Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Sorry, can't stay long. Running late for work.
Tonight I will have supper with a friend of 45+ years. She lost her oldest son, I lost my youngest. We have been through a lot together. Both her parents are gone now and her knowledge of caring for seniors is very helpful to me. God bless us in the midst of the trials. Keep on keeping on! (((((hugs)))))
Emjo, good luck today as you continue in Edmonton to sort out mother.
Thanks for the hugs, sharyn. Mother will likely need some of the furniture, but there is much that my son could have, and it is a very good place for it. I may have a few pieces of hers - or even my own - that they can have too. Too funny about your parents locking one another out - but not at the time, I am sure
abb - awesome I will pass along any tips you can give me re bed bug extermination. I am like you - critters will NOT get the best of me. I pull out any obsessive traits I have and give them full reign. I once had flour beetles in a cupboard and someone said I would never get rid of them. That is a war cry for me - never say never lol. I got them out. Bleach, Raid, hot water, steam, anything I could lay my hands on. And many years later, they have not come back. I like your comment about your parents being aliens to you. I have felt that about my mother and my sister. My father, though alcoholic, was a nurturing parent. I have had to grieve the loss of my childhood, and the many "insults" of various kinds that came my way. I have grieved the lack of a female parent that came anywhere near meeting my needs. Every child needs a healthy mother and father. Not every child gets one, but It is a basic need. I absolutely agree that you can't keep allowing your family to push your buttons as they have been. You certainly don't need your mum's "help". Oh my, I can relate to that and the letter. I have shared this before, but will again with you. Once reading a self help book about toxic relationships, I came upon a chapter which suggested writing a letter. So without further ado, I did write to mother about a lot of past stuff and how it affected me and sent it to her. Then I read the next chapter in the book which started "But don't send the letter". Oooops! LOL Too late. Her reaction was interesting. It made no difference between us. She simply explained how each dysfunctional interaction and action was done to help me. I laugh about it now. Yes, you have enough on your hands with your father and making your plan. I think you did the right thing. We are behind you! You are standing up for yourself and that is good. it gets more comfortable with time and practice. How she reacts to it is her problem, not yours. vent and dump away - it is how we survive! Big ((((((((((((((((hugs)))))))))))))
book, I have every intention of going with the doc unless they want to release her back to her ALF, which I think unlikely. I would not allow her into my house. Think that is not going to happen now as long as she doesn't escape the hospital. In any case I think she is mad at me which may be a good thing. ;)
Time to get moving and get a few more thing done. Have a great day everyone!!! Love and hugs and prayers Joan
Emjo – just go with the flow with doctor. Whatever happens, be firm about not letting her put a foot into your home. You might have problem pushing her back out. You’ve experienced this before and you’ve read
Scmoon – I like your comments. It actually “clicks” with me. I think I’m a people pleaser. I will need to learn to remove the guilt when it comes to caregiving and setting boundaries. Problem is I have a very over-active conscience. FYI, not everyone loves their parents.
ABB – I give you kudos on setting boundaries with the family, especially your mother. I like that you wrote to her. I still don’t see why she visits and keeps butting in. And it’s not really innocent reasoning – her going to the police. Watch your back, Alison.
Sharyn, I laughed. I can just see them fighting, and then calling you to open the front door! I would have given back their key, too.
I have had a head full of thoughts about crazy family the past few days... I know it was my mom's visit to local police, with her unfounded suspicion about financial abuse, that is triggering this. Certainly before that happened I would have acknowledged that my family is... how do I choose to put it... "unique." My parents are like "aliens" to me.
But now... now I just feel resolved. Not even sad, mad, frustrated, betrayed... Because truly I can't grieve loving relationships I never had. WANTING those loving relationships is an emotion I think we all go through and get over at some point in our adult lives... I DID do that... I DID get over, in absentia, wanting my parents to be different people than they are.
But I can't KEEP allowing my family to push my buttons in such a destructive hurtful way... I got a little mini-bout of depression last week after mom's antics. I'm mostly over it, but it just made it so clear what she's capable of doing to me. I wrote my mom a three page letter where I tried to explain why her actions are inexcusable and asked her to "stay away" for the time being. She has no real reason to come for visits to the city I live in (about 2 1/2 hours drive from her city of residence), other than as she says "to visit and to help"... but as much as I could use some help, I just don't need her kind of help. And this is just the latest in a lifetime of such actions... I don't hate her, I'm not angry... I just don't need the additional chaos. I have enough on my hands with trying to caregive to my father.
I don't know how she will react to the letter. I'm a little fearful of her reaction, no matter what it is. But I did do what I thought was "the right thing" given the circumstances.
So... we'll see.
At the moment I just have a lot of gratitude for this "new to me" thread where I can share this stuff. I have a lot to vent and dump, so I need more than one vent thread, lol!
