Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
You are Sunshine and Joy....your words are always kind and enlightening,
peace of mind and love to you and all
Tomorrow will my 8th day straight working (not 8 hour days). Last week I only had Thursday off. My co-worker had requested to have this coming Sat/Sun off but did not get it. However, the schedule says I requested this Sat/Sun off which I didn't. Now the schedule for next week is out and I have Mon/Tues off too. 4 days off in a row!!! I felt really bad for my co- worker and was going to give her my Sat. off because the manager wants her to work Sat. even though she made arrangements to switch with someone else. She doesn't have anything pressing she wanted to do on Sat. except she and her hubby wanted to go out on their boat. I tried to give her the day but she wouldn't take it.
What will I do with 4 days off in row, LOL!! I am hoping to go to Yosemite on Saturday because I have been wanting to go there to get some pics of Tunnel View at sunrise. Sis doesn't want to get up that early but she does want to spend the weekend there in bro's motor home. There does not seem to be a comprise and bro doesn't know our plans. Sis has not responded to my email of leaving early and staying for the one day. I can't help but feel that bro and sil need this time for themselves. Have a good night!!
Finally today I got a hold of the bank lady and I now have access to mother's account. She had some good suggestions re dealing with too many and too big withdrawals. They cannot refuse people but e.g. they can remind them that they took out $1000 yesterday, or when asked for $1000 give then $200. She said it seems to work. They can also put a limit on the amounts spent using the bank card. I will see what mother`s spending patterns are, and we will go from there. As long as she takes the drug she is calmer for now and not as likely to do something foolish. I called mother`s Case Worker and hope she can fill me In re the latest assessment and follow up visits.
My new iPhone is charging - slowly. Hopefully it will be up and running by tomorrow. I will take mother out to lunch and help her on the new computer afterwards. I have decided on a new tactic with her, which is, firmly, to tell her the truth. She started in on the delusion about being sent away and I told her that was not true. I had to repeat it a few times and point out she had no evidence that they had a plan, I was very definite, and finally I think she believed me and she said "That's good". I told her to let it go. Now, by tomorrow, she may have forgotten, but I will keep reinforcing the truth. Going along with her, or saying nothing wasn't helping so I figured I might as well try the truth. She might have gotten mad that I was disagreeing with her -she certainly has done that in the past, but she didn't this time anyway.
Tomorrow evening I will relax over supper with a friend. I think I deserve it, and the next day back home. I am ready to stay put for a while. Hoping for some peace.
I have had nothing but stress with my family for 4yrs now and finally things are moving my mum has been acting strange for awhile. Ive now had to go to a private geriatrician with my mum and he is sending her for a scan PHEW!! someone finally listening to me! (worth the money)!
My mum has had depression for years but since I moved home 4yrs ago ive noticed that things were not just depression related she was doing some very dangerous things like leaving front door open at night while here on her own? not washing,shopping,cooking,starting little jobs and then walks away and leaves them(what a mess) peeing on the floor in her bedroom even though the bathroom is close by? Im lucky to have bumped into a neighbour whose mum had alsheimers and having spoken with her alot she said this sounds very like how her mum was in the early stages!
My mums doc has been useless and said he couldnt discuss doc/patient with me?
anyway im finally getting there and just very stressed until a proper diagnosis is made. My mum is diabetic and has NEVER looked after herself or stuck to her diet never exercised etc... so this would not be a total shock that she may now have dementia. the signs are there but even her doc says depression? I have now decided to NOT talk to my family as it only causes me more stress and like you say wait for diagnosis then hopefully they will wake up.
My mum is going into respite next week and my sister is coming over then?? I have the most probelms with her as she beleives everything my mum says and is quite patronising in the phone so ive ignored her calls now for a few months. I do everything for mum and shes so unappreciative and selfcentred and constantly puts me down to my sis but am learning that this is the illness that they do become quite self obsessed and cant see how demanding they are.
Im not here by choice had to move back home as I lost my job then had an accident which left me with injuries but now am better and want to move on and move away from here. Obviously I want my mum to be safe and if it means a home then we have no other solution which is just heartbreaking but without 24/7 care she is not safe. The stress of all this has made me ill and my stomach feels like a huge ROCK. Looking after my mum would be so much easier if my family helped more but they just think of themselves and never consider my feelings. I just want the best for my mum so I can leave knowing shes safe.
Rather than continuing to make statements to your family about how you perceive mum's condition, get expert help in the form of an assessment and a doctor's diagnosis.
sharyn - I think they are sticking with the original care plan. What happens may depend to some extent on the re-evaluation by her case worker. I need to call her today. Supper with my friend last night was good, So happy to hear about the good news from your brother. His quality of life is improving!!! Prednisone is not easy on a person. He needed a break. Good to hear that you are liking Windows 8 more. I will need to spend some time on it eventually.
jody, you sound more hopeful about your life and future, and also about your mother doing more for herself. Hope the job works out - sounds like a very good thing for you.
