Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
What happened, I proofed, and made my corrections, but didn't delete one too many easiers. Also some way. Margeaux
I'm glad for you that your mom assigned both the DPOA, and MPOA to you.
This wrought havoc upon our family the last few years.
My sister was assigned DPOA of both mom and mom's sister.
She only had MPOA, of mom, She being the sibling living w/mom (in mom's home), aunt also lived there until she died. But it became a living night mare, towards the end of the narcissist aunt's life, and of course ours.
Since my aunt maintained control about decisions re: her health, made endless appointments last year, w/her various doctors. She suffered from congestive heart failure, and diabetes. We know at the end, she probably had made many unnecessary appointments, also because she as you've described your MIL was very afraid of death. Our aunt was pseudo religious. Religious, just as a front in my opinion.
Major abusive behavior surfaced last few years w/her. Throughout much of this, since my sister called me with endless complaints about her, I didn't just want to be the sound board, but was trying to offer some kind of solutions/suggestions to make life easier for my sister. My aunt maintaining her own MPOA, was the one who decided to do Hospice at mom's home, with no input about this decision at all from my sister.
Well, I wish you the best with all of this and your wife.
I certainly hope the two sisters can keep some of the competitive drama to a minimum. But I understand this, to a degree, since this is some of what I have going w/my own sister. I have chosen though not to compete w/her, which I really have never done anyway. My sister also in the picture of mom's health....enjoys being very secretive; it feeds her control. So she can have that, but what it means also, is then I can only participate to a limited degree. This is too many mental hoops to jump through for me, thank you very much.
I certainly hope for your sake, that there's someway your wife will find the best way to deal with this issue, because it will make life easier for easier for you.
I hope she is continuing to recover her mobility, and I hope you are doing well.
Thank you for writing about this subject. I think also our legal system is so convoluted in these areas. Much Love & Light1 Margeaux
Medicare does not cover long term care in a nursing home. It is basically Medicaid, overseen state by state. Unfortunately, someone in the family took large amounts of money from her and that may make her ineligible, or they may penalize her by not covering it for a certain number of months, as they consider that a "gift".
And I am the one left holding the "bag".
Yes, someday they may be in the same situation. I hope somebody does better by them than they have.
I will try to let my anger go as I know it only does me harm.
Thanks for your concern!
Lovingmom~I hope you get the aid...does she have medicare? It's a tough situation when no one else is helping. Have you called the Area Agency on Aging? From what I understand they have many programs that can may be of help. It's worth calling them to find out.
As many others will tell you, their siblings don't/won't help either. and you can't force them. One way to look at it is that your siblings have the right to chose just like you do and if they chose not to help then try not to focus on their lack of help. Being consumed with anger towards them will only add to your stress and affect your health in the long run. Family's can let us down quite often and just not be there for us...it's their loss because some day the shoe may be on the other foot and the example they are setting for their children, will bite them in the butt. Hugs to you and let us know how things progress with getting the aid!!
It sounds as if what you are experiencing w/your mom at the moment isn't easy by any means. I remember while no one was yet living at mom's, this was before her diagnosis of the ALZ, was revealed to me and my three siblings. What we came to discover, was that she'd been diagnosed possibly a year prior, and was already taking some kind of anti-depressant. She and her narcissistic sister lived together.
In those days, mom physically was still the stronger of the two. My aunt had knowledge of our mom's condition, but they were keeping it from us. Mom was still driving back then, if you can believe it, which wasn't a good idea. I don't know if you remember a post awhile back in which I'd written about going there one day.
I found my aunt there at the house alone, and she told me my mom had gone close by, to get some milk. Well, my mom was gone for almost two hours, and I was on pins and needles waiting for her. By then, it was quite obvious mom, probably was disoriented, or lost. But anyway, my point being, that although, I understand your feelings about not wanting to hear about her condition, but really, it's better that you know not only for her safety, but also so you can start to pull some resources together for that time you will need more information to help you out. Believe me, I remember going over there to visit, and realizing mom's mental decline. They never seemed to have their answering machine hooked up, and working. So on one visit I set it up for her and my aunt. I then tried to give mom instructions about how to listen to messages. Of course I had to repeat it several times. In hindsight, after realizing she was well into having ALZ,
one day I thought about this. I felt bad about taking her through this answering machine lesson.
