your mom needs you, your sister may want to give this some serious thought. But I totally get it, she sounds very much like my sister in that they cannot seem to relinquish some of the control.
I think people who control will always place their needs over anyone else's.
When my aunt died a year ago, mom hardly had been out of the house much, because my aunt went into Hospice there at mom's. So mom's mobility took a serious dive. Just a few weeks later, when I'd call my sister on weekends to check in on mom, she'd tell me of these 3 hour, or all day shopping trips she and my mom were on. Then, I expressed concern as to whether mom was up for this, I mean she is 91 yrs. old too. Even then, my sister was saying, that things were going to change now, w/mom since her narcissistic sister was out of the picture.
Well, it took probably no more than a couple mos., for my sister to start complaining that when she'd take mom out like this, that mom moves slowly, that she really couldn't get her errands done like SHE wanted to, etc. Now my sister has become way more discerning as to what and where she can take mother.
But bottom line, I think sometimes my sister does this in an attempt to recapture something we didn't have w/our mother while mom's sister was alive, because they were always together.
Well the good thing about you realizing all of this, is that you are aware.
This I think is priceless, in that we can hopefully move forward and keep our elder's best interest at heart. That is what you are doing! Much Love, and Hugs! Margeaux
Joan~How are you doing? I hope you are well, not having a lot of pain with the fibromyalgia. I know you are grieving the loss of your dear friend. I am thinking about you. Hugs
Cmag, Envision, Joymoon, and Alabama,Book, and everyone...I am thinking of you all as well. Hugs
If you think your mom can no longer make sense of her phone calls,
I notice you've said, "everyone, seems to think it not a good ideat, about forwarding calls" Who is everyone? I see nothing wrong in doing this, since this way you'd be able to see what's truth vs. possible misinterpretations by your mom.
Besides you could even do this on a temporary basis if need be.
Do you sense that your mom is actually aware of her decline? I ask this because when our mom was first diagnosed w/Alz, it was rather hard to decipher some of what was happening, especially while none of us were living there daily with her so that we had the upper hand in monitoring what was actually true.
She at first seemed somewhat obsessed about playing with crossword puzzles.
Poor thing, I think this was some attempt on her part to try to keep the Alz, at bay.
But since some of this monitoring of her incoming calls also has to do with she being more at ease, (especially she believing they will get her out of her own home). Anyway, it could save you a lot of time and energy also about wondering and worrying. You have enough to do already.
O.K., and I completely agree with Austin's advice about your manager.
Just be aware. Much Love & Light, thinking about you! Margeaux
That was a good story about your friend. That is quite a bit of control on his part, especially concerning the money she earns. A situation as such, having a positive outcome, is rare. Yes, maybe in some instances, many husbands/partners wouldn't have put up withe the wife putting her foot down. But maybe many wives wouldn't put up w/this kind of control by a husband either, especially for that long. I'm happy for your friend, that she had the courage to stand up for herself. I cannot imagine what she must have felt like as a person those first 10 years. Oh, and his parents, aren't they a lovely lot! Surely, the husband picked up some bad habits from someone.
Thanks, I love to hear people's stories. Much Love, Margeaux
It's very busy for me these days with my mother. The antidepressant seems to be calming her to a degree (I don't want her over medicated either) but I am happy with results. She has an appt. Wednesday morning to see her PCP so we can get a refill on the antidepressant. A week ago yesterday (Sunday), when I went over to give her the medicine she did not look well. As I talked with her, I realized she had been crying because she said she got a phone call from someone telling her she had to leave her house and could not live there anymore. I would like to have her calls forwarded to my phone for a week or two so I can find out if she is hallucinating or if she is just confused with the information from a business call, but everyone seems to think it would be wrong of me to do this so I haven't as yet.