((((((hugs))))) to all and have a good day.
Ok, everyone thank you for the strength and the wisdom you all have, to me you are my power angels.
Allison, I try everyday for acceptance, I pray for acceptance, and at times I am at peace with myself. Because she is (one of those moms who like to watch you run your - - - for) it just takes away all my acceptance. Like today, she wanted me to put out her water so she could wash up, she was in the LR in her chair and I in my room, and she at the top of her lungs she says(any kind of help would be great)
meaning she wanted me to push her WC to the BR, She hates doing that and just stops in her tracks until I get up and do it, there goes my peace. And its so strange 've cleaned up poop for 35 years, and I cant stand to do it for my mom.But she refuses to clean or empty her potty. I can only hope that acceptance will come more often than not. Thank you for your kind wisdom.
Bookluvr., You are right, I do everything for her except wipe her - - -. When she doesn't really want to do something and I don't do it for her. She will wait for the end of the day and then demand I do what she needs, then she waits for my brother to come over and guess what ( She tells on me) I really don't care that she doe's that, but holy cow......hahaha Im trying different things to see what I can get away with, like not push her in her WC, Or get her more coffie, Or just get a glass of water. She has me thinking shes so weak, but she doe's get up at 800 and back in bed by 10;00, seems to be sleeping alot. I think she gets board and I don't always sit and talk, I try to do enough to feel like I just work 8 hrs so I can feel ok about not working. Im going to try some of the things you advised me to. Thank you Ill let you know how it goes.
Sharyn, you sound like you have so much wisdom. Just today I was looking for jobs, I think I've made my mind up to go to work at night, I applied at a company called nightingaleseniorcare out of OC. They called me for a interview. They want me to work for them when overnites are needed, its not anytime away from mom, but at least I will have my own money. Thank you for caring so much about me, it feels really good.
Margeaux, isn't it funny how we don't see our family members in ways others do.You have helped me see my mom in such a different way. I guess when growing up we all have this block about what are familys would be like and what their really like. Until you wrote me, I guess I looked at her like she was just mom, but as she gets older I don't even know who this woman in this frail body. She is all about her, I understand that, but I also understand there is two people in this house, and she really doesn't care about me, so I guess I will have to care about me. You gave some really good info, thank you so much.
And I cant wait to hear from all of you , I think you all have much to offer, and again your my angels from heaven, I hope that all of you get what you want and need at this most impossible journey we have to face in our lives.....Kudos to you all and hugs
We got good news today from our brother. His test results all improved...breathing tests for different situations. The dr. is weaning him off the prednisone again but they are introducing an anti organ rejection drug. This new drug will do the same thing prednisone does without side effects of diabetes and bone loss. He will, however, have to get blood work weekly to monitor his white blood cell count because the drug can lower the immune system. He is thrilled, we are thrilled!!! He called me from Yosemite Nat'L Park, he is enjoying his life, hiking and relaxing!! YAY...some good news for him and sil!
Two days ago was my mother's 82nd birthday. However, she was too weak to take it all in. She's still weak, sleeping a whole lot and not speaking much as she has done now since coming back from the hospital about 2 months ago.
Love, prayers and hugs for all. Keep your boundaries and take care of yourself as much as it is possible.
I wonder how long before the next incident - because there will be an other incident -that s guaranteed.
I have an appointment for myself tomorrow, and need to buy a smart phone -probably an iphone, and, of course visit mother. Hopefully by the time I leave she will be able to use her new computer for email at least. Wish me luck..
Okay, I've taken a breath. Now on to the next chore. One of these days I'll find time to shave my OWN armpits and legs. Might even be able to get a pedicure before summer is over.
Be well, and just breathe!
I completely agree with others here on the thread. If your mom is capable, which it sounds as if she is.....then maybe these are the things you might start to consider she does for herself.
I've written about a very difficult narcissistic aunt my sister was taking care of until 1.5 yrs. ago. She had many health issues. One was borderline diabetes,
but to watch her eat, one could see why. Of course she ended up in the hospital several times from infections on her feet. I remember her coming back home to mother's, where she lived. She was the type of narcissist who used every trick in the book, to manipulate my sister (who lives there). My sister had a terrible relationship w/this woman. So one day my sister called to say she was behaving as if it was very difficult for her to get to the bathroom on her own. On account of her bad behavior and the manipulation, we honestly didn't know what was true anymore. But my sister busted her. Sure, it wasn't easy for her to get out of bed , but my sister suspected my aunt was thinking it was time for the pampers. My sister just wasn't going there with her, she was so awful, and I can't say I would blame her, I wouldn't either. It was very obvious in our case, that my aunt was getting her jollies by watching everybody do things for her. So my sister had to raise the issue of she going into a nursing home, just to put a stop to some of the games my aunt was trying to employ. It worked, too!
Anyway, you have to decide whatever actions you consider would make it a more tolerable situation. I say this because you live with the woman. But this by no means should translate into she degrading you in the process, ether.