Talked with oldest son at length last night. They are planning on buying a condo quickly for 2 reasons - due to the flood he thinks the prices will go up. and horrors of horrors his whole building has bed bugs. They have had the exterminators in several times and thought they were free this last time, but, alas not. I suggested he toss all his stuff out to be sure he doesn't bring them into his new place. He said most of their clothing is bagged now and washing it in hot water will take care of the bugs. Then he said it would be quite expensive setting up again from scratch. I told him to not take a chance of taking the bugs with him. And, that likely very soon there will be an apartment full of furniture, bedding. kitchen ware etc. from mother that he could have. The only thing she doesn't have is a dining set. I don't think the others want or need any of it. God works in mysterious ways. Gary would probably hose out a horse trailer and take it all down there. So things are starting to work out already. Maybe son and /or his sig other could come up and help me pack it up.
I am thinking, because of the family meeting, that they are taking mother's condition seriously, so starting to breath easier.
I arrived before noon, but they gave me my room anyway. What a blessing!!! and the rain has stopped
sjharyn -glad you are having some time off -I know you need it.
Better call a cab and head off to the lawyers office. ((((((((hugs)))))))
Joan~I hope you get things taken care of in Edmonton. Yes, I would have to be destitute or more to accept my mother's money for support. I have spent quite a bit of my own money out of pocket for groceries, repair work on mom's personal belongings...I don't even know what it has added up to because it has not caused me a hardship and I really have no concerns.
I will make this short...(an understatement for me, LOL!!) I am off on tues./wed. and the time will be spent here at home as I need desperately to get many things organized again after all the time I spent going through mom's belongings. I know she is being well taken care of so I will visit during the next weekend. Hang in there everyone, Hugs to all!!
We never had a childhood and were the responsible one from small children. I have two younger brothers (8 & 9) yrs and was a terrible 2nd mother and sadly they have not turned out well. They both had it worse than me since I got out young too. I was not a good marriage but beat being at home. After high school I left and never looked back but still Mother has always depeneded on me and makes excuses for the boys and I cannot do eough or good enough and I stopped trying. I am like you I am doing the best I can while protecting the progress I am finally making and refuse to upset my life like it was most of the time. I lived such a roller coaster ride, it was hard for me to accept when something was going smooth since I knew it would not last long. But, now that I can accept Mother as she is and back off when she starts manipulating and blaming, I can take it. But never in my home.
We all love our parents and want to help them and the ideal situation is to be their with them but as the life span is getting much longer, they should be in a place with nursing and professional care. Most of us are not trained to deal with all the issues. And don't know when to run them to the doctor or what to do with the toxic personality, when they are no longer responsible. But, we are human and can only take so much abuse and most of us have reached the breaking point trying to change and help our loved ones. Alcoholism was a major problem in our home and as I child of 13, I called the police on my father for getting rough with my mother but I saw her push him to the limited and cause much of it. But, we as children had to be the adults and responsible ones. Of course we were the "pefect child," we had no choice but Mother still pulls my strings, I am just learning to walk away and let her get over it. She needs me now and is not as bad but I have to keep a safe distance and I have to be careful that she will not manipute me with her Dementia and forgetfulness. The last two weeks she says she is not eating and getting Diarrhea. I think the move shook he up a bit and it may be her nerves but if she does not do better, I will take her to the doctor. I do know this move has been hard for her but it is so helpful for me to have her close enough to help. But, I don't want to be an enabler and it will be difficult to tell what mode she is in now with her Dementia. Some days she is beginning to act like a child and she will be a Myrta for attention so it difficult to know what is real with her. I will just do like you said and let go and let God lead me to help the best I can without it ruining my life. So, far she can pretty much take care of herself financially and I don't mind helping when I can. But, I believe she needs to be in the Assisted Living rather than her apartment but she will not consider it.
Her apartments are adjacent to the Assisted Living and there will be no problem getting her in unless she fights us but her physician is mine and he is good and will have her committed there when it is time if she refuses to go, and he will put her in a nursing home, which she would not like. He is a wonder geriatric doctor and you cannot fool him. He has her telling him everything and he will know when it is not true. He has given her something to calm her nerves but she will not take it like she should. I am going to let him know and deal with that. I have preached and begged enough. I will let him be the bad guy and she will probably quit him. She just started taking any medicine this year at 91 and she wants to be noble and let everyone know she does not take anything other than her Tylenol PM. lol
My warm wishes to all of you. I truly can feel all the pain, frustration and hurt for each one with such difficult situations. My love and prayers are with each of you and I know we can help each other. I am sincerely thankful for each of you. Your understanding has meant so much. I truly am proud of and love each you, my new family. Each of you are so special and my heart is with you and your suffering. Just hand in and don't expect more than you can give. Your own health and welfare is so important to yourself and others.