I could tell she was very confused. Later, it also occurred to me she was trying hard to feign that she was understanding the instructions given to her. This I know stressed my mom out, as I recall. We were so mad at her sister for not telling us, about mom's ALZ. But this too was the big dysfunction about the two sisters. I guess for my aunt, it was more important for her sister w/ALZ to still be available to her, as her caregiver & driver. Their attempt at control and independence.
Right after we found out mom was diagnosed w/ALZ, my sister had to have the discussion about taking the keys to the car away. This element of her sister's influence upon mother to make dangerous decisions, especially to still drive, had to come to a stop. We had to decide, "Well if it's upsetting two elderly stubborn women, vs. keeping them safe," we opted for the later.
I have gone through the grieving also. Although, mom has been a narcissist too,
she did have a personality. She could be funny, very sociable, always had great one liners. So given the change in her personality, (more withdrawn), I do miss that side of our mother. I have you in my thoughts big time, a good cry is good too.
Much Love & Lot's of Light! Margeaux
It's good to hear from you. Real happy to hear about your friend's progress after her surgery. That post about making it to 100 was funny! We had an aunt (grandmother's youngest sister) lived until 109 yrs old, passed in 2007. She was quite an amazing lady. One quality I remember about her is that she was always laughing, and making us laugh.
How is your mother doing these days?
O.K,, I hope you and yours are doing well. Much Love & Light! Margeaux
Kicked me out of the mother's building, by telling Senior abuse that I was abusive, went to court, where they thought it a good idea to get a GAL, had an investigation, mother failed to thrive when they put her in the nursing home, sold her building, now living in an apartment with their mother and her son (8 months), whole experience 7 uears in the making and they still do not get it,
They do not even get that they were abusive to the mother, as well as the caregiver, important thing, the Mom is doing well. In the end the Narcisstic's are just that, narcisstic, they come from anywhere and in the end, can only blame themselves, but of course, I can go to bed at night with a clear and clean conscience. Glad to find the blog, hugs when yo need them and prayers when you think you don't. Narcissism doesn't belong to a generation, it is their way of life and their slant on reality. Empower yourself by letting go, their strength comes from watching you suffer, thy manipulate just so secretly, they can laugh brhind your back, once your focus is yourself and your strength, a narcissis' has to move on for another victim, think vampires, emotional vampires. You need your strength, for the real job taking care of yourself while caregiving. Kindred Spirits, I wish you all well, above all else be kind to yourselves.
My mother would have these "bouts" of confusion to where I would be "slightly" attacked verbally and some days almost brought to tears. One day both of my brothers came to see her and had heard some of the bad things she would say to me. They couldn't believe what they had heard (when she left the hospital and I told her of this, she didn't even remember saying them). I had later found out that for the elderly, urinary tract infections can cause some confusion and to keep an eye on that. One of the patient service reps had told me that she would need "at home care" to help her to get back to walking again (she was having a little bit of a problem with that). I had told them that I would not know where to begin with that and they suggested that once her "physical condition" was better, they could then try to admit her to a nursing home facility for physical therapy. She was there for about 3 1/2 months (due to Medicare only "picking up the tab" for that length of time) and then she stayed with me for a while (I was having her kitchen and bathroom "renovated" for her).