Please don't fall for the comments about, what is it I don't remember exactly but amounts to the fact that your brother and sister would do a better job, or she can't bother them; they work, etc. She's really pushing your buttons, and making you feel obligated. Heck....I would want to leave too.
Since you are bringing all of this up, it's apparent it is of major concern.
Try and step back, think about it....you do have it in you to change your situation, but it's going to take you to take that first step.
Much Love & LIght! Margeaux
So sorry to hear about the fact that your mother seems to be paranoid.
How rude that this RMCP person was making her strong insinuations about you and the financial arrangements regarding your mom's situation too. Real good,
you put her in her place! Even people who work w/in this system cross the line.
You have every right to follow up asking questions about filing the report about your mother, too. I would think this is protocol.
This lady who saw to it that your mom ate, how wonderful is she!
I certainly hope that all of the appointments, and visits go well with your mom.
I realize this is a very difficult week for you also, given it's the anniversary of Gordie's passing. You are in my thoughts Emjo!
Much Love & Light! Margeaux
Thank you so much for the advice you gave me regarding my husband.
You are right, this widower has no right to interfere where the organization is concerned.
I hope all is well with you and your father.
The recent advice you have been giving to Jody, is excellent and I think applies to other posters here. We do need to know when to back off, because if we don't who knows to what level some of the narcissists, or people w/issues will try to take it.
Take care, Much Love & Light! Margeaux
You are doing way tooo much for your mother. It's very important to back up and let her find her way back to her own 2 feet. Fear of falling? Then she will remain permanently on that wheelchair. Father fears falling, so he absolutely refuses to leave the bed - not even to the wheelchair - here at home or at the hospital. The nurse had a difficult time trying to squeeze the big bed out of the door to wheel him to Radiology department. But just because he's bedridden, I do NOT spoil him. Sis spoils him. She got to the point that she would raise or lower the bed with the remote control. Father can do that, he has a working right hand. He expected me to do it for him. I got mad and told him to do it himself. He has a working hand......Father wants me to go behind the head board of his bed, lean down, and Pull him up. The hospital people and the govt caregivers do that. I Do Not. He weighs more than me. Plus mom's dead weight - all these years - have affected my back, my shoulders, my elbows, and my neck - from pulling her up daily - 2 times a day for years. Father wanted me to do that. I said NO. You have a working right hand (he can grab the trapeze bar overhead) and I showed him to put his right foot against the right railing, and use his left leg to help push himself Up the bed. Jody...do you see what I'm trying to show you with these examples? Sister spoils him. I do not. Know when to step in and help and when to back off and let her struggle and learn to do it herself. Not Trying - is Not an option.
Maybe you can start by deciding what YOU want. What you can do and what your mom can do. I think if you're mom can still stand and walk - that if she desires to do so - she will do it. As long as you keep pampering her, she will continue to treat you "as is." Gain some independence, and your mom will know that you can walk out any time if she treats you badly enough.
I believe ..this is what is called.. Detaching and lovingly Setting Boundaries. Hmmm... I just call it "Tough Love." Whatever you decide, just know that we will not be disappointed or hurt or angry if you decide to continue "as is." Okay? You Do What YOU Have to Do. {{HUGS}} to you.
I now fully accept that he is going to do as he pleases, whether its good for him or not, and thats just how it is. I don't try to change him in the least anymore. My acceptance of him is a big relief to me. I did/do worry about his inactivity. But I have tried everything I can think of to get him to be more active. He just refuses. So I stopped trying and found much greater peace as his caregiver. I don't know that my choice here is the "right one" for you, of course. But I thought I would offer my story and just let you know that I understand the frustration you're feeling.
sharyn - I am reading a Cloud book on Boundaries - I think it is the same one . I like it. I was going to bring it with me, but packed another book by mistake.
juju - you are amazing -I can't imagine all the work you have to do right now with the home renos - your mum is so lucky to have you
travelled today - Gordie's 11th anniversary - made some phone calls and appointments but couldn't go to the hospital. It is the same one he died in 11 years ago. The bank lady was supposed to call me today about the POA but didn't so I have to try to chase her down tomorrow, and also one of the doctors to find out how they think their care plan for mother is doing!!! I would say they are not quite on the mark. Supper with a friend and visit mother after, . Thursday an appointment for me re hearing, It is a family problem and mine needs some attention, and maybe meet the church lady. and visit mother again I am sure there will be errands to run for mother. and so it goes.
Take care all, and remember - do something good for you!
You are getting it, you are learning and, I believe that you will continue to. Yes, it does get easier with practice. And, hey, Alison, if they don't like it -so what - as long as you like it, you maintain your dignity -you do what you feel is right for you, you keep your own self respect and so on. Positive changes will bring about good - maybe not exactly what you imagine, but it will be good. It is my sense that the hurt/betrayal from your mother is deeper.
Of course you are wary - there is a lot at stake here and you are wise to be cautious. We each walk our own journey and find out own way. My prayers are with you.