Warm wishes and God Bless,
Sunny:)
Sunny:)
sharyn , I guess we see it the same - their money is for caring for them. If I was destitute and she needed me -maybe, but not otherwise. Thanks for filling us in about the service. sil getting the ashes must have been very emotional.
book your family is not unique - lots of dysfunction around
kd - not sure what you are referring to - but welcome
ABB -glad if any of my experience is helpful. I have learned the hard way, as we tend to do. Keep dumping! How to be yourself in the midst of it all in not easy. Not good to lose yourself. A finite time line sounds like a plan to me. There are alternatives for your dad and you need some peace in your life, I think making a plan is a great choice! Keep us updated!
College - welcome - a bossy mum can be hard to take at times, especially when she did not do much when you were young. Lots of us did not really have a childhood.
Sunny - narcissism and control are hard to deal with. Congrats that you are out of the people pleasing and the guilt. We can't "fix" anyone. I wish I had learned some things sooner, but have to be thankful for what I have learned. Sometimes we have to let go and let God with others. We were brought up to be hyper responsible and have to unlearn that. Yes, we need one another. This site and the people on it have been a big blessing to me.
I realised in the past few days that I cannot help mother any more other than dealing with her finances and physical things, and overseeing that the professionals are doing their jobs. She is unmanageable by any normal means and needs ongoing professional care I will tell the hospital that this has gone too far and I will not deal with her self created crises any more. I have done it all my life - literally from a very young age - my father drank, my sister hid in the shadows, I broke up fights between them when I was still in grade school, when I was 13, I once told her to go to her room when she was having a tantrum and she went. I have been the scape goat the whipping boy, the servant. No more!Whatever decisions they make about her affect me and my life deeply and I am going to let them know that I am DONE with the abuse, anger and manipulation. I do love my mother and want the best for her, but have to deal with that at a distance. I know the BPD and narcissism is the major problem, and I would not wish it on anyone, but you don't stick your hand out to a biting dog for him to do it again. I look forward to seeing her in heaven, as she was designed to be. Have a great week everyone. I always bring my computer so I will be in touch. Do something good for you! I got my nails done yesterday -a nice sparkly orange/coral - goes with some sandals I have! Love and blessings - Joan
Its difficult. I've been an exacting, demanding person on myself and my life. And now I'm grouped in with a crazy person (father), in his home, and I have to find the balance of how to still be me, and find simple happiness in each day, and deal one-on-one with craziness and anger each day as well.
Every day lately I'm thinking more and more about a finite timeline where I do as much as I can to benefit my dad's situation but make plans to extract myself from this situation... I'm hoping I can be out of my dad's house, and have his care/plans figured out, by the end of 2013.
I guess I'm just so aware now that I never truly have a moment's peace in my current situation. Could I make it work living here? Certainly. But I don't think that's a good choice for my happiness long term.
This has allowed me to remove the guilt and anger. There will always be scars and personality traits, I cannot change but I do like the new me who wants to help my mother but not at the risk of making my own family and health worse. I know I have to be happy within and I am proud of the progress I am making. It is just so sad, it took me most of my life to understand the real problem was never about me.
Please keep this wonderful new thread going. It is right in line with the caregivers since we all suffer from "too much "responsibility" for everyone. And not only my family but dear friends come to me as if I can solve their problems. But, I listen and try to give less advice and just show the love and compassion I have in my heart for others. But, no longer do I feel "responsible" to make them happy. I want to be a good friend, but I have to keep my head above water and cannot allows those who have used me to continue. I will love them all but with my own health issues and disabilities, I have learned to take care of myself without the guilt.
God Bless you CMag for your insight to start this new thread. It is so nice to see my new friends here from How Are You Doing Caregivers thread with all the wisdom they have shared. They will be an asset to you here and I hope you find the comfort you are looking for. We do need each other.
Warm wishes,
Sunny:)
Learning to laugh at myself, and really take the time to lighten up, is one of the greatest gifts I've received recently since caregiving onset a few years ago. I get way too serious about all of the craziness and then I have to BACK UP and realize... there is just NO WAY the Benevolent Universe intended for ME to RULE over my father (my charge). So then, everything I do is just my opinion and what I think is right, given the situation.
If I start from this place... of opinion... and trying to do what is right... given my limited human knowledge...
Then I do better as caregiver, and as a (happy) person, than I do if I believe its ABSOLUTE FACT that father absolutely needs this, or father absolutely needs that.
This is just the philosophy/opinion on my mind at the moment, nothing more.
I appreciate this new safe place to dump my deepest thoughts, thank you!
Ok, onwards and upwards my fellow caregivers!
And emjo, "caregiving at arm's length" makes all the sense in the World to me right now. I'm definitely "living and learning."