All that I can say is that I have been there for her...taking care of her and making sure that her house is taken care of (it has some issues that need to get fixed that I just can't do and she can't afford). I've been out of work for a little more than 2 yrs. (but I've been looking for work) and it just hasn't been easy. She helps me a little bit with my bills and I'm using my savings to try to hang on. I now am embarrassed to say that I'm going to see if I can get help for food stamps (I pay her bills and groceries, but there's just not enough of my money for food). I try to do the best that I can for her, but it's hard and it can get very overwhelming on some days....especially when I have no help with all of this. She has arthritis in her left knee, to where it's starting to affect her walking. I don't live close to her (I'm about 30 mi. away) and I have to drive out there to help her. I have two brothers (one is about 10 min. away, but because of his work, he can't help...my other brother is in KY), but it's fallen on my shoulders. I can't tell you how many nights I cry because I just wish I could do more for her....find work so she doesn't have to help me....or just wish that I could change places with her. I don't want her to know of my being upset about this....she has enough to worry about as it is and I don't want her to have to worry about anything! I don't mind taking care of her...after all, she's my mother and if it wasn't for her and my father, I wouldn't even be here. Plus, when my father was in ill health (colon cancer), I promised him that I would take care of my mother. The only thing that is hard for me, is not having anyone to "talk" to when things get hard for me. I just pray every night that things will get better and that MAYBE I'll get lucky and find some kind of work that I can do off of my computer (which would be easier for me to do, since I'm taking care of her). It's just nice to know that reading these blogs lets me know that I'm not alone! God Bless all of you caregivers! Maybe there's a "special angel" looking down on us?.....
I'm am really happy for you that you've made that appointment for the 11th.
Hopefully the neurologist will finally evaluate your mother. Do you think maybe that since your mom has only been on this new medication a couple of weeks, possibly something is going on for her in terms of an adjustment to it?
It occurred to me regarding those phone calls she receives about the possibility of registering her phone number(s) on the "Do Not Call List." Right after the New Year I started to receive way too many advertisement calls on my cell phone. So my husband found the number for our carrier, and we re-registered our numbers.
Your mother's carrier should have a number for this.
I remember when my sister started to have more problems w/our narcissistic aunt w/respect to her declining health. Since my sister didn't have MPOA of her, and was living in the same household, the situation started to get very sticky, between the lack of cooperation on my aunt's part, and some very necessary medical and caregiver decisions going on there. I remember that she finally became connected with some social workers. They seemed to give her referrals, or ideas as to how to start some kind of process for my aunt.
This really must be a challenge to say the least with your sister. O.K., I'm thinking about you. Take care of yourself, and do take the deep breaths! Much Love & Light! Margeaux
My Mom had total knee replacement surgery in feb 2012, my sister talked Mom into putting her on Mom's bank account with ATM card while she recovered so she could pay the bills well she did a lot more than that. My brother who had cerebral palsy was on hospice at the time and two younger sister also special needs live in Mom's home so do I. I was very busy taking care of all of them but was noticing that my sister had plenty of money to spend, her not having a job I looked into it come to find out she had been doing online transfers of my brother & sisters social security money into Mom's account and using her ATM card to withdraw it my Mom is payee not my sister . As my brother got sicker I stayed by his side 24/7, 4 months later he passed away. Last month Mom had my sister taken off bank account after finding out what she had been doing , now my sister keeps calling Adult Protective Services making false reports on me to get me out of the way, then she plans on having Mom claimed incompetent and be her payee & my 2 sisters. My Mom and I haven't even had a chance to deal with my little brothers death and now this. Grieving & Stressed !
They are no longer allow on my property that I rent from my landlord. I know them both real well and went to school with both of them. I just could not deal with the stress and trying to be a babysitter for my best friend which she is borderline narcisstic person. She has all sorts of issues and now is mad at me cuz I not only lied but inform the police she call me when she had no contact rule based on her conditional release. You can't help everyone and I learn that I had reach a more mature level of growth than her. She is still trapped with paranoia and fear; besides binge drinking and severe epileptic etc . I do not regret calling the cops cuz regardless of the neurospinal surgery she had done for spinal meningitis and double pneumonia. She is also very aggressive and violent. Its hard to imagine someone you know all your life turns on you because you wanted peace. After I call the police I made the decision that they had to move out because they were not trying to get a place to live and I was helping her husband get his disability. She can't take care of the kids because of her medical state and surgery and he can't take care of the kids cuz he has no jobs. So i know a borderline vs bipolar and I could not take the risk of her unpredictable behaviour and her drinking. They cannot come near me and the funny part is that she wants me to lie to a judge. I am not showing up or testifying n purger myself for her. She needs big time mental help so now for now I can deal with the color of black; being her frienemy. I had to get my short term anxiety medication increase so that I can find a way to deal with all of this. I hope the Good Lord Blesses me and allows me to keep my job still but I am also mad that my husband's ltc plan changed their call center hrs so now i have to find a way to get him to his appt on tuesday and pay the baby sitter. The only relief I have is that my family life is back as normal as can be and I can breathe. I am not suffocated anymore or feel like I am going to crack. As for others on this thread wishing you luck and prayers in these tough trials we all are living and going through. Peace N God Bless:)
We never heard from APS. I am thinking that the report from her dr. was a standard report he has to do by law when a dr. advises that a patient can not be living alone to protect himself as well as the patient. If that is the case, then APS may not respond. However, if my mother has a tantrum at the neurologists office and refuses to cooperate with a memory screening, we will have to call them or the Area Agency on Aging requesting a social worker. I offered to call them but her dr. said no, I will do it. I am confused as to why nothing came of it. My sister did call APS a while back and they told her we needed to file for a conservatorship which I will not do because of the cost and how long it takes to get one. If the neurologist recommends incompetency, we will have to go court at that time for a judge to decide. Until that happens, we cannot place her so it could be a few months before this is all settled and I can breath knowing she is safe 24/7. My original question on the other thread was should I take some time off work until things are settled? We will see what the neurologist has to say and recommend.