My sister has been sick with bronchitis and sinus infection so no help from her last week or this week. I did finally make contact with her thru an email at sis's job since she won't answer her phone. I have been frustrated cuz she won't answer her phone and I didn't want to leave a message since I would be going to work and miss her call (she has caller ID but still wouldn't call back). The email message sent to her simply stated that we need to either hire home health care or get her evaluated by another dr. She responded back saying that mom's LTC policy requires that she be evaluated by a neurologist then they will sent someone out to mom's house to evaluate her activities of daily living (ADL) to determine if she qualifies for home health care under the policy. My hope is that we can do that next week, would rather do it this week but mom's PCP has to send a referral to the neurologist and her history before we can set up the appt. Helen called me saying mom had walked over to her house, she said mom was very disoriented, didn't know her SS# and other info that Helen quizzed her about. She went over to Helen's cuz she received a copy of beneficiary designations on her accounts with Charles Schwab. Mom didn't and doesn't understand what it means so she took it to Helen for her to explain it. These designations were assigned the same way as she did her Will with her elder law attorney. Now the papers are missing because my mom has hidden them somewhere in the house. I have no problem going to mom's daily giving her the medication, cooking for her on my days off and making extra to freeze for her, but on the days I do work, I can't control what she eats. I really think she makes corn flakes for dinner because she doesn't want to be bothered heating something up in the microwave and this is why she needs to either have home health care or be placed in a SNF. My boss brought the subject of my mom again and I told her I am not the only one caring for her. I said there is my brother, my sister and two nephews who are helping with her care, plus me cooking for her and freezing home cooked food for her. Not the complete truth, but hopefully we can see to it that she is not alone at any time sooner than later. Sorry for such a long post but I don't know when I can post again until things settle down. I am thinking of all of you and hope you are all doing well. Hugs to everyone!!
Oh, that is hard. It's hard enough when we must be exposed to people like this, who are at the bottom of it all extremely insecure. Then they think in their demented way that by giving their boyfriend , a prospective MIL or anyone all the messages they don't like, approve of you etc. It's especially hard once they've a child in the middle of it too, just complicates relationships, doesn't it? If this behavior is surfacing, and they're not even married, whoah! Well, I guess it's up to him what he must do on that end.
From witnessing my brother's reaction to our difficult SIL, they were married by the time the first daughter was born. Even when she had their second one, she really didn't share those girls with our family much. As I said before, they do live a distance from us, so that of course worked in her favor. But my brother and his wife never invited me to their house until I went just about a year ago with my sister. This is after a little over 20 yrs. of marriage. So in some kind of way, my brother has been instrumental in not encouraging we his family to come to their place either. So the guys in this picture, can either put their foot down, and they better do it sooner rather than later. But unfortunately as in my brother's case, he by his behavior didn't think it that important, just went along with her plan, even if in a silent and complicit way. I really feel the guys end up suffering in this, because wouldn't you think it drives home the point to their girlfriends/wives, that it's o.k. and gives their power over in the relationship to the women. He sounds like a good young man. I'm glad that your youngest is getting it together too.
Oh!! Yes, the birthdays of our departed loved ones can be hard.
Did you mom pass away recently. Each time it's my dad's birthday, I go through a rough patch. It's understandable. Well maybe you can create your own special tribute to your mother, like make her favorite foods, something like that.
O.K., Envision hang in there, you're in my thoughts! Much Love, Margeaux
Regarding, "They'll forego previous cruelties committed upon us," yes, I'm beginning to zero in on how the manipulation manifests in terms of behavior. In my sister's case, she has done the silent treatment to me over the years because she is jealous of me. It took me, a very long time to admit this to myself while I was growing up, because I'm just not as competitive as she is, nor do I have the need to control.. She does, and to an extreme. Prior to my aunt's death (a narcissist), my sister was in charge of her care until her death, exactly one year ago. So my sister needed a sounding board, (that's me) HAAH! So at some point, my sister dropped some of her distanced attitude with me. Why? Because she needed something, the moral support. In my particular case, this is the manipulative aspect.
It's taken a long time to realize how the manipulation can manifest. I'm growing tired of feeling like, "what they heck was that," w/some of the toxic people in my life. I think that it's very important for we who wish not to be a party to the dysfunction. really take a look at our own situations, and start to notice the patterns. One can learn so much by doing this.
How are things with you, Envision? How are those men behaving?
I sure hope they are being nice to you! Much Love, Margeaux
Sorry for some of my poor grammar, I'm still not quite awake.
Margeaux