On to the humor that gets us through these times, living to be 1,000, Lol!! I laughed at your response Joan. I am glad your friend will be ok. Breast cancer twice is rough and she will have a recovery to come through as well.
Good night all and Hugs to everyone!!
She's already checked herself in and out of the same assisted living place twice, but then decided to stay home with some hired help who she managed to anger like she manages to do with everyone but cannot see it that way. Her hearing is terrible and her mind is slipping, but she has this idea that new hearing aids will make her hear like she was 21 and that she will somehow get better than she is. She's terrified of the idea of dying, but has always been rather religious, but it's had no impact on her narcissism.
I've told my wife that without Medical POA they are going to be helpless when their mother's health seriously declines which will mean they will have to file for guardianship which will not be pleasant. My wife realizes that and sees the tough road ahead of her and her sister.
At least with my SIL having Durable POA, when her mother's health declines to the point of not being able mentally and/or physically to do her business, then Debra will be authorized to do that which I guess will include paying people to care for my MIL at her home until she dies.
Right now my MIL is in a nursing home that she checked herself into and once again she does not like it and plans to stay there until April 1 when she plans to return to her duplex which will mean expecting my SIL and BIL who are in poor health themselves to help my MIL to move once again.
I can't begin to tell you how many houses she has bought to live in, apartment she rented, condos she bought and duplex she has built. She cannot stay in one place very long at all nor can she handle living with herself, but she can't see how she isolates people (typical borderline 'don't leave me, I hate you').
I'm glad that my mother planned for her long term care with an insurance policy and giving me both POAs before she started really going down hill, but she was resistant to the assisted living idea that her neurologist told her to do and she was resistant to use the riders that her long term care policy had for home health care and home builder care. However, that major stroke and her hip breaking made the situation such that the nursing home was the only reasonable option left although my step-dad did not like it nor does he like me having POA. Mum really should have told him years ago when she did this.
Love, hugs and prayers for all!
God Bless
joy I am glad you did get away for her. All those negative messages do harm us. I don't know if you do have a narcissistic borderlne personality - as you are aware. The ones I know are not aware at all - that is part of it. I am sorry you feel you have destroyed relationships. Maybe something will work out with one of your kids at least, eventually. It is not over till it is over. I have had my uos and downs with mine too, and still am with my daughter. ((((hugs)))) Life is not easy.
Hollis - you are right you are leading an abnormal life. Is there anything you can do for you to make it more normal - like getting out with some "normal" people. I don't think it is terrible of you at all to hope to get out of your situation. Could you arrange for some respite? I don't see you wishing any harm on your mum - just wanting a life of your own and an end to caretaking in this form. I would be very resentful if I felt I had to stay in my room. I had to do that when I used to visit mother, as it was so stressful. I couldn't take more than a few days of it.(((((hugs))))
envision - yes, it seems what we fear does come to pass sometimes. A therapist recently said to me - "It can't be much longer". I don't believe it! lol